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Heather Lens
Before April of 2013, Heather was a typical working mother. She then decided to change careers and be a stay-at-home-mom to her 5-month-old daughter. Just two weeks after being home, her daughter started having seizures and was diagnosed with a rare genetic disorder called Tuberous Sclerosis Complex. This disease left her infant with tumors on her brain and heart. She has now become an advocate for the Tuberous Sclerosis Alliance and uses her personal blog, to help inspire, encourage and bring hope to others.

Entries by Heather Lens

Der Tag, an dem man uns sagte, dass wir keine Kinder mehr bekommen sollen

(2) Comments | Posted December 19, 2014 | 6:52 AM

Als ich aufwuchs, entschied ich, dass Hochzeit und Kinder nicht zu mir passten. Wer würde allen Ernstes an etwas gebunden sein wollen und riskieren, sein Herz an einen Menschen zu geben, der es eventuell wie eine schlechte Eigenschaft fallen lässt? Im zarten Alter von 18 Jahren konnte ich das nicht...

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The Day We Were Told Not to Have More Children

(3) Comments | Posted December 16, 2014 | 6:08 PM

Growing up, I decided that marriage and kids were not my thing. Who in their right mind would want to be tied down and risk giving their hearts to people who could eventually drop them like a bad habit? At the ripe age of 18, the whole thing was too...

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From Terrible Twos to Drug Withdrawals

(2) Comments | Posted October 7, 2014 | 7:04 PM

Maddie, my innocent almost-2-year-old, has developed a physical and mental dependence on the drug that stopped her debilitating seizures. At the beginning of this journey, we couldn't wait to get our hands on this miracle drug. I remember feeling like it was Christmas morning while we waited for the FedEx...

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Dear (Not So Dear) Tuberous Sclerosis

(9) Comments | Posted September 15, 2014 | 1:59 PM

Dear (Not So Dear) Tuberous Sclerosis,

I despise you.

You have brought pain to my family since the day your name was so gravely spoken. Your tag line of "incurable" ripped through my heart like a million razor blades tearing it to shreds. You have made me doubt myself and...

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The Bruise

(14) Comments | Posted August 25, 2014 | 5:23 PM

Earlier this month my husband, daughter and I were put into a genetic research study. A study that will be looking into the reasons our daughter has tuberous sclerosis. It is a disease that causes tumors to grow on vital organs. She has tumors on her brain and heart. Well,...

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A Letter to Myself Two Years Ago

(18) Comments | Posted July 24, 2014 | 12:09 PM

A letter to myself, pre-baby and pre-Tuberous Sclerosis Mom:

You have no clue what life has in store for you. Currently, your mind can only think of marriage, career, houses and where you will be going to dinner tonight. You think you love your husband right now, but you have...

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