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ARVD/C Youth Society
The mission of this blog is to help others. We want to create and share our individual experiences to not only raise awareness for Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy, but also create a place for our friends, family, and others affected by ARVD/C to connect and learn. We write to share our struggles and victories, to inspire, educate, and advance treatment/prevention. ARVD/C is a leading cause of sudden death among young athletes, although the condition can affect people of all ages and activity levels. Approximately one out of every 5,000 individuals is diagnosed with ARVD/C.

Entries by ARVD/C Youth Society

You Can No Longer Run

(2) Comments | Posted December 30, 2014 | 12:23 PM

You can no longer run. Those were the only words I heard. It was June 2013 and I left the cardiologist office with those words ringing in my ears. I ended up there after an EKG showed irregularities and after months of diagnostic tests he told me that I had...

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ARVD: My Gift

(0) Comments | Posted March 14, 2014 | 9:08 PM

ARVD for me has been a huge jigsaw puzzle that is like trying to fit together so many pieces but having no idea where or how they fit together until now.

Life with ARVD has been a nonstop roller coaster with a lot less ups compared to the downs,...

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Like Watching Birds Fly: A Runner's Journey With ARVD/C

(0) Comments | Posted February 13, 2014 | 4:23 PM

When I see people running outside, it's kind of like watching birds fly. Yet, only a year ago, I had run my sixth, and what will likely be my last, marathon. I had been running competitively for 10 years, having garnered medals and trophies that my mom still holds onto,...

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Tales From a Dysfunctional Heart

(1) Comments | Posted January 27, 2014 | 2:28 PM

The night I almost died I did not see a passageway or a ray of light with my deceased loved ones waving at me to join them. I did not levitate and watch from above as the nurse cut through my sports bra, exposing my chest so the doctor could...

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A Different Drummer: Ode to the ICD

(0) Comments | Posted January 27, 2014 | 8:35 AM

This poem was submitted anonymously and is an adaption of "A Different Drummer" by Henry David Thoreau. Readers, please feel free to fill in the comments section with your thoughts and reach out to me if you would like to share in this forum.

A Different Drummer

If a...

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I Was 17: An Athlete's Story of Being Diagnosed With Heart Disease

(0) Comments | Posted December 12, 2013 | 2:12 PM

I was 17. It was the summer of 1999, before my senior year in high school, and life was good. My friends and I were about to be kings of the school, in our heads of course, and nothing would stop this summer from being the best ever. Dave Matthews...

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