Alice Crisci

Alice Crisci

Posted January 7, 2009 | 11:49 AM (EST)

Too Young for This: Menopause at 32

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I moved to California when I was just 23 years old. I thought I was an adult then; how ironic that since having breast cancer I feel more like a child now than a grown-up. Sometimes, I even hear my voice sounding light and whimsical, much like a young girl untainted by broken hearts and life traumas.

I had all kinds of "grown-up" problems last year. My health crisis led to a financial crisis that settled ever so nicely into an identity crisis. When I summarize last year so succinctly, it seems to couch the intensity and enormity of each turbulent phase. If it hadn't been ME living through 2008, I wouldn't have believed that each crisis occurred in only a nine-month span.

Nine months.

That's all a woman needs to have a child. My nine months from last year certainly birthed a new life, just not the life I was picturing. I live with uncertainty about whether I'll be physically able to actualize the vision I have of myself as a pregnant woman.

You see chemo damages ovarian DNA, throwing 50% of all women of reproductive age into premature menopause. A woman in early twenties who is treated with aggressive chemo can age her ovaries by 20 years or destroy some of her egg supply, a supply we are born with that ages as we age. Those that find themselves pregnant naturally can and do endure multiple miscarriages. Still others have no fertility problems whatsoever. Chemo, and its effects on a woman's reproductive health, is almost as unpredictable as who cancer chooses to afflict.

My oncologist and fertility specialist recommended an experimental technique called Ovarian Suppression to hopefully preserve my fertility. Essentially we have turned off my ovaries with a monthly injection of a drug called Lupron. This injection prevents my ovaries from producing estrogen, the food my cancer loved most.

I've been receiving the injections since before chemo, throwing my body into "mimicked menopause" as opposed to real menopause. Sure, I have the same symptoms as a menopausal woman in her 50's; in some cases I have stronger side effects since the "change" was so drastic and unexpected. I have mood swings (well more mood swings than before), lowered libido (guess that's ok until I get reconstructed nipples), hair in unwanted places (such a drag) and a few other unpleasantries "down there" (but that's probably too much information for you).

No more periods. No more PMS. No more cancer. Maybe, no more eggs.

I will be 37 years old when I am done with treatment and could attempt to get pregnant. In addition to Lupron, I take a daily pill called tamoxifen that is 100% harmful to a fetus. It will be years before I know if my body will be fertile again.
As bad and scary as that sounds, menopause at 32 years old isn't worse than chemo.

Sure, I've interrupted meetings, dates and even meditation class by taking off layers of clothes and fanning myself wildly as I tried to get my face to stop burning, the sweat pulling around my forehead, upper lip and the back of my neck from hot flashes. But, at least I don't have to buy tampons for a while. Coupled with lower gas prices, I may be able to afford haircuts, now that I need them.

My nine months went by in a flash, like a movie on super fast forward, where pictures are hazy and dialogue choppy. I know it all happened: the pain from surgery, the swollen, bruised, aching mounds they were calling breasts, the chemo hell that pained me worse than every injury I've ever had combined, the meltdowns that, like a tsunami, knocked me on my ass until I couldn't breathe, rocking myself into melodic sobs, feeling, thinking, wanting my world to end.

My cells remember it. My heart remembers it. My mind wants to forget it. I moved away from the healing house in Redondo Beach that turned from a refuge into a toxic holding cell as every corner bore a cancer experience or a Doug experience, my ex-boyfriend that was always more friend than boy.

And I wanted to move on. I wanted to let go. I had to. My life depended on it.

I moved to Malibu, 40 miles away from where cancer and Doug happened. Where I both hurt and healed. Where I laughed and cried. Where I succeeded and failed. Everyone kept saying "Now you can get on with your life" and "You get to reinvent yourself, how exciting!" Obviously, none of these people had a medical, financial and identity crisis in one year. What life was I to get on with? I just lost my boobs, my hair, my boyfriend, my money and my company. Why did I need to reinvent myself?

Because I didn't know how good life could be. And because I didn't know I deserved to be happy. And I didn't know who I was without cancer.

Nine months ago, I was debuting My Vision and preparing for a bilateral mastectomy. Nine months from now, Christina Applegate, The Entertainment Industry Foundation and My Vision will hold the first major fundraising event for Right Action for Women, Christina's foundation that is addressing the breast cancer continuum for women of reproductive age.

In some ways, I am very much still a child. But, I am also already a mother, one who incubates life every day.

 
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Wow, Alice... What a moving, brilliant article. I applaud your bravery and thank you for bringing this important issue to the foreground. As a mother and grandmother, I know the ongoing joy of children in your life. Also, as a daughter of a breast cancer survivor, I know the heartache and tremendous challenges of the disease, so I am an admirer of your courage. Good luck with New Vision and continued good health. You are an inspiration.

    Favorite    Flag as abusive Posted 02:40 PM on 01/12/2009

Thank you. I find your words to be inspiring for those of us who find ourselves with our backs up against the wall. I love your humor, your honesty and your hope. Your voice, as well as your vision, is very much appreciated!

    Favorite    Flag as abusive Posted 12:02 PM on 01/08/2009

Thank you Alaporta for such kind, encouraging words. The facts of the circumstances do not matter. We all have our backs up against the wall in some way, shape or form, do we not? Our vision + action will equal victory. xoxox

    Favorite    Flag as abusive Posted 04:00 PM on 01/08/2009

Hi Alice. I too am a recent breast cancer survior. I read your article and saw so much of me in it, I was relieved to hear that I wasn't the only one who went through those horrible things. I'm 46 now and cancer free but in December 2006 is when my life changed. I too had a mastecomy, chemo and all the bad things that happen with that process. I also had to have a complete hysterectomy which threw me in total menopause. The sweats and mood swings are terrible. It took all of 2008 to get my "old self" back with energy and a new outlook on life. I am doing things that I never considered before like gardening, landscaping, re-decorating my house and I got married! I wanted to share with you and anyone else that taking Wild Yam root, GABA 750, Vitamin E, Soy Flavonoid supplement in addition to regular vitamins has really, really helped the hot flashes and moodiness. I was having them every 1/2 hour and now I may have 1 a day. Try it. Good health and happiness to you!

    Favorite    Flag as abusive Posted 12:43 PM on 01/07/2009

Oh wow - thank you for posting a comment. It pains me to hear of others' trials like mine, but I do know we are bonded forever by this disease. I will take your suggestions and post them on our new website launching soon: www.myvisionfoundation.org

I too have been experiencing so many new things! May life be an exciting adventure for you free of cancer forever. xo Alice

    Favorite    Flag as abusive Posted 02:05 PM on 01/07/2009
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