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Jacob Teitelbaum, M.D.

Jacob Teitelbaum, M.D.

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Five Common 'No No's' for People With Fibromyalgia

Posted: 04/ 1/11 12:00 PM ET

Dear Readers,

Here are five common "no no's" people mistakenly do when trying to manage fibromyalgia. Do any sound like you?

1. Exercising too much or too little

Fibromyalgia reflects an energy crisis in your body, so you can only exercise to a certain point. Beyond that, you get what is called "postexertional fatigue," where you feel completely wiped out the next day. Be careful to avoid this as it can discourage you from the moderate exercise that is vital to healing fibromyalgia.

On the other hand, insufficient exercise results in deconditioning and clearly can worsen your ability to function.

So what level of exercise is right? If you feel tired but good afterwards, and better still the next day, then you exercised the right amount. But if you feel like you were "hit by a truck," then you did too much. Start with a light walking program. Wear a pedometer to see your progress and try to build up over time to 10,000 steps a day by adding a minute each day.

2. Not Knowing When to Say "No"

Being too agreeable to things you don't really want to do is a major stress that aggravates people with fibromyalgia. Try more often to allow yourself to say "no" when what is being asked of you doesn't feel good.

3. Not Listening When Your Body Tells You it's in Pain

Widespread muscle pain is one of the most dominant symptoms associated with fibromyalgia. When you feel pain, remember that that's your body's protective system signaling you that something needs attention. Don't dismiss the pain or try to "play through it." Instead learn how to manage fibromyalgia-related pain using a comprehensive approach. The S.H.I.N.E. Protocol is my recommended approach to this, as it can guide you systematically through the five key areas that you need to address.

4. Eating Excessive Sugar

Eating excessive sugar (especially in sodas or fruit juices) can severely flare fibromyalgia by worsening adrenal exhaustion and Candida/yeast overgrowth. Eat a high-protein diet and substitute Stevia or Saccharin for sugar. Sugar-free ice cream with Splenda and sugar-free chocolates with maltitol are also okay (in small amounts). Dark chocolate can actually improve fibromyalgia and chronic fatigue syndrome symptoms!

5. Not Getting Enough Sleep

It may seem counter-intuitive, but people with fatigue-related illnesses, such as fibromyalgia, often get too little sleep. Getting eight to nine hours of good quality deep sleep each night is critical to eliminating fatigue and pain. If you aren't getting enough sleep, see Sleep and Insomnia to learn about nutritional support, sleep habit changes and medications that can help you.

Love & Blessings,

Dr. T

 
 
 
 
