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Amitai Etzioni

Amitai Etzioni

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The Limits of Autonomy: Should the Mentally Ill Be Forced into Treatment?

Posted: 05/31/11 03:25 PM ET

The best advice I ever received from a psychoanalyst concerned the son of a friend of mine (let's call him Joe). Joe kind of adopted me, and often came over seeking advice. The young man was unrealistically optimistic. If his boss complimented him on some job he carried out, Joe was sure he soon would receive a promotion. When none of this was forthcoming, far from being crushed, Joe would spin a new tale: he expected to be soon moved to a choice location. And when this move did not materialize, Joe assumed it was just being delayed.

The same with dating: a smile was interpreted as a sure sign of deep interest, and a long deep look meant a potential keeper. And there always was another tomorrow. Joe was never down -- except when I tried to call his attention to his poor reality testing. The therapist warned me not to take away Joe's defenses -- before I provided him with some other foundations on which to base his self-esteem. Sadly, I never found a way to help him find more realistic sources of contentment. Accordingly, I just listened sympathetically but tried not to reinforce his illusions.

I was reminded of this episode when I read in The New Yorker about a delusional woman named Linda, who believed that she was fighting off government spies and that God would provide whatever she needed. When she was hospitalized, she refused to accept that she was mentally ill. Therapists, The New Yorker reports, tend to see in such refusals -- exhibited by about half of mentally ill patients -- a sign of illness and insist that patients accept their conditions as a first step toward a cure. Such acceptance is also needed to encourage the patients to take their medication. However, for Linda -- and many others, it seems -- this meant great humiliation. In her case, she would have to give up on the heroic role she had spun for herself and accept that she was, in her words, "crazy" -- that is, give up on the narrative that kept her going before any new ones were formed. She left the hospital, moved into an abandoned house, lived on apples she collected at night, and eventually died from malnutrition.

The New Yorker -- writing about her and many other such patients -- implies that this is the life she wanted. It was her choice; to keep her hospitalized against her will, and make her recognize her illness, would have violated her autonomy. Many other physicians and therapists and even medical ethicists would agree. They tend to see the will of the patient as free will, which should take precedent over all other considerations unless the person poses even merely potential albeit plausible threats to others or to herself. (The fact that Linda might harm herself was not clearly evident when she was released.) Thus, it seems that a considerable number of therapists hold that one should not make or even unduly pressure mentally ill patients who refuse to take their medication, even if once they are on the meds they realize their benefits. The medical community wonders which is their "true" self -- the medicated or the un-medicated one? -- and whose preferences to follow.

As I see it, mental patients are like children who are not fully competent to make decisions. Adults, who are charged with their care, owe it to the community -- and above all to the children -- to second-guess and amend their decisions, if need be by use of force. As a parent I did not let my 2-year-old run into the street out of respect for his free will, nor drive when he was 16 and high -- even when I had to wrestle away the car keys. True, as children grow older, the range of decisions they can make on their own ought to be increased -- as and if their capacity grows. But even for, say, a 17-year-old, I would veto his decision to invest his savings, say, in a hedge fund, not to mention pork bellies.

The same goes for mental patients. True, they vary in their capacities, which hopefully can be made to grow, which in turn will require allowing them to make more decisions on their own and learn from their failures. However, at the end of the day, they should be medicated and, if need be, held if there are reasons to believe that may harm themselves or others. Protecting life takes precedent over respecting a will that is not free but distorted by mental and often genetic, chemical or other malfunctions.

Amitai Etizoni is a University Professor at The George Washington University and the author of New Common Ground (Potomac Books, 2009).

 
 
 
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HUFFPOST SUPER USER
18
11:07 AM on 06/06/2011
The federal law called the Medicaid Institutes for Mental Diseases (IMD) Exclusion is the cause for a lot of what we see today (hundreds of thousands of people with severe mental illness either homeless, in prison, or dead). It denies Medicaid coverage to people who otherwise qualify for Medicaid, but need long term care in a psychiatric facility (Institute for Mental Disease or IMD). The states began pushing patients out the back door of state hospitals under the guise of "more humane treatment in the community" soon after the law was enacted in 1964.

The nursing home admitted Paul only because his lungs got so bad. Then, Medicaid would cover him and because he was admitted due to his lungs, not his schizophrenia, the nursing home would not have a fear that they would be labeled an "Institute for Mental Disease", which would cause them to lose Medicaid coverage for all of their patients, whether they were mentally ill or not.

