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Autism Screening Called Into Question

Autism Screening

First Posted: 06/13/11 01:00 AM ET Updated: 08/10/11 06:12 AM ET

When toddlers arrive at Dr. Monika Symms' office for their routine 18-month visit, the pediatrician gives parents a survey screening their children for autism spectrum disorders (ASDs). She does this always, regardless of whether they have raised autism as a concern.

Symms' practice, Tribeca Pediatrics, developed the survey in accordance with guidelines from the Centers for Disease Control and American Academy of Pediatrics. It includes 23 questions, but Symms says she pays particular attention to four: Is the child bringing you objects, making good eye contact, pointing at things and responding to his or her name? If not, it could be a red flag, prompting further evaluations to determine whether or not that patient has an ASD.

"I think that routine autism screening is absolutely important," Symms told The Huffington Post. "There is so much misinformation and fear out there. It's a great tool."

But a new study released Monday suggests otherwise.

Researchers questioning if routine autism screening is actually an effective public health tool conducted a sweeping search of the existing scientific literature. They determined that there is not enough evidence to support the implementation of routine screening for autism. The conclusion flies in the face of AAP's current support of the practice. (Interestingly Pediatrics, which published the article, is the organization's official journal.)

To arrive at their conclusion, the researchers asked seven different questions about the efficacy of screening. Of those, co-author Dr. Jan Willem Gorter of McMaster University in Canada, singled out three as the most important: Is autism a disorder that has a significant impact on the lives of people, are the tests effective and are there sufficient tools to help patients after a diagnosis?

Gorter said the researchers found that ASDs absolutely do have a clear and significant impact on the lives of people. But they found that current tests to diagnose the disorder were not effective enough -- lacking specificity, sensitivity and proven predictive abilities.

As for the third question, the researchers concluded there was no "strong evidence" of the effectiveness of current autism therapies, adding that their availability is still limited.

"Many therapies are available, but none has curative outcome or even well-established efficacy to change the course of the condition," they wrote. "The financial burden of the treatment can be extremely high, and cost-effectiveness has not been demonstrated."

Gorter was quick to caution that there is a big difference between routine screening -- which means surveying everyone, including apparently healthy people -- and clinical surveillance, which means surveying those who present with impairments that indicate a possible problem.

"We as a group think that if parents have concerns, they should go for surveillance," Gorter said. "But routine screening doesn't necessarily address that and at this point, it may be premature."

The AAP, which currently has 60,000 pediatrician members, currently recommends all children be screened at specific intervals, regardless of whether a concern has been raised, saying that pediatricians play a key role in early recognition of disorders.

Other groups have also thrown their support behind that recommendation.

In an email, Dr. Geraldine Dawson, chief science officer of Autism Speaks, the nation's largest autism science and advocacy organization, said the group supported the AAP's recommendation that children be screened at their 18 and 24-month checkups.

"Early intervention has been shown to result in significant increases in cognitive and language abilities and adaptive behavior," she said, "allowing children the best chance for a positive outcome."

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When toddlers arrive at Dr. Monika Symms' office for their routine 18-month visit, the pediatrician gives parents a survey screening their children for autism spectrum disorders (ASDs). She does this ...
When toddlers arrive at Dr. Monika Symms' office for their routine 18-month visit, the pediatrician gives parents a survey screening their children for autism spectrum disorders (ASDs). She does this ...
 
 
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Achieve Beyond
National Pediatric Therapy and Autism Services Com
10:47 AM on 06/17/2011
This is a great quote that we at Achieve Beyond base our work on, "Early intervention has been shown to result in significant increases in cognitive and language abilities and adaptive behavior". The earlier you parents can start having a child checked for autistic symptoms the less likely a developmental delay is to occur. We at the agency encourage parents to have their child sent in for an evaluation to see if their child may be at risk for disorders that can be dealt with easier if detected at the earlier stages of development.
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legaleagle4
proudly scaring conservatives since 1982
12:11 AM on 06/15/2011
The level of ignorance here is frustrating, to the point where I want to cry, honestly. I was diagnosed with Asperger's as an adult, and I know that I am not "normal". I can't stand hair in my eyes or mouth (I stop and flail and start crying). I have to have things in a specific order, up to and including destinations - when I drive, I have to go to the furthest away and swing back, otherwise I get upset, and no I can't explain why. I was making lists of the Presidents by the time I was five and could recite them backward and forward. Certain sounds make me whimper in pain - real, not imagined pain. I have severe social problems, but I have managed to make a couple of friends I cherish.

