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Dr. Harold Koplewicz

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Trudie Styler on Living with ADHD and Dyslexia: Don't Give Up, Do Reach Out

Posted: 05/24/11 09:29 AM ET

When Trudie Styler -- the multi-talented actor, filmmaker, eco-activist, UNICEF ambassador, mother of four and Sting's partner for 29 years -- first started school in the English Midlands, she had trouble learning to read. School officials sent her to get her eyes tested. When it turned out that the problem wasn't with seeing the blackboard, the diagnosis was simple: She must be "backwards."

"Backwards" is the British word for what we now call cognitive impairment, and it was the kind of thing kids who have dyslexia and ADHD, including Styler, got labeled with in the 1960s. While she didn't get a real diagnosis until many years later, when she had children of her own with the same symptoms, she did have a mom who came forcefully to her defense -- "a large lady given to speaking her mind," Styler said, "who went to school and said, 'Our Trudie is not backward, she's just slower learning to read.'"

Styler talked to me about her experiences growing up with ADHD and dyslexia at the ninth annual Adam Jeffrey Katz Memorial Lecture at the Kaye Playhouse at Hunter College May 17. The lecture began in 2003 in memory of Adam Katz, a young man who struggled with both disorders.

School became a nightmare for Styler as she moved from a small primary school to a big high school, where she found herself lost -- "just completely, physically lost in space as well as having more and more difficulties with math, and writing, and reading, which was always laborious and slow for me."

Teachers were not sympathetic to her challenges. "Math was the biggest nightmare because I had a bully of a teacher who persistently gave me bad marks for not doing well," she said. "And I really really did try. Even my poor dad tried to teach himself geometry because he felt so badly that I was struggling, and I would come home and I would be really crying a lot and saying, 'Mom, this is just too hard.'"

I asked her what resources or traits helped her get through such a difficult time. Styler said she and her two sisters were brought up in the church and sang in the choir. "I think that my faith in God began to grow, and it was that small voice when you're extremely lonely and lost, that lets you know that you're actually not alone, there is something bigger than you if you just have faith. And that's what happened to me; I was quite a religious, spiritual person -- still am -- and put a lot of my faith in God, who in turn asked of me to put my faith in myself. And so no matter how hard it got, I knew that one day it would come right. "

She was also a good athlete, which she said helped empower her, and it was in high school that she discovered acting."When I got on stage, and when I started to be another character, I could somehow take a distance from me, and that character would come through. So I definitely knew that there was a bigger aspect to me than this person who was suffering from a learning difficulty."

At the end of high school, she reached a crisis point: she wanted to go to school to learn acting, and her father wanted her to get a job at a local factory.

"Dad and I had an appalling fight. He said, 'Either you go and get a job or you can pack your bags,'" Styler said. "I packed my bags and I left, and I decided to hitchhike to Stratford-Upon-Avon, because I thought, well, that's how I could begin work as an actress, because that's where Shakespeare was. It was very wild, crazy, 17-year-old thinking at the time. I'm not particularly proud of it. It was a very impulsive thing to have done, but I needed to escape that particular reality."

Styler found haven by ringing the doorbell of a woman who had been listed as offering rooms to acting students -- begging for a bed for the night, in tears -- and the woman helped her look for work. She answered an ad in a local newspaper that read, "Wanted: Cleaner for lively theatrical household. Bring order to chaos."

"That lady is still in my life," Styler said, "and she said I brought a lot of chaos, no order, but they fell in love with me, thank goodness."

A year later she moved with the family to London, where she spent a rather unsuccessful year in teacher's college -- it's the only school she was able to get a grant for -- and finally wrote a letter to the Bristol Old Vic Acting School, laying out her situation and begging for an audition. She got one, and was accepted as a student, with a scholarship.

"My life really began there," Styler said. "I had begun to realize my dream. It was the first time the tide wasn't going against me. I had begun to just ride a wave." In 1981 she joined the Royal Shakespeare Company.

When did she finally become diagnosed? I asked her.

"Sting and I have six kids, amongst us, and an extended family. A lot of members of our family have ADHD and dyslexia," Styler said. "In my generation I would say 90 percent of people with ADHD and dyslexia went undiagnosed."