Because the feds won't help states pay for medically necessary long term care in a psychiatric facility, the states have balanced their budgets on the backs of the mentally ill, their families, and the communities into which they were released.

It is a national disgrace that our country has swung back to the 1800's and now our prisons again serve as our state hospitals. We have criminalized mental illness.

Please contact your members of Congress. Urge them to repeal the discriminatory Medicaid IMD Exclusion.
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HUFFPOST SUPER USER
18
10:38 AM on 06/06/2011
I completely agree with this position. There needs to be shown an obvious lack of the capacity to take care of ones self, as was evident from the woman who died of malnutrition. My brother Paul was in that category, and yet the state of NY released him after over 20 continuous years of in-patient treatment.

The tens years that followed Paul's release was a nightmare roller coaster ride with stops to local hospital emergency rooms and psych wards, and even back to the state hospital, only to be released again and again for the ride to start again and again. He went without for food for almost a month once when his food stamps card "didn't work". Paul's caseworker told us "well, we gave him the forms..." His need to renew his food stamps card wasn't on the caseworker's radar either since he was an "emancipated adult". Yeah, and everyone knew Paul thought he was James Bond...

Just as I was looking into getting guardianship of Paul to get him placed in a more secure facility, he was admitted to a nursing home due to his failing lungs. He was shortly diagnosed with cancer and died nine months later.

When 50% of all people with schizophrenia also lack insight into their own illness this means that probably only 50% of the millions of people with schizophrenia are getting the help they need, unless someone else steps in. I wish I had started the process sooner.
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HUFFPOST BLOGGER
DJ Jaffe
Founder, Mental Illness Policy Org.
04:30 PM on 06/02/2011
Even John Stuart Mills in his essays "On Freedom", wrote that he was not talking about people "lacking the maturity of their faculties" (ie mentally ill). The single best piece ever written about this issue was by Herschel Hardin a board member of the Civil Liberties Union who also had a mentally ill son. He was able to see both sides and wrote impediments to civil commitment lock people in the Bastille of their psychosis so they are unable to engage in a meaningful exercise of civil liberties. See it here http://www.northshoreschizophrenia.org/Uncivil_Liberties.htm
DJ Jaffe
http://mentalillnesspolicy.org
02:59 PM on 06/01/2011
It sounds like the pot calling the kettle black! You would be surprised to know what you think isn't real, absolutely insane and you are not only a danger to your self but to anyone else.

The society detrimentally subverts the human instinct at birth. Your living in a world of thought continually provided to you through a controlled mass media. Only a very small percentage of your brain do you even know how to use.

Those people on the streets are being used and you are told to deny that the government would put communication systems in human beings. Your supporting a government who purposely modify their population by genocidal methods and exist from the power to deprive the people of their needs.

Politics is a pure ruse, it only exist to instill the human id with thoughts that the government is the peoples choice and for the welfare of the people, where the people are cultivated for the use of governments.

Gods and science are used to create idols to deposit yourself worth, never to use ever. A delusion of constant absurdities are given you to never question and pursue fulfillment.

All types of subliminal persuasion exist. The magic bullets to take your free will and choice from you exist. Mind control is a exact science and that knowledge came from the destruction of a human mind.
Linda from Deerfield
Paying attention
10:11 AM on 06/01/2011
Through two younger relatives (sisters) who each developed mental illness, the family learned a few things.

I learned that mental illness is not a matter of degree, nor defined by who gets caught or doesn't. It is very real, and a professional who has seen a parade of such troubles is (hopefully) able to recognize what the rest of us struggle to understand.

We learned that the bumbling of the medical establishment and insurers, and the slightest yielding to notions of free will can steal away forever a sweet, promising life -- her loss still fills my eyes with tears, though it was many years ago.

Upon the surprisingly late arrival (30-something) of diagnosis #2, the young woman's mother took over with fierce determination. She quit her job, enlisted the husband, and created a veritable boot camp. She interviewed doctors and demanded thorough explanations and plans and milestones, holding them relentlessly to their word and firing any who faltered. Would that we each could have such an advocate. In the thick of it, the daughter was pleading with us midst hallucinations to aid her escape. She slowly shifted from resistance to advocating for herself in demanding the medication that finally returned her to us. The price is normally outside her reach, but she is persistent and finds those quiet sources that will help. It is a good story, nothing to do with child or adult. That's how I see it from my perspective.
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HUFFPOST SUPER USER
gavrielle
Empty... Empty... Empty...
08:06 AM on 06/01/2011
Like Linda, my aunt also developed a religious mania and spent her days plotting to sue those she thought were tormenting her. In the 1950s and 60s, she was in and out of mental hospitals and given drugs until she refused them.

