iPhone app iPad app Android phone app Android tablet app More

Featuring fresh takes and real-time analysis from HuffPost's signature lineup of contributors
Carla Lohr

GET UPDATES FROM Carla Lohr
 

Why President Obama's Health Care Law Is a Big Win for the Disabled Community

Posted: 06/29/2012 10:42 am

The US Supreme Court has upheld President Barack Obama's health care law. While not everyone is happy with the ruling, it has ensured -- barring any future repeal -- that there is a potential for great change in the lives of millions of disabled Americans.

How? Ask an adult who is physically disabled and unemployed why they are not working and nine times out of ten you will get the same answer -- they are afraid of losing their state health insurance or of being removed from their parents' policy. For the majority of those who are able and willing to work, the one thing that has been stopping them is health insurance.

I have spina bifida and when my son was a toddler, I was a single mother. I quickly became fed up with not being able to provide for myself and my child out of the fear that I would not have health insurance. The 600-and-some-odd dollars we received from the government was not enough to live on, so I set out to find a job.

As many Americans know, not all jobs come with benefits, and such was the case with the one I acquired after much searching. Initially, I was making more money and was able to provide a better life for both of us than we had before, but I soon realized that if my health took a turn for the worse, I would be in a world of trouble.

Spina bifida, like all disabilities, comes with its own set of complications. For people living with my condition, kidney problems are par for the course. I have been on medication my entire life to prevent infections and kidney damage. When I began working, I lost my Medicaid and could not afford the medication I needed, so I went without. As a result, I had to make several trips to the emergency room for severe kidney infections. I would get so sick that my kidneys would bleed and they would put me on IV antibiotics. The doctors would tell me to take my medicine, but it was not that simple. Without insurance, the ER was the only way I could be seen by a medical professional.

I was caught in a catch-22. Yes, I was making more money working, but now I was without health insurance and was growing deeper in debt with each hospital visit.

The maddening cycle went on for a few more years and there were several more costly trips to the ER. But I was stuck. I couldn't quit my job and go back to the meager monthly government allotment my son and I had been receiving. I had too many responsibilities -- a car, mortgage, utility bills, etc.

I tried to get insurance on my own, but was also told that was an issue because of my "preexisting condition." The insurance was either unavailable or at a cost that was far more than my monthly income.

At this time, I was keenly aware that kidney failure is a major cause of death for people with spina bifida. There was no mistaking where I would be headed if things didn't change.

Thankfully, my circumstances did eventually change and I was able to find a job with good insurance benefits. While health care is not an issue for me now, I will always have a reminder of those times when it was. And, of course, I still suffer from damage I did to my kidneys because of my choice to work.

So before you judge the Patient Protection and Affordable Care Act (PPACA), informally referred to as Obamacare, know there are millions of other disabled Americans who want to join the work force, but are afraid to do so. Like I was, they are well aware that there is a very real possibility that their needs will not be taken care of. As a result, there is a very real possibility that they will die early, and what salary would be worth 20, or even 10 years off your life expectancy?

Obamacare may not be perfect. Nothing will be the 'be all and end all' for everyone, but for the disabled community, it finally puts us in a position where we have a fighting chance at a decent life -- one where we can find employment and say goodbye to government assistance.

We are now on an equal playing field and I look forward to seeing the lives of millions of disabled Americans improve.

I say thank you to President Obama. He has changed the lives of many Americans who felt their healthcare situation would always be hopeless.

 

Follow Carla Lohr on Twitter: www.twitter.com/carla1977

FOLLOW IMPACT
 
 
  • Comments
  • 9
  • Pending Comments
  • 0
  • View FAQ
Comments are closed for this entry
View All
Favorites
Recency  | 
Popularity
10:37 AM on 07/04/2012
It's not necessarily a win for all disabled people. What about those people on Medicaid who rely on it to provide their basic supplies and services? With all the recent budget cuts, they have slashed the programs these people depended on and there is no relief in sight.... only more cuts. :(
photo
HUFFPOST SUPER USER
Luis Angel Rosa
10:10 AM on 07/03/2012
Obama Care is the answer.
And with health care information and prevention are the solutions.
People need to be inform and be able to visit their doctors at least twice a year.
People that don't know or are against Health care need to know the facts.
Why would you be against something that helps you?
My younger Brother never had any kind of heath care,
He wasn't used to doctor visits.
He waited years living with pain in his neck.
Finding out when the pain became unbearable that it was a cancer and way too late.
The amount of money spent trying to save him?
Don't ask..
The USA spends most on heath care and ranks number 37 on the World Health Organization ranking of health systems list!
When your Doctor and you know what's wrong early you can make better treatment decisions
PEOPLE HAVE TO KNOW.
If you already have a health care from work, Great!.
If you medicate/medicare already, Good for you,
Keep it as it is, It wouldn't be taken away or changed!
People who don't and need healthcare will be able to buy it within their budget.
Stop and think,
The people that are against Health care are making all the money now and don't want it to change.
we need to get the real message and benefits of Obama Care out to the people.
Knowledge is power!
Stop the lies,
In the end we will be better off and save lot's of money.
photo
HUFFPOST SUPER USER
Kyrani99
that Eternal Flame is the source of my shrine
01:21 AM on 07/03/2012
Yes right at the end.. where you say "Nothing will be the 'be all and end all' for everyone" but what "nothing" is that? While everyone being able to afford medical care is important he only real solution is the conquest of disease. Sounds impossible but is possible. No amount of medical care is going to replace knowledge and freedom. See my blog here are my discoveries and I haven't seen a doctor for more than 20 years. http://kyrani99.wordpress.com/ or if you want to so to something more specific try this post http://kyrani99.wordpress.com/2012/06/18/why-the-body-reacts-to-form-cancer-part-2/
04:40 PM on 07/02/2012
I am a Canadian who is disabled with Muscular Dystrophy and working at a call centre. I do agree that it is hard to find companies that offer benefits because all the jobs now are contract positions and benefits may not cover certain medical expenses.
12:37 AM on 07/02/2012
I hope that is true and that her predictions bear fruit...but in Canada where this is not supposed to be an issue, there is severe unemployment among the disabled population. Universal healthcare has not remotely solved that issue, unfortunately. It's way, way more complicated than that.
HUFFPOST SUPER USER
homefair
07:17 AM on 06/30/2012
Well, ole Mitty & the Repugs are all set to snatch your healthcare away from you & every other disabled person next year. Not because it's a bad law but because Obama did it & they didn't. They don't really care if millions go without insurance as long as they have theirs.
photo
HUFFPOST SUPER USER
Marmann
I'm sorry.Your guidelines do not meet my micro bio
04:11 PM on 06/30/2012
You bet they are and for the EXACT reasons you outline. Post faved and fanned.
12:14 AM on 06/30/2012
Here's to hoping that employers will open their minds and hire us. This won't make a bit of difference, if that doesn't change. That leaves me skeptically optimistic. It is a step in the right direction, though.
photo
HUFFPOST SUPER USER
Dragontech
Looking for a good micro-brew
12:11 AM on 06/30/2012
Congratulations, Carla, on breaking the cycle of victimization that our system forces on people. I thank Obama for showing the wisdom to provide a means where people can have a chance. That is all we ask, a chance. Not a hand-out, not any freebies, just a chance, rather than having the deck stacked against us, as is the case in so many realms dealing with just earning a decent living, let alone becoming "comfortably well off".