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04:08 PM on 06/27/2013
I think Rachelle should write a book telling what every aspect of being paralyzed is, does, costs. The average person does even begin to understand the cost of a wheelchair, the special stockings to prevent blood clots, and as she put it the cost for her to go to the bathroom. Catheters, urine drainage bags, in-home nurses, depends. People do not realize that you have to pay extra for each thing on the wheelchair.
Rachelle, keep writing. I am a RN and can tell you like you said that people have no idea of what a paralyzing injury can cost just to basically survive.
To you and your husband I wish good health, wealth, and most of all happiness!!!
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slvrdrgnwngz
04:01 PM on 06/27/2013
People can be extremely ignorant regarding the disabled whether they can plainly see the disability or not. I am disabled and so are two of my friends. You can't look at us and see our disabilities. I had planned on working until I was 65, but life intervened. I had to apply for disability. People seem to think that applying for disability is easy and getting it is a given IT'S NOT! You can't work or collect unemployment while you're waiting for a decision, so basically you have no income. It took 2 years before I was approved, fortunately I had children who helped me. One of my friends had to apply to every agency who could provide her with short term assistance. It took her almost 2-1/2 years to be approved. How would you like to wait that long with no income not knowing if you're going to be approved, feeling like a beggar, not knowing how you're going to pay your bills or buy food from one month to the next? Not a good feeling at all. Once you're approved it's not like you get a windfall of money every month. You get enough money to live from one month to the next. You haven't hit the lottery but you can live from one month to the next. Get real, most people who get disability deserve it, it's harder to get than you think.
03:59 PM on 06/27/2013
My 34 year old son had a similar experience after being diagnosed with glioblastoma, a fatal brain cancer. He lived 15 months following the diagnosis and every month was a war with mismanaged governmental agencies. Bless you for putting your story "out there" to highlight just some of the abuses come from both sides of benefits desks and also from some astonishingly ignorant people. Walk (or ride) a mile in someone else's shoes (or chair) before you judge the merits of someone's request for assistance. What you "see" is not always a complete picture, but a mere 1000 words.
03:59 PM on 06/27/2013
Google diasablilty vs. jobs. More people went on SSD than jobs created. Mmmmm, seems like someone knows how to work the system. They must hand out a booklet at voting booths.
04:39 PM on 06/27/2013
You are a prime example of the type of person this article is calling out. How in the world can you call that working the system? It doesn't say anything about the people getting disability. Were they disabled because of their work? From accidents or injuries? I know, as the article states, that some people do work the system. There are criminals everywhere, that will cheat any way they can. Example: there are people that commit insurance fraud, but I doubt that everybody that files an insurance claim is committing fraud. It does, however, say something about the state of our job market. (Also, that information is a year old.)
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lakat
Haiti lives.
04:50 PM on 06/27/2013
republican. That's the new perjorative. We use it for heartless people with no capacity for compassion or empathy. Absolutely disgusting and un-American.
03:29 PM on 06/27/2013
It's amazing... you have no options but to pay into the SSI and SSDI systems while working, but if or when you need the benefits it is almost impossible to get them. This is probably a result of too much abuse of the system, but now it's almost impossible for a really sick person to get benefits. Once you are ill enough to qualify for the benefits, you are too sick to fight the SSI /SSDI system to get the benefits you deserve and have paid for while working. It's a sad commentary, that's for sure.
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04:15 PM on 06/27/2013
It is just the nature of insuring rackets. They collect the "premiums" and work very hard at avoiding paying out claims. As a matter of fact, most of their payroll is rows of claim deniers.
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lakat
Haiti lives.
04:53 PM on 06/27/2013
Which is why the healthcare system should NOT be for profit! No one should lose their home and/or livlihood because of a catastrophic illness or condition. And no one should get rich off of the suffering of others. We are a sick people who think we are the best in the world.
walk1111
Common sense isn't so common anymore
03:23 PM on 06/27/2013
Unfortunately there are many folk who are just lazy and want to work the system. It makes it tough for the ones really needing help.
I have relatives that have mooched off the system. I know. Makes me sick.
04:01 PM on 06/27/2013
I hear that! I have family members who brag on how they beat the system.
04:17 PM on 06/27/2013
Walk 1111 wrote, "Unfortunately there are many folk who are just lazy and want to work the system."

