I have never recommended a film on the end of life before. But people deserve to see Consider the Conversation because it deepens our passion for life and enriches our lives. Michael Bernhagen and Terry Kaldhusdal put their hearts into this film, and it shows. Michael came to the hospice movement after his mother's decline and death showed him how far from a healthy, authentic relationship with mortality the medical profession, and the nation, are. Terry's fifth documentary, this film includes interviews with his brother, Peter, who died of pancreatic cancer at age 53. Michael and Terry have given us a great gift.
The film opens with people stopped on the street in the midst of their daily routines and asked where they would like to die. They are surprised by the question, but they are uniform in their answers: at home. With family. In my lover's arms. Home with family. In a quiet, peaceful place.
Americans almost always say they hope to die in the cherished surroundings of home and love, but precious few realize that hope. Gently, yet powerfully and persuasively, Bernhagen and Kaldhusdal go on to illuminate why this is true. They explain why it's so hard to break away from the isolation and technology of hospitals, and invasive -- yet often futile -- medical therapies. Patients, family members, doctors, ethicists, ministers, public-health officials and others speak their truth to the camera's lens.
They bring a multitude of perspectives, yet a common wisdom. Dying is part of our humanity, and shutting it out of our lives shuts out the part of our humanity that makes life meaningful and full. Some speakers take doctors to task for sending a message there's "nothing to be done" when patients approach the end of life. Some describe conversations full of hope and purpose about how the medical team can help a person live well and make the most of precious remaining days.
Martin Walsh, a physician with advanced ALS (Lou Gehrig's Disease), delivers a profoundly beautiful explanation of the sacred task awaiting him -- that of weighing the burdens against the joys of his fading life. His description of "100 things" will live with me and inform my own life assessment if that time comes.
If you feel America's attitude toward the end of life is deeply flawed, but you can't put your finger on exactly why or how to make it better, you should see this film. If your own experience with a loved one, client or patient has left you wounded, you should see this film. If you want to talk about the inevitability of death with hope and joy and gratitude in your heart, you should see this film.
Find information about screenings of "Consider the Conversation" at www.ConsiderTheConversation.org. Or purchase it there for home viewing or educational purposes.
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We need to educate our healthcare providers to better recognize and acknowledge the onset of the dying process so we can prepare. We need to make the transition into palliative care from hospital-based treatments when these create more burdens than benefits for us. We need to accept hospice care early enough to have specialized support through the deeply intimate process of facing death.
Telling your loved ones to “Pull the plug!” is not an effective advance directive. It is imperative today that everyone over 18 voices his and her personal choices about artificial life support: tube feeding, ventilator breathing, dialysis and CPR. The people who love you should never have to make such a decision without your advance direction.
It is also wise to complete a written healthcare power of attorney and living will and update these periodically. But the conversation is the critical element.
See the film. Invite your family and friends to watch it with you. Have that conversation.
It can change your life—all the way through the end of it.
Loretta S. Downs
President
Chicago End-of-Life Care Coalition