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Male Breast Cancer: Limited Awareness Costs Lives, New Study Says

First Posted: 10/27/2011 2:20 pm EDT Updated: 12/27/2011 4:12 am EST

Men have a breast cancer incidence rate less than 1 percent of that of females, but when they do get the disease, it is often more advanced, according to a sweeping new study.

The research, published earlier this month in the Journal of Clinical Oncology, looked at breast cancer in 6 countries over the last 40 years. Researchers found that men had poorer five-year survival rates than women, and the disease generally occurred later in life for them.

Dr. Mikael Hartman, a professor at the National University Cancer Institute in Singapore and the study's lead author, said much of this hinges on hormones. Men get diagnosed at an older age in part because breast cancer development is related to hormonal exposure -- particularly estrogen -- which is virtually absent in men, thus delaying the disease's development.

But a bigger issue may simply be men's lack of knowledge about the disease. Indeed, the study found that when men and women caught cancer at the same stage, men actually had a better chance of survival than women.

This, experts say, underscores a need for increased awareness that men are at risk.

"We believe that men present later due to limited awareness of the disease, so that men who develop a breast lump delay seeing their doctor longer than a comparable woman would with similar symptoms," Hartman said. "The outcomes of men have improved over time, but not to the same extent as for women."

With breast cancer awareness month soon coming to a close, advocates are toiling to do exactly that.

Cathy Reid started the advocacy group Out of the Shadow of Pink with her husband, Joe, in 2005 after he was diagnosed with stage 4 breast cancer. Joe died from the disease, but Cathy has continued her advocacy efforts.

In recent years, Reid -- who still gets emotional when speaking about her husband -- has spearheaded a grassroots effort to give male breast cancer an official "slot" during the female-centered awareness month. She has pushed legislators and joined with other advocacy groups to get the third week in October dedicated to male breast cancer specifically.

Thus far, she has not been successful.

"There's a lot more information out there now than there was in 2005, but we still need more," Reid said. "I drive a truck with signs all over it that say 'male breast cancer awareness week.' I can't tell you how many times people stop and say, 'I didn't know' or 'I had no idea that was a possibility.'"

In the mid 1990s, Nancy Nick started the John W. Nick Foundation in honor of her father, who passed away at age 58 from male breast cancer. She created an alternative ribbon to the now ubiquitous pink one. Her version is both pink and blue.

"Being a woman and a daughter of a man who lost his battle to breast cancer, I have never understood why the female breast cancer foundations could not include a page about male breast cancer, and add blue to the ribbon," Nick told HuffPost.

Her group has designated November male breast cancer month, and it spends it trying to drum up more enthusiasm and funding. She thinks that allotting the third week in October to male breast cancer would be divisive, and would somehow diminish women's struggle with the disease.

Reid disagrees.

"A lot of times, people say we're trying to take something away from women, and I'm like 'no, we're trying to save lives,'" she said. "Yes, the numbers are smaller, but most men are diagnosed at a much later stage."

According to the American Cancer Society's 2011 statistics, about 2,140 new cases of breast cancer will be diagnosed among men by the end of the year, making it about 100 times less common among them than among women. But also in 2011, approximately 450 men will die from breast cancer.

Both advocates and researchers agree that with better awareness, the current pattern of delayed presentation could be changed.

"Since male breast cancer is rare, screening is not an option," Hartman said. "But being aware of newly developed lumps in men is relatively easy."

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12:12 PM on 11/01/2011
What costs even more lives is the fact that Prostate Cancer, which strikes more often than Breast Cancer and kills nearly as many, receives less than 50% as much research funding.
02:49 AM on 10/30/2011
my girlfriend found a lump in my breast 10 years ago.
pestered me to go to the doctor.
cancer! but early detection saved my bacon.
had a mastectomy but no lymph gland removal or radiation. mammo and ultrasound every year since. so far so good. was a stressful time. no one except the medical profession took male breast cancer seriously. i was subject to incredulation of my peers and many 'girls disease' jokes. information was seriously hard to find. rehab was almost 100% female orientated.
i had to fight to get chapter on men's breast cancer included in the various cancer societies' literature. but now it's all there.
job done in that area.
diaganosed with prostate cancer a few months ago. radical prostatecomy performed.
all going well so far.
but you begin to think, 'when does it ever end?'
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April Pells
11:46 AM on 10/29/2011
I had a friend who found out he had breast cancer when he was 12, after a baseball to the chest and they found it on xray. He lived, and to this day takes every chance he can to talk about he experience.
01:52 AM on 10/29/2011
The correct link for John W. Nick Foundation is http://www.malebreastcancer.org.
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Enzo Ferrari
11:24 AM on 10/28/2011
I need 2 nurses. 1 to massage my testicles looking for lumps, and another one massaging my man boobs. Wait, I need a 3rd nurse to feed me grapes and fan me.
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SeeTheFnords
Look out - there's one behind you!
09:15 PM on 10/27/2011
Sadly, I think that most men don't even think that they can get breast cancer. Well, they can - and they do. Public education would be a great start: perhaps doctors should bring the subject up while discussing cancer in the "dangly bits" with their male patients.
06:07 PM on 10/27/2011
People always wonder why we can't cure cancer with all the millions of dollars people are donating. This gives a good explanation on why cancer can't be cured right now.

http://explainlikeakid.blogspot.com/2011/10/why-cancer-not-curable.html