Sometime in 1995, my other aunt revealed that her sister was thought to be illegitimate. Apparently, in the 1930s and 40s, this open secret in the family allowed her brothers to get away with physically and mentally abusing her as a child. Then I found out that in the 1950s my "crazy" aunt had been sexually assaulted by a man of another religion, who verbally abused her using religion as both a weapon and the reason for the assault. As I understand it, until that time she'd been "normal", but after the assault (given her unconventional birth and the attitude of those around her that she somehow deserved it) she became more and more paranoid and her refusal to be hospitalized came because she was assaulted - again - by another patient, and the staff did nothing.

Of course, no one ever spoke about the abuse or the assaults, nor would my aunt have done so in those days. So maybe there was a reason for Linda's behavior and forcibly holding her then shoving medication down her throat wasn't the answer. Maybe a little psychoanalysis and talk therapy that went beyond assuming she had no reason to feel paranoid might have helped.
Linda from Deerfield
Paying attention
10:23 AM on 06/01/2011
Riveting and tragic. You could write a book.
10:44 AM on 06/01/2011
There is no such thing as "a little psychoanalysis." Your aunt may have benefited from talk therapy but it is not certain. Lots of people need meds.
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HUFFPOST SUPER USER
frank day
Republican = FAIL
08:03 AM on 06/01/2011
I wish I suffered from being hopelessly optimistic.

What's so great about reality?
07:24 AM on 06/01/2011
And what happens to the non-violent person, who is only a danger to himself, when he's in a hospital w/dozens of others who will do him harm?
10:50 AM on 06/01/2011
The goal is to keep people out of the hospital in the first place. Sometimes medications are required for that to happen. Would your opinion be different if a person had a brain infection that caused delusions and thoughts of suicide? Should that person be allowed to refuse antibiotics that he would want if he were not delusional.
11:38 AM on 06/03/2011
I agree that SOMETIMES medications are needed...but you can't compare antibiotics to psychotropic drugs. No one has killed themselves, or someone else, b/c of antibiotics. So, yes, my opinion would be different, as it is a completely different situation.
07:07 AM on 06/01/2011
1. This man only talks about medication, medication, medication. Almost nothing about treatment and counseling.
2. What constitutes being dangerous enough to have the State force you into a mental hospital?
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naschkatze
A free man creates himself.
10:47 AM on 06/01/2011
History has shown that the treatment of the mentally ill and the mentally deficient is a first indicator of the loss of civil liberties for the public at large.
10:52 AM on 06/01/2011
Maybe he talks about meds because for certain illnesses there is no better treatment. Maybe sometimes meds are needed before a person can benefit from other therapies.
07:03 AM on 06/01/2011
He tells about a woman who didn't take medication, and died from malnutrition...What about the thousands who are pushed over the deep end due to the medication? Kind of a double edged sword, I guess.
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HUFFPOST SUPER USER
pennywhite
10:38 AM on 06/01/2011
I completely agree. Psychiatric medication is often toxic and debilitating: a form of chemical strait-jacketing. If psychiatry were a real science, and had actual cures and safe effective medications/treatments for mentally ill people, I might agree with the writer of this article. But psychiatry is still in the dark ages, and as long as that's true, its power over vulnerable human beings needs to be constrained.
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naschkatze
A free man creates himself.
10:49 AM on 06/01/2011
Excellent comment. Real and humane treatment has gone out the window in favor of artificial and cold-blooded control.
10:55 AM on 06/01/2011
How many thousands are you talking about? How many of those would have gone "over the deep end" anyway.
11:43 AM on 06/03/2011
and how many ppl would be misidentified as criminally insane, and institutionalized if the Dr. got his way?
HUFFPOST SUPER USER
Arion
06:51 AM on 06/01/2011
The high water period in psychiatric treatment was the early and mid 19 century. The great innovators, like Pinel in Paris and the wonderful Quaker movement here and in England never defined the treatment goal as overcoming delusions and hallucinations. It was rather a case of finding ways of fitting the psychosis into a safer framework. One of may patients, for example channeled his fear of FBI surveillance into a real estate business which allowed him to acquire a larger tract of land where he felt safe.
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HUFFPOST SUPER USER
pennywhite
10:39 AM on 06/01/2011
Brilliant! Your patient was blessed to be treated with such respect and support.
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naschkatze
A free man creates himself.
10:53 AM on 06/01/2011
It's unfortunate that treatment of the mentally ill fell into the hands of physicians who tend to rely totally on chemical means of control. Although Freud was a physician himself, he wisely did not believe that analysis was the domain of medical doctors exclusively.
11:56 AM on 06/01/2011
For many years Freud prescribed cocaine.
05:19 AM on 06/01/2011
I have a mental illness, schizophrenia. Perhaps the severity of my illness in not as bad as in others. I'm doing fine without medication. My former psychiatrist urged me to take the medication as a preventative measure. I have taken anti-psychotic medications in the past for this reason. The side effects are unbearable. There is a side effect of anti-psychotic drugs knows as akathisia. It's hard to describe akathisia. Akathisia is one of the symptoms experienced during withdrawal from heroin addiction. Akathisia drives some people to commit suicide and I'm not surprised. (do a Google search for "suicide akathisia") I felt suicidal while I was taking anti-psychotic meds. If I had to choose between taking anti-psychotic medications for the rest of my life and death I would choose death.
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naschkatze
A free man creates himself.
10:54 AM on 06/01/2011
What a moving witness. Best wishes, Jim.
10:57 AM on 06/01/2011
You appear to have made your decision with full awareness. And you are right that the side effects can be harmful, not just uncomfortable. And sometimes the side effects can be permanent. As in all things, you have to weigh the risks against the benefits. I hope you continue to do well.
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GoldStarMom
Reading is Fundamentalism ... in Texas.
05:01 AM on 06/01/2011
There are several reason's I can't agree with the views put forth in this article. First and foremost is the question of who among us is mentally healthy enough to determine which individuals require enforced treatment and under what circumstances would this be applied?

