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Stigma Ain't What It Used To Be

Posted: 05/13/10 07:37 PM ET

"I am now the most miserable man living. Whether I shall ever be better I cannot tell; I awfully forebode I shall not. To remain as I am is impossible; I must die or be better."

The words came out of my mouth slowly and deliberately as passengers boarding trickled past. From the loving embrace of a First Class seat, compliments of a flight attendant I'd charmed on the way to Business Class, I held my iPhone up to my ear and waited for a response from Nancy.

Seconds ticked by. Then, finally, a response. "Joey, did you just say 'awfully forebode'?"

At the moment, I was the most grateful man in Kuwait, a Perrier between my legs, a MacBook Pro on my fold-out table, and a wife shocked into silence 6,300 miles away. Nine days in Iraq -- she must think I've lost my mind. Well, I had; I was, after all, in Iraq against the wishes of my entire family. And yet, my mind felt more intact and I felt more serene, than I had ever been. My brain was still pumping dopamine from the Black Hawk flight into Baghdad 8 hours earlier. The pilots had maneuvered a procedural corkscrew landing designed to escape mortar fire and the momentary weightlessness provided a sensation I hadn't felt since creaking down the wooden Cyclone roller coaster over Cliffside Park at Palisades Amusement Park. Nancy was calling to ask me how the trip from Baghdad had gone, and whether I'd shot a final video blog for the nkm2.org site. "Everything ok?" She sounded genuinely concerned.

Everything was. If we'd been on Skype she'd have noticed my canary-eating grin. I had been going through emails before Nancy called, and was in the middle of reading an article sent to me by a friend. It was about a man and his lifelong depression. And it made me really happy.

The sentiment was a familiar one. I'd known the same color of despair. I had never articulated it so eloquently; my particular brand of expressiveness had been shaped in a world where the magnitude of love articulated was directly proportional to the amount of profanity used to express it.

But the source of the sentiment surprised me "Abraham Lincoln's words. I gotta go back and tell those kids."

I was returning home from a "Stomp the Stigma" tour in Iraq, where I'd screened my documentary, No Kidding! Me 2!!, which we chose to distribute through CreateSpace, Amazon.com's DVD on Demand service, because I strongly feel the film and its message should be seen and heard by as many people as possible. In Iraq, I had the opportunity to speak with hundreds of our men and women stationed there. I shared stories about my struggles with depression and listened as they relayed theirs. There is a terrible epidemic of suicides among young men and women in uniform. Suicides have actually outnumbered combat deaths among our American heroes in Iraq and Afghanistan since at least 2009 - and that's not counting the failed attempts. Veterans from the wars in the Middle East are committing suicide at a rate of twenty a day.

I made a powerful connection with these soldiers, and it awakened so much inside me. It was an overwhelming experience, one that I could not begin to fully understand or process until I had stepped away. On the flight back to JFK, I was consumed with thoughts about the plight of the soldiers, my own journey, and mental dis-ease, the taboo topic that had brought our paths together.

I wondered what they carried away from my talk. "You're only as sick as your secrets," I'd told them. It's something I truly believe. The military brass is beginning to believe it too; that's why they invited me here. "Soldiers are kind of funny sometimes," a high-ranking officer said to me over lunch at a military base. "Probably our biggest issue right now is getting them to talk about it." They were starting to figure out that your feelings can kill you.

I hoped that, if nothing else, the soldiers took that message back to their bunks. By speaking about my own life and inner demons, I wanted to show them that communicating my fears to another human being made those fears less real to me. The feelings are not as scary if you let them out. What haunts you is what you hide.

And here was Abraham Lincoln, a man who had shaped the very ideals these kids were fighting for, talking the same language. The American saint, the face carved into a mountain in South Dakota, the face on the fivers I'd swiped from the a-boost cash baskets at many a wake my mother took me to in Hoboken, that unforgettable, one-of-a-kind punum he understood their anguish. And he understood mine. President Lincoln was standing proudly behind them, and he had a message: speak up, speak loud, and be proud. I wanted to share President Lincoln's story with those kids, the ones I'd met with and the many I hadn't, soldiers fighting in a war and dying from their secret torment at a greater rate than the Taliban could take them out.

We have something to learn from the way his contemporaries behaved toward Lincoln, long before his political fame took hold. Yes, we could afford to tear a page out of that old book. Lincoln found support from his peers and community despite the "melancholy" that "dripped from him as he walked," as Lincoln's law partner William Herndon once described him. Today his condition would be called "depression," but in those days depression wasn't relegated to the closet. Lincoln's burdens didn't make him weak in the eyes of his peers but, rather, were accepted as part of the natural landscape of humankind - and it required strength, not weakness, to walk one's path while lifting such weights. The script was flipped, and it seems to have something to do with a more relaxed attitude in dealing with our inner world. Could our culture be that uptight compared to the early 19th Century? There was a more intimate discourse among us once upon a time. We seemed more open to each other's thoughts and feelings, including our battles with depression. Things that today would be shunned as too personal or awkward, a taboo topic better left to the "head shrinkers," as Mommy would have referred to modern-day therapy, seem once as easy to discuss as apple pie was to eat.