Statistics, please?
05:23 PM on 06/27/2013
Statistics aren't really necessary DEREKJUHI. We all know many people that abuse the system personally.
What world are you really living in?
walk1111
Common sense isn't so common anymore
01:18 PM on 06/28/2013
Two out of every three. What others statistics you you want?
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rarriagaz
College educated disabled Vet
03:04 PM on 06/27/2013
I am a disabled vet, and was told by the Republican Delegate from Cameron county Texas Craig James, that I was looking for a free ride by applying for a disability through the VA.
walk1111
Common sense isn't so common anymore
03:28 PM on 06/27/2013
It's a small world. I too am a disabled vet and was told the same thing by a Democrat.
03:53 PM on 06/27/2013
Is it true other vets are taking advantage of the system by claiming their diabetes was caused by agent orange and not the fact that they are old and fat? I am just asking, since I think it is a crime against those truly disabled.
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rarriagaz
College educated disabled Vet
07:15 PM on 06/27/2013
Buzzy while on your sanctimonious pedestal, did you ever consider that the diabetes is the reason these individuals are overweight? Or are you one of those that works for the VA instead of the Veterans. Or just do not appreciate that veterans gave you the right to spout your ignorance.
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rarriagaz
College educated disabled Vet
07:21 PM on 06/27/2013
No it is not true. It is an insult to insinuate that this is so.
03:03 PM on 06/27/2013
She still accomplished her fairytale wedding, just in a different way. Sad that some people are bullies.
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rarriagaz
College educated disabled Vet
03:01 PM on 06/27/2013
Oops, pardon the typo Rachelle.
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rarriagaz
College educated disabled Vet
03:00 PM on 06/27/2013
Racheele, you are correct, "people who lump everyone requiring government assistance into a group of entitled moochers are not only wrong but ignorant." I to pray that for their sake they won’t find out the hard way just how hard it can be.
02:58 PM on 06/27/2013
the system is such bulls**t if she was a foreigner she would be put on social security disability
03:59 PM on 06/27/2013
Or an illegal immigrant committing a Federal crime.
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lakat
Haiti lives.
04:56 PM on 06/27/2013
amazingly ignorant
02:56 PM on 06/27/2013
I'm a quaraplegic c4,c5 I'm aware of the hardship that this lady speaks of as she states no two ppls disabilities are the same even if the spinal cord is damaged in the same place but I know of the pain of waking up and the dread of sleeping knowing that when I wake I will wake too a world of agonising crippling pain also the financial hardship when it paying for disability aids put a disabled stamp on some thing and its cost sky rockets.
I'm just under 7 yrs after my injury and I'm still getting to grips with it and I'm still fighting too get the help I desperately need unless you're one of the "lucky" few who get a massive pay out for the injury caused there is no immediate help you have too wait in line like every one else no matter the disability there is a cue and you wait for your number too be called before you get an ounce of help then you join the other cue for help with some thing else.
Those ignorant blinkered ppl out there that say things like parasite and lazy seem to me too be the parasitic lazy ones parasitic as in leeching the life force that could have been used by another with more care for the world and lazy because they don't use their brains before they comment.

No one wishes too be disabled.
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Shari L Creech
literate liberal, hopeful human
03:57 PM on 06/27/2013
Csayce- What state are you from?
04:17 PM on 06/27/2013
Hello Shari, I'm from the UK.
02:35 PM on 06/27/2013
Fortunately for her, she has the hope of God's kingdom or heavenly government restoring her health back so she will be able to run through the fields again!! The miracles Jesus performed while on earth were a preview of what God's kingdom would accomplish for mankind on a worldwide basis, even resurrecting back to life on earth those we have lost to death. With all that is happening on earth now and God providing us with signs of what to expect when this would take place, hopefully, we will not have to wait much longer to see it come true.
02:33 PM on 06/27/2013
Rachelle is a beautiful woman. I remember when I first read about this. I felt so bad for her and I can't imagine how awful, how horrible and how sorry her friend must have felt.

But Rachelle handled this situation with acceptance, wisdom, and kindness that just goes beyond my understanding - I can't say I would handle this as well as her - no way!

I dont' think most of us could or would.

Rachelle is amazing. I'd like to see more on her story - I think she could write a great book and share her experiences - she could help many people with the same or similar challenges and certainly give the rest of us a real eye opening perspective on what's really important in life.

I think her and her loving husband found it. May God bless them always.
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EnCoggNeeto
I hold no allegiance to any political party.
02:08 PM on 06/27/2013
As a parent of a 21 year old with autism, let me just tell you right now: You absolutely MUST find a way to let all of that go and tune people out. It's difficult to do, admittedly. I still get into a bit of an uproar when I hear the words 'retard' or 'retarded' used in a derogatory context. But for your own peace of mind, you have to find a way to ignore the ignorance. Best wishes on your continued recovery!