Those who have primarily the inattentive type of ADHD, rather than the hyperactive -- most often girls -- tend to be overlooked, she said, because they're well-behaved. "You want to sit up straight, you want to do what the teacher asks you, you want to please people, but you're operating in a fog a lot of the time."

Now Styler says she gets things done with the help of a personal assistant who's worked with her for 31 years. "Without Theresa I wouldn't have got into this room today."

One of her strengths has become reaching out effectively to other people. "What my learning difference has done is taught me to be a great communicator. My mother's advice was always, when you're lost, always ask a policemen, and there's a bigger truth there. To reach out. To communicate. Help is always there."

She finds that yoga is also a big help. "Yoga has been an amazing tool for me. The physical practice has helped me maintain my body and given me strength, but the meditation aspect has been incredibly useful in stilling my mind, clearing the traffic that goes on in a chaotic mind like mine."

Medication also helps her focus. "I'll put my hand up to taking Adderall on days when I have scripts to read. It's a great tool for me getting a lot done."

To children struggling in school, she says, "As a kid you obsess on wanting to be normal. As you get older, being normal is not such a big thing. Your gifts are important. Celebrate who you intrinsically are, listen for the small voice. Instead of buying into 'I just can't do it,' reach out and ask for help."

Finally, I asked Styler how she and Sting have managed to stay married so long, since living with a person with ADHD can be challenging; the divorce rate for people with ADHD is higher than the already-high rate for other people. "He's on tour a lot," she quipped.

"It's true, he's more OCD than ADD," Styler added. "He's a very ordered person -- very opposite to me, really. He reads five books a month. If I'm learning scripts, I have to have them on tape."

"I'm just a wreck in the bathroom, all my lotions and potions -- poor thing, he has to deal with that. After 30 years I guess he's just used to the wreckage. Maybe that's why he goes on tour."

Trudie's honesty and compassion were a gift to the hundreds of parents, teachers, clinicians and kids in the audience on Tuesday night. We applaud her courage and are hopeful that her success story is an inspiration to those who struggle with dyslexia, ADHD and other mental health disorders.

For more information on the Katz lecture and the Child Mind Institute, visit www.childmind.org.

 
 
 

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When Trudie Styler -- the multi-talented actor, filmmaker, eco-activist, UNICEF ambassador, mother of four and Sting's partner for 29 years -- first started school in the English Midlands, she had tro...
When Trudie Styler -- the multi-talented actor, filmmaker, eco-activist, UNICEF ambassador, mother of four and Sting's partner for 29 years -- first started school in the English Midlands, she had tro...
 
 
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HUFFPOST SUPER USER
Runtime Al
The truth hurts.
12:57 AM on 05/30/2011
I have a 22 year old son with ADD. It was ADHD when he was young. Puberty only made the "H" go away. His schools were useless; they pretended to have special programs to help, but anytime a problem developed, their answer was a 2 week suspension. It was only ever about crowd control. Parents of ADD kids know what I'm talking about. It's really about conformity.What else is new?
Drugs are never the answer. If they were, we would all take them to improve ourselves. I tried his drugs. It's speed. Pump your 1st grader full of speed. I did. Big time regret.
ADD is a problem of the modern age that we live in. Relentless media bombardment and poison in our food causes it. This wasn't a problem 200 years ago when we were all farmers working outside, and the food we were growing wasn't full of chemicals. And now modern medicine wants to treat chemical poisoning with chemicals. That's all most doctors do...write prescriptions. That's the extent of how they and the drug companies practice medicine....and make money.
To summarize...two words...conformity and money.
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Watersisland
Broadcasting from somewhere in the Caribbean
03:06 AM on 05/30/2011
don't feel bad about allowing the drugs. At least you realized better after a while. I refused to subscribe to the idea of drugs reguarding my new stepdaughter...in first grade (the FIRST time). I absolutely refused to allow it. I considered her problem a 'behavioural" problem, NOT a ritilin deficiency. I finally gave in after it was recommended that she repeat 2nd grade(although she is/was extremely bright. It made all the difference in the world and she excelled......untill around 5th gr. THEN, they wanted to, and I foolishly also agreed, put her on a variety of drugs. I still feel guilty to this day. All she ever really needed was security, love, and attention. Some children just need LOTS more, ALL children need LOTS. Time and Attention---that's what parenting is all about. Untill anyone has a burning desire to provide that to children, the ought to hold off on child rearing. Once they're born....they ARE your life.
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DrP
10:44 AM on 05/28/2011
My son, whose childhood and adolescence were nearly destroyed by his MD father's misguided attempts to treat his ADHD with drugs rather than lifestyle changes, has successfully alleviated his problems through diet. He eats organic, unpackaged, unprocessed, whole foods with no additives (eliminating artificial colorings and dyes is especially crucial); high in fat, moderate protein, and very low carbohydrate (no sugar, no grains, minimal starches). His focus and concentration have improved 100% and he is a productive, happy young adult who is planning to train to be a yoga instructor (which is also a great occupation for someone working on focus and concentration issues!).
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HUFFPOST SUPER USER
Wombaticus
All new info is analyzed against our experiences.
08:55 AM on 05/27/2011
Having ADHD definitely creates a lot of issues in minute to minute living. Any of us with that have a backlog of stories about missed appointments and long periods spent far away from the task you wanted to be doing. Stories like Ms Stylers help demystify this relatively new and very suspicious (to a lot of people) diagnosis, as well as showing that it is not a negative, but rather a different way of thinking that has its own pro's and con's. Personally, I am a failure in 'normal' business, but I am very successful in a creative industry.
And now I am going to be late to work after being sucked into this article...typical.

