iPhone app iPad app Android phone app Android tablet app More

Featuring fresh takes and real-time analysis from HuffPost's signature lineup of contributors
Dr. Gregory Jantz, Ph.D.

GET UPDATES FROM Dr. Gregory Jantz, Ph.D.
 

None So Blind: A Mother's Hunch and A Doctor's Mistake

Posted: 05/03/12 02:24 PM ET

The picture is adorable; a pink little angel with feathery wings, wearing a faux pearl necklace and toddler-sized glasses atop her button nose. Her name is Emmelyn; she's 3 years old and immediately captured my attention. According to the story, Emmelyn is the youngest person to be accepted into the high IQ group, Mensa. As I read over this 3-year-old's academic achievements, I'll admit I was impressed. She scored in the 99th percentile with an IQ of 135, enough to qualify for Mensa. Again, impressive. But, as I read the article, it wasn't just Emmelyn who was impressive. I was also impressed with Emmelyn's mom, Michelle.

Michelle is the one who did the ground work that got Emmelyn accepted into Mensa. It might be easy to jump to the conclusion that Michelle is just a stage mom on steroids, Ă  la Toddlers and Tiara's, but that's not the story here. You see, when Emmelyn was an infant, she couldn't see -- that is, at least not very well. As a result of her poor vision, Emmelyn didn't hit the usual developmental markers. She failed to reach for objects; she wouldn't establish eye contact; by the age she should have crawled, she didn't. Emmelyn's pediatrician pronounced her delayed and warned her parents she could be autistic. I can only imagine the horror of a parent hearing those words, especially coming from someone who's supposed to know. But having knowledge does not equate to being all-knowing and, sometimes, even the most professional and educated get it wrong.

Even with that devastating diagnosis, Emmelyn's mom, Michelle, decided to act, not on the doctor's advice, but on a mother's hunch. Instead of consigning her daughter to a category, she took Emmelyn to have her vision tested. Michelle's hunch turned out to be correct. Emmelyn wasn't autistic; she couldn't see. At ten months old, this "delayed" toddler received her first set of baby glasses. Immediately, she blossomed and by 15 months could recognize letters. She soon began to write those letters. By the age of 2, she could not only count but could count by 2's, 5's and 10's.

Opinions, however, die hard. Even with all of this evidence, Emmelyn's doctor continued to insist she was delayed. I guess that's when Michelle decided the only thing to trump a really smart professional was a bunch of really smart professionals. Enter, Mensa. Michelle sought out the group, looking for support for her belief in her daughter's abilities.

The article concluded with the happy ending of Emmelyn as the youngest Mensa member ever accepted. A happy ending, yes, but the story stayed with me because it was personally disturbing. As a professional myself, I couldn't help but think about the times when I "got it wrong." As hard as I try to help others to the best of my ability, sometimes I get it wrong. Not often, but certainly more than I'd want. As I thought about Emmelyn and more specifically Emmelyn's doctor, I had to ask myself if I can be just as enamored of my own opinion. I had to ask myself how many times I've dismissed the "hunch" of a mom or a dad or the person I'm trying to help because it didn't match with my professional perspective.

Of course, doctors have a reputation for getting it right. According to a 2011 study, doctors get it right 99.28% of the time. But 99.28% isn't 100% and that 0.72% wrong equates to $17.1 billion dollars a year in medical mistakes. Doctors certainly have medical knowledge; what is sometimes lacking is the knowledge of their own fallibility. I don't think that's a condition reserved for any particular profession; I think a blindness to see our errors is universal.

The old adage says, "There are none so blind as those who will not see." How true that is. Poor vision was cited in the headline on this story. It's important to remember that, ultimately, the one with the poor vision wasn't Emmelyn.

 
 
 

Follow Dr. Gregory Jantz, Ph.D. on Twitter: www.twitter.com/gregoryjantzphd

FOLLOW PARENTS
 
 
  • Comments
  • 8
  • Pending Comments
  • 0
  • View FAQ
Comments are closed for this entry
View All
Favorites
Recency  | 
Popularity
HUFFPOST SUPER USER
dancerctry
I love Gardening and Decorating
01:36 PM on 05/07/2012
It sounds like, while you aren't perfect, you do care about your patients. I hope Emmelyn's mom gets a new doctor. In my case, my almost 3 year old's doctors listen to my hunches. I'm a sahm and know my husband and son well. When my husband, who has hydrocephallis, had a major migraine and we to the hospital a month ago all that testing concluded what I had told the doctor I suspected it was. He had recently decreased a lot of carbs from his diet and I suspected the migraines were from his body adjusting. They went away, unmedicated, two days later when he had adjusted. It's the same for my son. When I tell the doctor what I suspect it is, they do their tests and have always found it to be exactly what I said it was. You are probably the same way, if a parent has a hunch, you probably take it seriously. I'm not always going to have such a high success rate but because I do, our doctors take me seriously. I'm the only one I can't diagnose properly so far.
photo
HUFFPOST SUPER USER
MarcEdward
likes all cats more than most people
11:59 AM on 05/05/2012
Most doctors are only good for checking off checklists and proscribing antibiotics. Oh, and they can give shots according to a schedule. To claim "they usually get it right" is utter BS. "Dr. House" does not exist.
05:09 PM on 05/04/2012
Good article! Mothers do need to trust their instincts, do their research, and get second/third opinions! Thanks for linking to the article about 3-year-old Emmelyn Roettger, and about how Mensa can be a good resource for parents of gifted kids who crave intellectual challenge.
05:11 AM on 05/05/2012
for motheers read parents
photo
jf12
Esta vez saldré como las otras y me escaparé.
11:25 AM on 05/04/2012
Medical errors cost more than you think.
http://www.medicalnewstoday.com/releases/11856.php
06:26 PM on 05/03/2012
Maybe this time the doctor was wrong....but i know from experince that a lot of parents dont want to except thier childrens disability ..
photo
VA Jill
I'm not perfect and neither are you
07:27 PM on 05/03/2012
Nobody should ever accept their children's disability on a first diagnosis, and you shouldn't disregard a hunch, because who knows their child better? The first thing you do is make sure you get the primary senses looked at. I guarantee that if your child can't see or hear, some doctor or teacher or someone is going to think they're delayed. I fault this pediatrician for stubbornly holding onto his opinion even in the face of evidence that he was wrong. Doctors like him we don't need!
HUFFPOST SUPER USER
Conuly
11:04 AM on 05/04/2012
She DID accept (note spelling) her child's disability. The kid has very poor vision.