 
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yatinjpatel
Board certified sleep physician, Author, Speaker
08:29 PM on 04/20/2011
My empathy is with Fibromyalgia patients. I agree with earlier comments about these patients being labelled neurotic and getting shuffled from doctors to doctors without getting much help. Few points: 1. Fibromyalgia causes non-restorative sleep characterized by frequent arousals and alpha intrusion (wakefulness like EEG waves lasting for 3 sec or more). 2. Control of pain helps improve sleep and better sleep helps reduce pain. 3. Avoid caffeine completely. Exercise in moderation. Learn self-relaxation and mindfulness meditation. See a Rheumatologist and discuss antidepressant medicine with sedating properties. Maintain a regular sleep wake schedule. See a sleep doc if you continue to have sleeping difficulties. Exclude other sleep disorders like restless legs, sleep apnea, and narcolepsy as commented above. Stay awake driving. Do not blame yourself.
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HUFFPOST SUPER USER
No death panels
There's no man with a trumpet. Only me.
12:17 PM on 04/06/2011
Have any of you tried Dr. Teitelbaum's "S.H.I.N.E. Protocol", or know anyone who has? How effective was it?
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Willow712
democratic socialst
01:19 PM on 04/04/2011
I have fibro and narcolepsy, I've had the narcolepsy most of my life, although diagnosed with fibro in 2001 and diagnosed with narcolepsy in 2004. My rheumatologist told me that one can cause fibromyalgia by ruining someone's sleep over and over. With narcolepsy I was waking up 16 times an hour and never got into deep sleep stages. That's why I was exhausted. In an online message board for narcolepsy, over 50% of us also have fibromyalgia. Which really associates fibro with improper sleep. I take Xyrem for narcolepsy and it somewhat helps with the fibro pain also. I was on Cymbalta, which really helped with the pain, but I gained so much weight, I quit it and went on lexapro. I have again started to lose weight, due to the proper sleep. I've lost, in 4 years, 95 pounds,, that I had acquired due to improper sleep. Now that the Xyrem is helping me, and I am making more HGH, I am losing weight, getting back in better balance. Which will help both diagnoses.
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Beth Hill
04:00 PM on 04/03/2011
why are fruit juices bad? What is wrong with the 100% fresh juice? Isn't that better than refined sugar?
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HUFFPOST SUPER USER
Beth Hill
03:59 PM on 04/03/2011
mmmmm sugar. (homer simpson voice)
HUFFPOST COMMUNITY MODERATOR
TXfemmom
Grandma with eye on the future
11:14 AM on 04/03/2011
I started using Truvia, in place of artificial sweeteners, because it comes from a plant and it has a wonderful, non-chemical taste and doesn't have a nasty after taste.  Artificial sweeteners cannot be better for one, frankly.
10:23 AM on 04/03/2011
This diet is interesting, however I've found that the artificial sugars recommended irritate fibro. Infact, anything artificial does - its like the FDA is finally agreeing with what I've known for years, because of 2 kids with ADD/ADHD. the Feingold Diet works! No artificial colorings, flavorings, salts includes sodiums, nitrites, nitrates, etc. I can tolerate the stevia, though. The rest of the plan says to me, moderation is a good word! MODERATION. Where I live is a seniors/disabled community, and they just don't understand fibro - a couple of the ladies here do, and I'll print this and share it with them.
Thanks very much.
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TXfemmom
Grandma with eye on the future
01:03 PM on 04/01/2011
All of these things pointed out by the doctor are very true.  What I would like to point out is that often people are diagnosed with fibromyalgia and then the medical community just writes them and their problems off as neurotics, and fail to further investigate their problems.  That happened to me, despite being a medical professional myself and having the ability to communicate and identify problems, situations and symptoms which should have led all the learned physicians, some of whom were "world recognized" in their fields, to search for further answers.  From conversations with individuals diagnosed with fibromyalgia or Chronic Fatigue Syndrome or whatever moniker one wishes to use, and trhough discussions with physicians, as well as my own history, these patients and individuals are served poorly by the medical community.
 
I had teh "usual" symptoms of fibromyalgia and or Chronic Fatigue and I also had infections, ongoing infections which severely effected my life.  They were explained away by saying I had "normal" white blood counts, and by physicians who said I wasn't getting enough exercise or my diet wasn't adequate, yada, yada, yada.  After nearly dying, I had to force physicians to do further testing, after doing research myself, and I was discovered to suffer from a serious, usually fatal, without treatment, genetic immune disorder.
 
All my treating doctors were floored, and one had refused to test me, due to my age, as their little PDA's said it should have been diagnosed in childhood or decades before and had just refused to consider it because they had not seen anyone reach my age, after having been in a medical environment where infectious organisms were present for years and in practice msyelf, and survive without treatment.
 
I am so angry at physicians who just build a wall around their practice and their patients due to their failure to reach beyond their "norms" and seek out the truth.  I forcefully demanded that they further explore my white blood count and immune status and sure enough, the answers were there, but were first addressed with immune globulin because they felt that they were caused by other treatment, the symptoms returned after the initial treatment ceased, and finally, diagnostic tests were done.  My quality of life and even my life had been jeopardized for years by this failure to further explore for an underlying problem and my physician and I now think many of the individuals diagnosed with these disorders also have an underlying primary immune genetic problem.  There are many different ones, with varying symptoms and degrees of problems, and various ways to diagnose them.  I would encourage all individuals to explore this with their physicians.  
 
I had this discussion with five other individuals with one of the diagnosis, they were tested and four of them had a form of a genetic immunodeficiency.
10:16 AM on 04/03/2011
Sounds like me! I had some emotional pain that was stored, and a physical therapist who did myofascial release and biofeedback on me, got that "junk" to get out, and now I am down to the effects of only fibromyalgia, osteo and rheumatoid arthritis, peripheral neuropathy, DDD, and a few others. This pain alone is awful! I don't know how I dealt with the other pain on top of it. Fortunately for me, I now have a Dr. who understands, finally.
Thanks for the info about immune genetic problem, as I'm seeing ,my Dr. tomorrow, Monday, and I'll request the testing.
11:45 AM on 04/03/2011
Attn TXfemmom

I have little hope of getting these tests done thru my doctor. What about independent labs or Life Extension? Do these tests have names? If they must be ordered by a doctor, what kind of doctor?
Are they covered by insurance, at all? Medicare? And if you do have an immune genetic problem, is there a treatment protocol? Please advise. Thanks.