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What Scoliosis Taught Me About Body Image

Posted: 04/ 4/2012 10:51 am

I was recently diagnosed with a medical condition. I've got a mild case of it, but it brings a few troublesome complications regardless, nothing serious. And as one might well do, the first thing I did when I got home upon receiving my diagnosis was Google it to learn more. The list of symptoms included what took me to treatment in the first place, a good number of troubles I don't have, and a surprising entry: poor body image. The diagnosis? Scoliosis.

Now, if I'm being officially diagnosed for the first time at age 35, obviously my scoliosis isn't terribly problematic. I was monitored for it as a child (do they still do those annual scoliois screenings at school? It somehow seems like a remnant of the '70s, like the Dorothy Hamill haircut) but it was so mild that it barely qualified as scoliosis, and it didn't warrant treatment -- certainly not intervention like surgery or a brace. Basically, my muscles compensate for my wonky spine, running me through varying degrees of pain; I treat it with exercise, occasional ibuprofen, massage, and masturbation. (Deenie in da house!) In other words, it's not a huge deal, and it's not something that weighs on my mind a lot.

But there it is, that symptom far down on the list -- below the physical pain, below the visual cues -- poor body image. There's a whole body of work devoted to studying the psychosocial effects of scoliosis, particularly in adolescents, but it boils down to this: Something about your body is "wrong," and chances are it's not something you ever thought was a problem, and you really can't do much of anything about it. Wearing a brace may or may not have an impact on patients' body image, but there's evidence supporting a correlation between scoliosis and body image, regardless of treatment.

Now, the people being studied aren't people like me: I'm an adult, for starters, and one with a very mild case of scoliosis. Though I've been told repeatedly by chiropractors, tailors, and osteopaths that there's something irregular about my form, nobody until recently has used the word scoliosis about my body since the sixth grade. Whatever body image problems I have come from the usual suspects -- perfectionism, media, growing up girl -- not my spinal curvature.

But it's not hard for me to see how my body image has shifted ever so slightly in the past few weeks. Part of it was the pain that drove me to seek treatment; it's difficult to feel like your body is something to be proud of when you're wincing whenever you take off your shirt. But more than that, I've learned that -- and this is an unkind term -- I'm misshapen. I found myself complaining of feeling "broken" and "twisted" -- words I've never used to describe myself. Whenever I've had a problem with my body, there's been a part of me that has known it's in my head, because the concerns I had were solely about about how I appeared. If I thought my thighs were unappealing, there was still a part of me that understood that "unappealing" was subject to interpretation. With a twisted spine that was causing me pain -- that wasn't in my head, that was in my bones.

But in a way, whatever feelings I had are beside the point here. My literal body image -- that is, the visual projection I have when thinking about my body -- had shifted as well. My new mental drawing of myself was small, dropped onto a large white canvas, drawn in a combination of pencil and ink, and, yes, crooked.

Most of the time when I refer to body image, I'm really referring to negative self-talk. The image part doesn't come up much, not for me; I'm pretty sure that my actual mental drawing of myself is reasonably spot-on. Even at my lowest, I don't actually envision myself with elephantine thighs or a ballooning waistline; it's more that I see roughly the same body in my mind that I saw the day before when everything was fine, but suddenly it's unacceptable for one reason or another. I can dissect that all I want, but what it comes down to is that the interpretation of the image is what's poor, not the body image itself.

But with the specific and decidedly dysmorphic shift in body image that accompanied my diagnosis, I've become aware that there is a body image living inside my head, one that's plastic and that can shift according to new information it receives. And I don't necessarily have any conclusions as to what this might mean, because in my case I don't think my mental projection is erroneous. (Yes, I recognize that that's sort of the point -- that the very idea of body image means that you don't think your mental projection of yourself is erroneous. I'll never know how close my mental image actually is to the real deal. At least not until brain scan image projection is a helluva lot more developed, and when that happens I am using all my brain scan image technology to be able to put my dreams on YouTube.) It was only when there was new information presented -- the information about myself as someone with a spinal curvature that causes me some troubles every so often -- that a disconnect appeared. (For the record, once I recognized what was going on I felt fine mentally, and physically it's really not a problem now that I've learned some corrective exercises.)

I guess what I'm wondering here is A) What the "image" part of "body image" means to you, and B) How your body image is affected by medical conditions that have nothing to do with weight or conventional attractiveness. (You could argue that severe scoliosis affects conventional attractiveness, I suppose -- but hell, Marilyn Monroe was rumored to shave half an inch off one high heel of each pair to lend a sway to her step, and I've got that naturally, so I'm at an advantage here, oui?) Do you have an actual visual image in your head of what your body looks like? Is it in a distinct medium -- like photography, drawing, animation, video -- or is it too indistinct to single that out? Does the image change? Do you think your body image matches up with what's really there, in a visual sense if not on the level of judgment/perception? Could you draw or otherwise externally project your body image? And have you ever found your body image being formed by things outside the normal trajectory of body talk?

This post originally appeared on The Beheld.

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garystartswithg
el sueno de la razon produce republicans
12:32 AM on 04/06/2012
I have scoliosis, and have learned to wear looser fitting clothes like button down shirts. Mix up your style a bit and invent a new swagger for the win. If a tailored jacket can make GW Bush look good can you imagine what it can do for you?
Never once had anyone complain about my scoliosis when i was nekid, which is when its obviously the most obvious. Don't overthink -- you can be your own worst enemy.
Don't make what anyone else thinks about you your business, provided you aren't an axe murderer or something.
09:25 AM on 04/05/2012
I have had severe scoliosis since my pre teen years. I realized something was wrong with my spine at eleven and managed to hide it for almost three years. When doctors finally got a look at my back my spine was curved like a perfect s shape. It was horrible, revolting even...and my already poor body image plummeted. Needless to say I had to have two major surgeries including metal rods up the length of my spine and the removal of a rib to correct. I was fifteen years old at the time and spent half a year away from school recouperating. It was a really tough time for me...and the pain was indescribable. Best way to expl
04:55 PM on 04/05/2012
I feel you. Same deal. Surgery at fifteen; the most painful experience I've ever gone through. I do think it's kind of laughable that some people like the author have a very mild case and talk about "pain." Try having two rods, sixteen-eighteen screws, and several hooks in one's back.
07:32 AM on 04/06/2012
Yea, I didn't want to take away from her experience...but seriously I wish all I had to deal with was a little chiropractic care once in a while. And just for a little icing on this freak show cake, I started having complications with the rods a couple of years ago and may have to have an additional surgery. Poor body image is really the least of my problems but to each his own.
06:16 AM on 04/05/2012
Darlin', you are living, breathing proof that beauty comes in many forms, not just the narrow range approved by advertisers and the entertainment business. You are perfect, WITH your scoliosis. If you lost it, you would be perfect in a different way. When you're old and all wrinkled up many years from now, you will be even more beautiful, for you will be the living book on and in which the story of your life is written.
06:11 PM on 04/04/2012
Thanks for the great article, good luck you. you're lovely.
BTW- i LOVED deenie when i was a kid, the deenie reference made me laugh.