Heather Spohr
Heather Spohr is a writer and philanthropist who blogs at the award-winning site The Spohrs Are Multiplying. She’s a nationally recognized fundraiser for the March of Dimes and president and co-founder of Friends of Maddie, a charitable organization that supports the families of critically ill babies in Neonatal Intensive Care Units. She has spoken at numerous conferences, on CNN and before members of Congress.

Entries by Heather Spohr

Carta abierta a las madres de bebés arcoíris

(1) Comments | Posted November 22, 2015 | 10:01 AM

Estoy en contacto con muchas personas que han sufrido la pérdida de hijos pequeños o de bebés, y en los últimos meses he notado un aumento de nacimientos de bebés arcoíris. Para aquellos que no lo sepan, un bebé arcoíris es aquel que nace después de un aborto, de un...

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An die Mutter eines Regebogen Babys

(0) Comments | Posted November 2, 2015 | 3:10 PM

Ich stehe mit vielen Menschen in der Kindesverlust-Community in Kontakt. In den letzten Monaten habe ich einen starken Anstieg von Regenbogen-Babys bemerkt. Für alle, die nicht wissen, was das bedeutet: Ein Regenbogen-Baby ist ein Kind, das nach einer Fehlgeburt, Todgeburt oder plötzlichem Kindstod geboren wird -- der Regenbogen nach dem...

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Alla madre di un bimbo arcobaleno

(10) Comments | Posted October 30, 2015 | 8:30 AM

Ho diversi contatti tra le persone che hanno subito la perdita di un bambino. Negli ultimi mesi ho notato un notevole aumento negli annunci di nascita dei cosiddetti "bambini arcobaleno". Per chi non lo sapesse, un bambino "arcobaleno" è un bimbo nato dopo un aborto spontaneo, la nascita di un...

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To the Mother of a Rainbow Baby

(177) Comments | Posted October 27, 2015 | 3:29 PM

I am connected with many in the baby/child loss community, and in the last few months I've noticed a huge uptick in rainbow baby announcements. For those who don't know, a rainbow baby is a child who is born after a miscarriage, stillbirth, or infant/child loss -- the rainbow after the storm. Two of...

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Un panino non può essere più importante della vita di un bimbo

(5) Comments | Posted September 18, 2015 | 6:27 AM

L'anno scorso, durante l'orientamento prescolare di mia figlia Annabel, un padre domandò se fosse consentito ai bambini portare del burro d'arachidi per il pranzo. Guardai una madre seduta di fronte a me che ascoltava immobile la risposta delle insegnanti: "Vi chiediamo di evitare. Abbiamo una bambina con un'allergia molto grave...

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No Sandwich Is More Important Than a Child's Life

(2806) Comments | Posted September 16, 2015 | 4:28 PM

Last year at my daughter Annabel's pre-K orientation, a dad asked if kids would be allowed to have peanut butter in their lunches. I watched a mom in front of me stiffen as the teachers replied, "We're asking you not to. We have a child in one of the pre-K classes with...

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If There Were Greeting Cards for Grief

(77) Comments | Posted July 15, 2015 | 9:32 AM

One of the ways my friend Jackie and I dealt with the crappy things in life was with gallows humor. It was the kind of stuff most people would drop their jaws over, but it really helped us cope with everything life had thrown at us. One of...

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Stop Posting Your Spider Photos on Facebook Already

(0) Comments | Posted July 9, 2015 | 11:00 PM

At the end of the day, I love sitting down and scrolling through my Facebook feed to see what's going on with my pals. I always enjoy seeing new pictures of kids (aw), updates on jobs (yay), and shared articles (interesting).

You know what I do not enjoy? I do...

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OMG Enough With the Elf Hate

(9) Comments | Posted December 11, 2014 | 4:46 PM

For all of the things I love about this time of year, there's one thing I cannot stand: the complaints about Elf on the Shelf. For those of you who don't know, the Elf on the Shelf began in 2005 when the book The Elf on the Shelf: A Christmas...

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12 Things That Did Not Happen When I Became a Mom

(13) Comments | Posted November 19, 2014 | 10:29 AM

It's amazing how people's perceptions of you change once you become a mom. While many aspects of my life did change, who I was at my core did not.

1. My name didn't change to Mommy.
My kids might call me Mom, Mama, or Mommy, because I am their...

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I Am a Preemie Parent

(8) Comments | Posted November 11, 2014 | 4:35 PM

The first time I was told my child was going to die, I was about seven weeks pregnant. There was no way of knowing it then, but those words started me on my path to becoming a Preemie Parent.

The next time I was told my child was going to...

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Why It's a Great Thing for Both of Us That My Daughter Is Going Back to School

(3) Comments | Posted August 29, 2014 | 9:18 AM

Last night I had a parents' meeting with my daughter Annabel's Pre-K teachers. It was your basic info session where they went over what to expect and we had time to ask questions. I recognized several parents from last year's class, but there were a few new faces. After the...

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Comment rester ensemble après la perte d'un enfant

(0) Comments | Posted July 29, 2014 | 11:46 AM

Ce n'est pas un secret: de nombreux mariages ne résistent pas à la mort d'un enfant. Ce que je comprends parfaitement.

La mort d'un enfant vous détruit entièrement. Vous êtes à la fois la même personne et quelqu'un de totalement différent. On change tous avec les années, mais...

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The Hard Truth About Staying Married After Losing a Child

(17) Comments | Posted July 23, 2014 | 10:37 AM

It's no secret that many marriages fall apart after the death of a child. I completely understand why.

The death of a child completely shatters you. You're the same people, but at the same time, you're really not. Everyone changes throughout the course of a marriage, but it's rarely so...

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One Cliche That Grieving Parents Really Don't Want To Hear

(19) Comments | Posted May 16, 2014 | 3:33 PM

I've written a fair amount about the things you should and shouldn't say to grieving parents. There's one expression that I've purposely left off the lists. Like most of the "wrong" things people say after a child passes away, this one is well-intentioned. But, this one stings...

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Our Nurse

(5) Comments | Posted May 9, 2014 | 8:26 PM

She was the first nurse we had the first time my former preemie Madeline was readmitted to the hospital after her NICU stay. She was the nurse closest in age to me, so I felt comfortable with her. She had a big easy smile, a quick laugh, and...

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I Didn't Know What to Say

(5) Comments | Posted April 30, 2014 | 10:26 AM

My 4-year-old daughter Annabel's questions about her deceased older sister Madeline come in phases, and we are currently in a big one. The questions are getting more specific and harder to answer, because while I am always honest I do everything I can to not scare her.


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This Is Not Who I Wanted to Be

(14) Comments | Posted February 6, 2014 | 1:23 PM

When I was a kid, I was a lot like my 3-year-old daughter Annabel: very chatty, very busy and very strong-willed. Stubborn, hard-headed, the whole shebang. It was predestined -- growing up, many adults would sing-song at me, "someday you'll have a child exactly like you!"

You'd think that because...

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Don't Let Your Family Photos Fade Away

(2) Comments | Posted December 23, 2013 | 9:05 AM

If you're anything like me, you're the type of person who wants to preserve family memories (and your record of family road trips) for posterity. And of course, if your family is anything like mine, you're also likely to find that easier said than done. My parents, for example, lost...

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The Most Brilliant Kids of 2013

(0) Comments | Posted November 18, 2013 | 9:18 AM

It's only natural to look to the future with hope for a better tomorrow. Happily, the seeds of that tomorrow can be seen in the minds of 2013's most brilliant kids. Here are three wunderkinds who promise to be on the cutting edge of innovation for a long time.

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