Ciao and be well!
08:27 AM on 05/27/2011
Just another reason to Drug our children. Not all kids are the same. Some kids are slower than others and some kids learn their behavior from their parents. It's never the parents fault though....no no no. Not all kids enjoy being at school either and would rather be doing something else.
06:57 AM on 05/27/2011
Thank You Trudie, for sharing. I too have two ADHD children, who have struggled enormously at school, and who's behavior has caused struggle at home too. Im English where ADHD is commonly thought of to be an American made up 'thing'. I live in American and no way is this a made up 'thing'. I'm sorry, diagnostic results are not thrown around any which way to label any difficult child. My children went through rigorous testing in school, for three months, testing for all learning difficulties before concluding that the ADHD was what was causing the difficulties in learning due to complete lack of focus and capability of concentrating for any period of time. Special programs are created for these children and they are allowed extra time for testing, they get help in class when needed and they are not judged for being a different kind of learner. I have medicated both children - a horrible and difficult choice for any parent, but my children are doing better in school and at home because of it. They can focus, they can concentrate, they can hold a conversation thread and sit normally in a movie theater. They can be 'normal' again, make friends and hold down friendships because their impulsivity turns into creativity instead of aggression...
Anyway, thanks to people like Trudie sharing these problems with the general public, we are can appreciate that these problems are real, that famous people are no different, we all have problems...
05:41 PM on 05/26/2011
and so began the cycle of "the slow one to learn to read" keeping the rest of the class from excelling (read: No Child Left Behind)
02:07 PM on 05/26/2011
As a parent of 2 ADHD children, I would like to commend Trudie on her honesty. My sons ADHD was so bad that when he turned 18, he was on suicide watch. We had to take him off of the ADD medicine because of suicidal side affects. I have never stopped trying to help him. He is without a doubt the most intelligent young man that I have ever met. It is a shame that this "disease" locks that God given gift up. Someone tried to talk him into joining the military because of the discipline. He doesn't need discipline. He isn't destructive or into drugs or drinking. He doesn't talk back, sass, or even fight. He is impulsive and cannot stay focused. If Trudie could let people know that it is not discipline that childrein with ADHD need, it is counseling, love and patience and yes meds. Thank you Trudie. I will pray for you and please pray for my son.
01:05 PM on 05/26/2011
Dear Trudie, I am 63 years old and no one knew about any of this then when I went to school. I was considered slow and was never seen as anyone to track towards college. When I was in my 30's a friend and I where at a Museum and she realized that I could not pronounce words I had never heard. She was curious and is a Clinical Phsycologist. She did some tests guess what I am dyslexic. But since I am also left handed I automatically compensate. Just to let you know, I hold a PhD in Biochemistry and I am a Professor at a tier one university. I really am glad that kids now are tested and people realize that given extra time they will show how bright they are, and nor be called slow.
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HUFFPOST SUPER USER
Lew-Lew 46
07:12 PM on 05/26/2011
My daughter was in 1st grade when her teacher called me one night from home. She told me it was her thought that my daughter had a "learning disorder". As a teacher she could not recommend testing that I would have to. She pleaded with me not to mention her name as she could have been disciplined or dismissed. She was so right...my daughter is dyslexic. It's' been a long road, with lots of bumps, but she's done so well despite it. We forget about it all the time until she runs into problems with numbers. It seems as though numbers really present problems for her...but she did so well in algebra and geometry it was uncanny.
10:18 AM on 05/28/2011
This comment is actually more inspiring than the entire article. Thanks for posting.
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HUFFPOST SUPER USER
oh yes money speaks
Equal rights for all!!
11:49 AM on 05/26/2011
Thank you Trudie for giving your story and insight to this condition. Knowing there is hope for acceptance and true success with this type of hurdle is a huge relief. Sometimes it's hard to recognize these problems with your children and hearing from others is very helpful.
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locustent
Retired mechanical engineer from the Midwest
11:37 AM on 05/26/2011
I found this article to be both touching and informative. I too was diagnosed as having ADHD (attentive type) as an adult. Although the diagnosis was very frightening and depressing at the time, it has become a relief to have confirmation that there was something different about the way I approached learning, accomplished tasks, or how I interacted socially. The diagnosis and ongoing treatment have helped me find and incorporate more appropriate methods and strategies into my daily life to suppress or replace the habitual coping processes that I had adopted since childhood.
10:55 AM on 05/26/2011
"He's more OCD..." Welcome to the 21st century where everyone needs a diagnosis.
This user has chosen to opt out of the Badges program
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sabelmouse
i love to tumble , ask me why .
08:22 AM on 05/27/2011
people like to trow those terms around not knowing what they really mean. a person with ADD ought to be more aware.
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HUFFPOST SUPER USER
Wombaticus
All new info is analyzed against our experiences.
08:50 AM on 05/27/2011
You are so right. Only people with doctorates should be allowed to speak. Merely living for decades in awareness of psychological issues and looking into them doesn't qualify one to make casual comments in an interview. The nerve of that woman to mention a medical term!