And yet there is a major percentage of you that would tell me I'm just a freak, that there's nothing 'wrong' with me, that having these insistent habits and being afraid of things is perfectly normal. You don't know me, you don't know who I am or what I've seen or been through. I'd much rather have a label of Asperger's than "freak" or "useless" or "mentally challenged." I'm not mentally challenged, but I am not normal, and I am not a hypochondriac. Until you meet me, kindly refrain from suggesting that I am.
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Heather XW
09:04 PM on 06/14/2011
There is a lot of misrepresentations of facts regarding autism in the comment section of this article (weebils).

1 Myth: Autism is not an epidemic and the numbers are due to misdiagnosis, quirky kids have always been around.

Evidence Against Myth

(a) From the EPA - "Although the debate about the nature of increasing autism continues, the potential for this increase to be real and involve exogenous environmental stressors exists. The timing of an increase in autism incidence may help in screening for potential candidate environmental stressors."

http://pubs.acs.org/doi/abs/10.1021/es902057k

(b) Leo Kanner diagnosed the first case of autism in 1943. If the prevalence rate was the same when Kanner first diagnosed autism 1 billion autistic people would be living on earth before Kanner first described it, this is of course not the case.

http://www.neurodiversity.com/library_kanner_1943.pdf
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Heather XW
09:27 PM on 06/14/2011
Myth 2: Autism Is Primarily Genetic

Peer-Review

For the great majority of people (97 + %) there is zero evidence from extensive from extensive gene studies that autism is genetic

http://www.kedu.us/Ask%20the%20Doctor/Exploring%20the%20environmental%20contribution%20autism.pdf

http://www.ldanys.org/images/uploads/misc/1218746794_LDDIStatement.pdf

From the EPA

Dr. Paul Anastas
Assistant Administrator of the EPA office of research and development and science advisor to the EPA.

Time Stamp: 27:00
Is this environment or is this genetics? Genetics can’t change this quickly to explain the dramatic increase in autism. Environment + Genetic Susceptibility = Autism. Triggers are released because of environmental exposures.

http://www.c-spanarchives.org/program/ID/229731

http://epw.senate.gov/public/index.cfm?FuseAction=Hearings.Hearing&Hearing_ID=1ab3cf42-802a-23ad-4a3a-686da83bf6d0
08:09 PM on 06/14/2011
I think this is a great idea for parents. There are children out there who do not display the most prominant behaviors of autism. My son is considered to be on the mild end of that spectrum and if you dont know what you are looking for you would prob see him do something that you are not use to seeing in a child his age and you would assume he is just a weird kid. While there is no real treatment for autism, for me just understanding it has helped me to understand why my son does some of the things he does. Which also leads to tolerance. I can also help him to control some of his behaviors and generally make him more comfortable socially.
08:08 PM on 06/14/2011
Good insurance coverage encourages testing and subsequent treatment which causes the symptoms to worsen (side effects) necessitating more and different medications. Be careful with doctors, they mean well, but are educated to see disease.
This comment has been removed due to violations of our [Guidelines]
06:58 PM on 06/14/2011
I'll bet that if the doctors had to perform the routine screening of everyone for free, they'd be real quick to agree with the study. We have become a nation of insane people, hypochondria is rampant. (like insomnia in the sleep number ad)
08:21 PM on 06/14/2011
So are parents like me with kids with no empathy and no way to communicate effectively with their peers and prone to at least one meltdown a day due to something to do with his OCD characteristics hypochondriacs? I have a neurotypical 2 year old, by the way, and there is a HUGE difference between my two children. And guess what my 2 year old only speaks 3-5 words but he is developmentally normal. My son that is almost six can't run correctly, can't throw a ball or kick a ball, and can't look you in the eye. So should I sit back and do nothing and not even try to do something like this story suggests? Should I let him go through life ostracized because he's different or should I try to help him learn how to cope and still be himself? Hrm. I wonder what I'm trying to do.
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onionboy
Blessed are the Cheese Makers
11:48 PM on 06/14/2011
How is saying "We have become a nation of insane people, hypochondr­ia is rampant" not engaging in the same type of hysteria?
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hattieli
06:30 PM on 06/14/2011
We at Autism Awareness Association Inc. agree also and we are very glad to hear this will be done at certain intervals in a childs life Right On For Progress
06:13 PM on 06/14/2011
The point of the article is Early Intervention. Many parents don't realize that their child is "not normal" or not making certain social milestones. To them it is normal and they don't question it unless it is brought to their attention. This is a way to let parents know of potential problems, not only ASD issues, but social issues and other health related issues.

