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New Study Sheds Light On Why Autism Diagnosis Can Be So Difficult

Autism

Posted: 01/23/2012 1:56 pm

Medical diagnoses are rarely clear-cut, and that may be particularly true among children with autism.

A new study finds that children with autism spectrum disorders are more likely to also have other developmental or psychiatric conditions -- highlighting one possible reason why many have changing diagnoses as they get older.

The study, published Monday in the journal Pediatrics, relied on data from more than 1,300 children from the 2007 National Survey of Children's Health, broken into three age groups -- ages 3 to 5, 6 to 11 and 12 to 17. Based on parental reporting, those kids were further broken into two categories: those with a current diagnosis of autism, and those who had been diagnosed in the past, but no longer met the criteria for an autism spectrum disorder (ASD).

According to the study, children ages 3 to 5 with a current diagnosis of autism were 11 times more likely to have a learning disability and were also more likely to have developmental delays than those with a past diagnosis.

Children ages 6 to 11 with a current diagnosis had higher rates of past speech problems as well as anxiety issues in the present than those who had a past diagnosis, while adolescents with a current autism diagnosis had higher rates of speech problems and were 10 times more likely to have epilepsy than those who no longer met criteria for the developmental disorder.

Overall, children with an ASD were more likely to have two or more co-occuring conditions than those with a past diagnosis.

"This study is helpful as the authors try to predict which children on the spectrum will improve. Rather than determining future outcomes based on the severity of ASD symptoms or whether the child participated in a specific treatment, the authors instead use the presence of co-occurring disorders as a tool to predict whether an ASD diagnosis will persist," said Dr. Steven Meyers, a professor of psychology at Roosevelt University and a Chicago-based clinical psychologist who was not associated with the research.

"Their findings suggest that health care providers should learn whether children on the spectrum also have a learning disability, a speech problem, or a hearing problem to help them judge whether symptoms of autism will improve as time progresses," he continued.

But the new study does not explain why certain coexisting conditions may be linked with changes in autism diagnoses. Diagnostic inaccuracies or shifts in diagnostic determination might be at play, as the symptoms of developmental and psychiatric conditions often overlap.

The authors explain that as children age, it may become clear to doctors that what they once thought was a speech or hearing problem may in fact be a symptom of autism; conversely, children diagnosed with an ASD in the past may simply have one of the common co-occurring conditions.

As researchers work to disentangle such issues from other possible underlying mechanisms, the study's authors say their research serves as a powerful reminder to parents that diagnosis can be tricky and that they should consider the possibility that children can have multiple conditions simultaneously in order to identify the best intervention as quickly as possible.

"It's important when parents go to talk to a clinician that they request a full evaluation on possible co-existing conditions, in addition to the core symptoms of autism," study co-author Li-Ching Lee, Ph.D., a research scientist with the Johns Hopkins Bloomberg School of Public Health said. "To avoid possible mis-diagnosis, you want to ask your doctor to go through and test for many things."

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Medical diagnoses are rarely clear-cut, and that may be particularly true among children with autism. A new study finds that children with autism spectrum disorders are more likely to also have ot...
Medical diagnoses are rarely clear-cut, and that may be particularly true among children with autism. A new study finds that children with autism spectrum disorders are more likely to also have ot...
 
 
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HUFFPOST SUPER USER
TheWM
aka The Wrong Monkey
05:13 PM on 05/19/2012
Some of my thoughts on self-stimming vs "acting normal." http://thewrongmonkey.blogspot.com/2012/05/self-stimming-vs-acting-normal.html
09:44 PM on 05/05/2012
Autism, like allergies, has to be dx using symptoms. All sneezing isn't allergies. All speech delays aren't Autism Spectrum Disorder.(both of my kids, for the record, were dx before any vaccinations happened. noteworthy: the younger of my kids displayed symptoms immediately after having chicken pox. {maybe it is the stress on the immune system})

I think Autism DX and treatment are still in the early stages. We all know people who were 'autism-like' from our school days. Functional autism and Asperger's syndrome have always been there. They were there before the names were making headlines.

I have 2 children on the spectrum. One wasn't using any conversational speech at 3, she only displayed echoholia, the other had 2 words at 2.5. The older, now 15 still has a bit of a speech issue, sort of pendantic, but occasionally fluid. The younger has minimal speech issues, at 6. The difference was speech therapy. I love speech therapists, and occupational therapist, and physical therapists... which is good, because I've spent so much time with them.
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Shirley Fisk
Homeless Old Crank
04:29 PM on 01/24/2012
1/24/12
4:30pm
NYC

This subject is too complicated to discuss in a few paragraphs.
01:52 PM on 01/24/2012
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Health-related things to consider

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04:09 PM on 01/29/2012
Whoops! While I am glad to see that you are one of the newest member of the "tribe", I think you made a mistake. This is an article on AUTISM. I guess, when you were looking up, in your medical book, for the diagnosis, the pages for A--F were stuck together. GALL BLADDER starts with G.
EvolveorPerish
R E anna what have you done?
03:04 AM on 01/24/2012
Something to consider-
If the diagnosis or symptoms change over time, it may not be misdiagnosis but rather that the child has had biological changes (for better or worse), therapy, or traumatic experiences (such as bullying in the school system or difficulty adjusting to our factory schools)- just a thought
HUFFPOST SUPER USER
ddanimal
02:03 AM on 01/24/2012
Not surprising.