I guess there were not enough spelling mistakes to grouse about, you had to chastise for non-expert testimony?
08:16 AM on 05/26/2011
thank you so much for this article I will share this with my high-schooler. She has such a hard time with reading and feels very lost at school so she tries to be very socialable to make up for it, maybe this article can give her hope
08:07 PM on 05/25/2011
People who don't have Dyslexia don't have a clue what it like!
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methodman
01:55 PM on 05/25/2011
I want to add there are two seperate parts. One is unfortunately until parents have expanded their own vocabulary to be large enough to embrace ; unfortunately the fifedom system.doesn't work. In my case my dad is a dentist. I ought to be able to use a drill. Real fact I can't if my friends house depended on it I can't do that. So you have to come into more terms than people that can just explore one area and gain a footing. You have to develop contrasting footings and It is far more creative but the initial learning curve is far more difficult. Schools tend to bless atheletic kids and most of the other kinds of people are left to fend for themselves. Sitting in front of a computer texting is not going to develop your ability to create or organize various databases which are the backbone to doing creative plan making. Whether it is painting or orchestrating music. You also have to gain the benchmarks of progress which doesn't automatically write itself. At least it didn't for me.
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methodman
01:43 PM on 05/25/2011
As some one who suffers from right brain damage I think quite a few explanations have improved because certain part words have been standarized. For example contrast pattern to sequence. Exchange Corner or T Bracket. None of this passes the English 1A smell test but it is far more usable. The problem is English 1a standards and the Religious use of Believe from disingenuous pastors have degenerated into such delusion. Believe actually in Christianity is sequence the way they use it but they have no potential or substitute for pattern. and their God Theory is that God only likes verbs. and if a verb just happens to function as a structure word use it as structure. Ban all other parts of speech except verbs. I'm serious that is why people can't follow what these imbecilic pastors are saying. But they're so disingenuous that they won't respect you enough to have a discussion to anything anyone says that's different from the garbage they say..