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Ben Roseth, Minnesota 'Power Boy' Battling Rare Disease, Fights Illness With 'Superhero' Siblings

Posted: 05/ 1/2012 10:20 am Updated: 05/ 3/2012 12:03 pm

Power Boy

A rare, fatal disorder often zaps 8-year-old Ben Roseth’s strength, but it hasn’t taken away his power.

According to HLN, Ben suffers from Adrenoleukodystrophy (ALD), a condition that affects 1 in 20,000 people and has no cure. Though Ben often gets so tired that he can’t stand, he -– and his brave siblings –- won’t stop fighting the disease.

To help Ben muster the strength to stand up to ALD, his brother and two sisters gave him a superhero identity and named him Power Boy. Soon after, he stopped fearing his frequent hospital visits and tests, his mom wrote on his Facebook wall.

“Ben used to cry and scream and fight anytime we went near the local clinic. He would burst into tears at the smell of rubbing alcohol,” his mom wrote on his Facebook page. “Power Boy doesn't fear the tests much anymore.”

Power Boy’s three siblings each took on a superhero identity, eventually becoming the Fearsome Four. The crew is using its power of perseverance to empower Ben, raise awareness about his condition and help others in need.

The “Fearsome Four” have cleaned up neighbors’ yards and donated teddy bears to children in hospitals, HLN reports.

“He faces so many difficult things,” Ben's mother told HLN, “and they face them together.”

Click through the slideshow below to see even more inspiring photos of the Fearsome Four.

SLIDESHOW:

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  • Siblings Form Superhero Group To Help Brother Fight Disease

    At 18 months, Ben Roseth was diagnosed with Adrenoleukodystrophy, a rare, fatal condition that has no cure, according to his <a href="http://www.facebook.com/pages/Power-Boy-ALD-Awareness/250983988272890?sk=info" target="_hplink">Facebook page</a>. The 8-year-old would often cry at the mere scent of rubbing alcohol, fearing the tests and the treatment he would have to endure at the hospital.

  • Siblings Form Superhero Group To Help Brother Fight Disease

    To inspire their brother to keep fighting, Ben's siblings gave him the superhero identity of Power Boy, <a href="http://www.hlntv.com/article/2012/04/27/power-boy-super-siblings-battle-autism-ald-adrenoleukodystrophy" target="_hplink">HLN reports</a>. Together, Ben and his brother and two sisters became the "Fearsome Four."

  • Siblings Form Superhero Group To Help Brother Fight Disease

    "Ben used to cry and scream and fight anytime we went near the local clinic. He would burst into tears at the smell of rubbing alcohol," <a href="http://www.facebook.com/pages/Power-Boy-ALD-Awareness/250983988272890?sk=info" target="_hplink">his mom wrote on his Facebook page.</a> "Power Boy doesn't fear the tests much anymore."

  • Siblings Form Superhero Group To Help Sibling Fight Disease

    The Fearsome Four are using their "power" to inspire Ben, raise awareness for his disease and also help others in need. The kids have cleaned up neighbors' yards and delivered bears to children in hospitals, <a href="http://www.hlntv.com/article/2012/04/27/power-boy-super-siblings-battle-autism-ald-adrenoleukodystrophy" target="_hplink">according to HLN.</a>

  • Siblings Form Superhero Group To Help Brother Fight Disease

    "He faces so many difficult things," Ben's mother told HLN, "and they face them together."

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Filed by Eleanor Goldberg  |