I happen to be a special education teacher and began noticing signs of autism in my son at 10 months. I began therapy with him at that time and he was in Early Childhood Special Education by the age of three. (Social skills and speech therapy) He began Kindergarten full time in a self contained autism classroom. He just finished third grade and is in a regular classroom all day long with no para. My son has made the progress that he has due to all of the EARLY INTERVENTION that he received. I know that if I had not started with him as young as I did he would not be able to be in a general education classroom without any support.
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onionboy
Blessed are the Cheese Makers
11:49 PM on 06/14/2011
Excellent comment.
05:06 PM on 06/14/2011
There's way too many classifications for the Autism Spectrum Disorders. 1.) Classic Autism, 2.) Asperger Syndrome, 3.) Pervasive Developmental Disorder Not Otherwise Specified [PDD-NOS, sometimes called atypical autism], 4.) Rett Syndrome; 5.) Childhood Disintegrative Disorder (CDD) also known as Heller's syndrome. These should all be using specific & unique names and definitions so as not to be misunderstood when generalizing by calling it Autism.
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Heather XW
09:36 PM on 06/14/2011
I totally agree. Autism is also a Mental Illness diagnosis. It's now evident that autism is a biological disorder. The good news is the UC Davis Mind institute is working on what you suggest. They are classifying the many sub-groups of autism. There are many and as each is uncovered the triggers will come to light as well. It's an exciting time.
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onionboy
Blessed are the Cheese Makers
11:51 PM on 06/14/2011
Many mental illnesses are biological. They're still mental illnesses. Schizophrenia is a perfect example...not just biological, but hereditary as well. So, classifying ASD the same way is consistent. The brain is an organ of the body.
04:18 PM on 06/14/2011
I think our society and medical profession has decided something is wrong with all our kids. They are either autistic on some level, or they have ADHD. I disagree with this pattern of looking for ways our kids are abnormal. But if we are determined to perpetuate this unhealthy pattern, why not just administer a screening that determines whether a kid has autism, or ADHD, and be done with it. If this sounds sarcastic, it's meant to be. We are definitely an all or nothing society, so only when we have gone drastically too far in forcing our children to be anything but happy, healthy kids will we put the brakes on this assault of our children's well being.
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HUFFPOST SUPER USER
Heather XW
09:42 PM on 06/14/2011
Your classification of normal escapes my son. He is fully aware that his peers don't drop to their knees screaming in pain when there is an overhead announcement. He is fully aware that his peers arms and legs don't spontaneously go numb. He is aware that the "normal" kids don't experience their skin and eyes feeling like they are on fire and try to put out the pain causing serious injury to himself. This is a true neurological disorder that requires compassion and understanding so it can be avoided. The pain is real the suffering is avoidable. We must not normalize an avoidable condition for the sake of the new term neuro-diversity.
03:45 PM on 06/14/2011
EMPATHY, EMPATHY, EMPATHY!
People with autism do NOT have empathy. Empathy cannot be learned.

Of course, this is NEVER pointed out.
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legaleagle4
proudly scaring conservatives since 1982
11:59 PM on 06/14/2011
Do you have autism?

I do. I empathize with people, but I don't know how to process it. I never know what to say or how to say it, and no it isn't as easy as just saying it! Your insinuation is offensive.
EvolveorPerish
R E anna what have you done?
03:51 PM on 06/15/2011
This is not true, my son is severely autistic and gets distressed if I cry, to the point he will cry if I don't stop. It is not that they don't "feel" but that they can not find a way to communicate their feelings, or that they don't feel a need to make sure YOU know how they feel.