Vaccines and brain inflammation causes many different types of brain damage.
12:43 PM on 01/24/2012
Not surprising that you would say something about vaccines.

Why do you cling to an unsupportable hypothesis, when scientists and doctors are actually trying to understand autism? Blaming vaccines in no way benefits our understanding of autism or how to treat it, and blaming vaccines has been repeatedly show to be a red herring.

Why not move on to something more productive?
03:17 PM on 01/23/2012
I'm guessing that autism- like many other diseases, will eventually be found to be a mix of environmental and genetic causes. I highly doubt that parenting culture or values (as KarasudaJay suggested in a comment) would have any determination as to cause. Autism has most likely been around for hundreds of years but went undiagnosed or misdiagnosed do to ignorance. While cases of autism are on the rise so is awareness about the spectrum of disorders that fall under the umbrella term. I'd be curious to see studies of isolated populations (such as those in papua new guinea) and their rates and then how cultures who have high regulations around chemical use generally rate. As a culture Americans have been exposing ourselves to chemicals without good knowledge of the side effects since the start of the industrial revolution- it wouldn't be a huge shock to find out that eventually enough exposure ends up affecting growth and development of children.
HUFFPOST SUPER USER
ddanimal
02:04 AM on 01/24/2012
Autism rates are higher in communities with mercury pollution.
HUFFPOST SUPER USER
SithRose
Mommy, I need Cthulhu. He keeps bad dreams away.
11:27 AM on 01/24/2012
It's a fairly well demonstrated fact that a number of important historical figures had traits resembling autism. Of course, at this date the waters are muddied enough to make it difficult to absolutely prove it, but Einstein, Tesla, DaVinci...to name just a few...all displayed traits consistent with ASD.

Look at the amount of stimuli our brains are bombarded with daily. Walk into a grocery store and look at the bright lights, loud sounds, echoes of crowds, and hundreds of colors and words plastered everywhere. Someone with autism may well find that painful and be unable to cope with it. Heck, *I* hate walking into Walmart because it's designed to throw as much stimulus as possible at you in as little space as possible, and I'm (probably) not autistic! Is it any wonder that children who, 50 years ago, would have been dismissed as a little odd are now being diagnosed as autistic? You can't escape the over-bombardment of stimuli even in school.

Increased awareness will fuel increased diagnoses because more parents will see that their children are displaying symptoms of something they've heard about, and will ask their doctors about it. Increased focus on the sit-still-test-listen-test model in schools will fuel increased diagnoses, as teachers report that children simply can't manage to behave "appropriately" in a school setting that they don't understand and don't care TO understand at their age.
02:44 PM on 01/23/2012
It seems reasonable to assume that the same environmental toxins triggering autism could also be triggering the learning disabilities and anxiety disorders as well. This article reviews suspected environmental triggers in the autism epidemic: www.asdresearchonline.com
HUFFPOST SUPER USER
SithRose
Mommy, I need Cthulhu. He keeps bad dreams away.
11:31 AM on 01/24/2012
Someone who does not understand how the modern world functions, and feels assaulted by the stimuli that are omnipresent in modern society, IS going to be more anxious about interactions than someone who can handle those stimuli easily. That really seems to be a matter of common sense. When you don't understand the people around you, you get nervous. When you spend your entire life feeling like you're on the outside, with social cues being missed and peers ostracizing you, yes you are going to be more anxious. Common sense.

An experiment for you. Take a camera into your nearest Walmart. Record what you see and hear. Now play it back at 10X volume with enhanced color and clarified sound. You might get a SMALL idea of what an autistic child feels when they walk into that same Walmart.
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02:31 PM on 01/23/2012
But let us never examine environmental reasons becasue that may expose the crimes of our corporate masters after all people are willing to sacrifice the children to chase a dollar and worship the money cultists in power.
KarasudaJay
My micro-bio is empty.
02:44 PM on 01/23/2012
Parenting, culture, values, etc are off the table for finding causes of problems, because they all suggest somebody might be doing something wrong.
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02:48 PM on 01/23/2012
And thoise somebodies are always the corporate Oligargy
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HUFFPOST COMMUNITY MODERATOR
SirenForSanity
Hi De Hi Hi De Ho Times
02:51 PM on 01/23/2012
None of which cause autism except the culture of greed and de-regulation.
12:45 PM on 01/24/2012
"But let us never examine environmen­tal reasons..."

I don't know what world you live in, but environmental factors have been and are constantly being explored. Ignoring such research, in order to affirm your cynicism, is just ridiculous.
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02:14 PM on 01/24/2012
studies done by the corporates to further agendas these dasy are also called scieance....
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02:14 PM on 01/24/2012
alternative studies are attacked by the systems propagandists.....