Listen: The Pain Of Living With Narcolepsy

nytimes.com:

About 50,000 people have been diagnosed with narcolepsy in the U.S, but there may be as many as 2.4 million people unknowingly living with it. Narcolepsy causes excessive daytime sleepiness, fatigue and even sudden muscular weakness, known as cataplexy. Here, six men and women speak about living with narcolepsy. Listen to their stories.

Read the whole story: nytimes.com

Comments

[hwm1979]

My family has narcolepsy in some form or another. My father had it for several years ago before any meds were developed. My older brother (there are 6 of us ) has a severe case to the point of hindering his life because of no sleep and the daytime sombulence. I have a medical background and have tried to get my
brother the best care possible. This has been problematic due to a general lack of research. Now he is in the Cleveland Clinic system and doing better. Provigil has been a godsend, for years he has taken uppers and downers. Now with regular sleep studies and using CPAP equipment he has a near normal life. But he still needs big weight loss. However things are better. The article hit the point, but these folks can have a normal life. We need more research and specificallly stem cell research.

[MagicalPossibilities]

Zzzzzzzz..­...

[Pavane]

You just had to do that.