Secondly, we have -- since around 1950 -- stopped making medications to cure illnesses. It's cheaper and more profitable to make medicines that merely treat the symptoms of a disease. Many of those medications have "side effects" that are far more harmful, if not outright deadly, than the disease being treated is to the human body.

Thirdly, the corporate administered "health care" we now receive has greaatly reduced the quality of the previously existing relationship between Physician and patient. Previously, the "family Doctor" actually CARED about the health and progress of the people who made up his/her practice. It has been transmuted into a "take a number and wait your turn for service" environment wherein the ones providing medical care are now more motivated by how many people they can push through their office on a given day. This type of "health care" is NOT sufficient to accurately determine the needs of anyones mental health care.

There are other points that I could make, but it's late and I'm off to bed, so these will have to be enough to explain my position.
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naschkatze
A free man creates himself.
10:56 AM on 06/01/2011
There are so many excellent comments on this post, and yours is one of them. The author of this post is receiving a well-deserved rebuttal from many here, and I hope he takes it to heart.
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HUFFPOST SUPER USER
TheBurdicks
Whatever happened to my yellow bus?
03:36 AM on 06/01/2011
Far more dangerous than simply offensive that Amatai Etzioni would set himself out as the adult, while relegating those among us whose behavior might deviate from community norms to the status of children.
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naschkatze
A free man creates himself.
10:57 AM on 06/01/2011
Fanned and faved.
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TheBurdicks
Whatever happened to my yellow bus?
03:32 AM on 06/01/2011
More from Amitai Etzioni, who would allow the needs of the community to supersede the rights of the individual. I for one want no part of Amatai Etzioni's community, especially one which would impose community assessments of mental illness and community dictates of psychiatric therapy on behavioral outliers. There cannot be any place for community laymen, even an authority in sociology like Dr. Etzioni, to impose their standards of behavior on community individuals. Even mental health practitioners, psychiatrists, psychologists, and counselors, must be held to a standard which gives primacy to the protection of the rights of the individual, albeit with due consideration for an assessment of risk of harm to self or to others. Decisions based in this consideration must be fully subject to judicial review.
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naschkatze
A free man creates himself.
10:59 AM on 06/01/2011
We all know from the examples of Hitler's Germany and Soviet Russia how assailing the rights of the mentally ill or mentally deficient can be used for political purposes. Do not go there, Dr. Etzioni.