Empathy comes first when YOU make an effort to understand someone's perspective in the world.
This user has chosen to opt out of the Badges program
02:15 PM on 06/14/2011
Well it's about dam time!! Just can't believe that doc's are putting this "brand" on all those children these past few years. Small children are constantly on move, they get board after just a few minuets... this is NORMAL!!
02:27 PM on 06/14/2011
You have NO clue what Autism is all about. You're talking about ADHD, something in the spectrum, but TOTALLY DIFFERENT.
08:11 PM on 06/14/2011
The treatment of Autism is part of the spectrum of social/emotional behavioral
and Neurological disorders. The disorders vary in severity. Very little is understood
about the causes of autism. There is a theory that a group of genes inherited
from our neanderthal ancestors were actived by something in the environment.
They were dormant for eons, however, they are now interfering with our
children's development. Behavioral therapies along social/emotional focus is
extremely helpful. Behavior conditioning is for lab rats, not human children. Only
in the most severely affected children should this cockamamie method be
used. 10 years from now, the ABA fanatics will be looking for new jobs when
studies will show it was much ado about nothing and preyed on parent's
desperation.
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HUFFPOST SUPER USER
gabbybaby8705
03:31 PM on 06/14/2011
Glen, did you actually read the article? it didn't mention anything about "constantly on the move" or inattention. Those are normal characteristics in children, not in autism. Its typical for an autistic child to sit on the floor for an hour and a half staring at a fan, or spinning the wheels on their toy car without actually making it do "car things". Autism isn't a "brand" that is placed on children randomly. You should look it up. It would do the world a lot of good if more people understood the characteristics of a person with autism. Would save me a lot of trouble anyway...
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HUFFPOST COMMUNITY MODERATOR
tyger
04:17 PM on 06/14/2011
Exactly and more importantly autistic kids do not mimic, which is how all kids learn.
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stape45
Spin this!
05:32 PM on 06/13/2011
Profits, profits, profits.
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Taximom5
04:52 PM on 06/13/2011
My kid went from a diagnosis of autism (by no less than 5 doctors, as we were in a bit of denial, and didn't want to believe it) to--a diagnosis of normal. He gets straight A's without an aide (honors classes!), he is a third-degree black belt in Tae Kwon Do, he plays violin in the school orchestra, and he is very involved in school and community theaters, particularly musicals.

I consider that a cure.

Funny that those who give up on the medical system, ABA, psych meds, etc, end up seeing their children improved and even cured, while those who rely on the medical system agree with those medical professionals and say, no, there is no cure.
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HUFFPOST COMMUNITY MODERATOR
tyger
04:20 PM on 06/14/2011
You are extremely lucky. Some kids do recover from autism but it's rare. I would love for my grandbaby to recover but most likely she won't.
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bredlaum
manners are free
05:27 PM on 06/14/2011
Tyger .. God Bless you and your family.
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Heather XW
09:54 PM on 06/14/2011
Researchers See Recovery From Autism
Study Shows Some Children May 'Move off' the Autism Spectrum

http://www.webmd.com/brain/autism/news/20090511/researchers-see-recovery-from-autism
04:31 PM on 06/14/2011
Your child must have been misdiagnosed or is an extremely bright Aspberger's Syndrome person. You mention all his accomplishments but not his friendships. Does he have friends? Some Aspberger's people can accomplish much yet lack social skills. Unfortunately, contrary to public opinion most Aspies are not geniouses.
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Taximom5
04:46 PM on 06/14/2011
If my child was misdiagnosed, it was by 5 different, unrelated doctors in 2 different states.

I don't believe he was misdiagnosed, as he fit all the criteria for diagnosis (which the doctors kept telling us, but we didn't want to believe it).

He had no friends as a small child. He was utterly unable to relate to other children. He didn't even respond when they spoke to him. He was unable to play pretend games, table games, sports, anything that required "back and forth" interaction.

He does not now fit the criteria for Asperger's Syndrome (note correct spelling).

He has many friends now, and relates well with them, both in group and one-on-one settings. Interestingly, he relates well with both "neuro-normal" kids and special-needs kids, though he has a strong preference for "neuro-normal" kids.
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legaleagle4
proudly scaring conservatives since 1982
12:02 AM on 06/15/2011
Are you an Aspie? If not, please don't talk about us in such a cavalier fashion. I am not normal, whatever you want to call it, but I have been diagnosed an Aspie and I know what I am and what I have problems with. I do have friends, though very few.