It's still hard to believe this was America in the 1830s. In less than 200 years, the American palette seems to have gone from a sweeping expanse of color combinations to paint-by-numbers with invisible ink. What's happened between then and now? What the hell has gone wrong? In President Lincoln's time, it's as if managing life with mental dis-ease was a character virtue. President Lincoln's lifelong battle with depression is the perfect example of how the challenges so many of us face from the inside out, given to us by genetics or faulty learned experience or both, can be transformed over the course of our lives into the stepping stones of success. As a society, perhaps it's time we followed the same path to recovery from the stigma of mental dis-ease as taken by Lincoln and so many courageous souls since his time: we need to step away from ignorance, denial and fear, towards acceptance and engagement of the totality of our circumstances and, ultimately, transcend our circumstances.

Lincoln's dis-ease was persistent and cruel and nearly destroyed him. Imagine what our world would have been like had a promising young man from Illinois not received the support of his community, his peers, his society - support that helped him manage and overcome a most grueling inner life and achieve his deserved place in history. Too many of us - one in four, in fact - can identify with his suffering, if not necessarily with depression then with the many variations and manifestations of brain dis-ease. Our brains are complex and mysterious, and in that complexity and mystery there is benefit and challenge alike. And when it comes to the challenges, the story of President Lincoln reminds me that mental dis-ease is as much a challenge as a source of strength and motivation to achieve our personal victories.

I had spent nine days telling soldiers that being diagnosed with a mental dis-ease had been the best thing that ever happened to me. Nine days humbled to the bone as tough kids in desert camouflage threw their arms around me and thanked me for what I had done for them. How exactly had I gone from running numbers for my bookie mother in Hoboken to running hope for the U.S. Military in Baghdad? Why me? I had spent the last 35 years playing the guy you love to hate, all the while hating myself because I wasn't Al Pacino or feeling another of a million wrenches my unceasing anxiety threw between me and my serenity. But I was - we were - in good company. I felt relieved as I read Lincoln's quote to Nancy. Nancy, needless to say, was relieved to hear it wasn't me who was doing the "foreboding."

Let's bring some February presidential awareness into May's Mental Health Awareness month. Let's remember President Abe Lincoln's lifelong battle with depression, and reflect on what his successes say about our own stigma-crazy modern world and the unnecessary harm that an earlier generation seems to have avoided.

 
 
 
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10:17 AM on 05/17/2010
Mr. Pantoliano: Thank you so very much for visiting our troops overseas...and thank you for creating and using "No Kidding! Me 2!!" to spread anti-stigma education. I invite you to visit www.AmericasHeroesatWork.gov. America's Heroes at Work is an anti-stigma public education campaign geared toward employers, and is a free resource sponsored by the U.S. Department of Labor. The goal of the initiative is to help ensure Veterans and returning Service Members (living with post traumatic stress and/or traumatic brain injury) can successfully enter or reintegrate into the civilian workforce. The project's web site features fact sheets, training tools, success stories and other resources - to help employers (and Veterans) understand both injuries - and how to work together to put effective workplace accommodations in place to ensure a smooth transition into the civilian workforce.

Thank you for your advocacy and assistance for our troops and others living and coping with psychological health challenges.
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getoffthecross
I take social satire seriously...
02:14 PM on 05/14/2010
I walked out into my backyard this morning, just as the sun was breaking out from the clouds that littered the east horizon. Our gardenia bush is blossoming like crazy, and I plucked a flower and inhaled deeply just as an honest-to-gosh bluebird flew over my head and perched itself on the feeder my wife maintains on the mango tree. And I thought to myself, "this is one of the moments that make it worth fighting through the darkness. As bad as things seem or feel, you have to remember the snapshots of worthwhile experience to help get through it."

Some days I do that kind of mental inventory of why life is worth it, while some days I forget. The days I forget are the days that are the hardest to get through. It makes you want to reach out to everyone else hurting and say, "See? Life is for the instances of sanity that separates the darkness! No matter how bad it seems, there are going to be times when it all seems right and fine and worth it." Mostly, instead of trying to convince anyone else, I work hardest at convincing myself.

Thanks, Joe. It's nice to hear from someone else who keeps the darkness at bay...mostly.
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Valery Satterwhite
The Life You Lead is the Legacy You Leave
01:52 PM on 05/14/2010
Powerful!

Thoreau said "The masses of men lead lives of quiet desperation." It is odd that we stigmatize that which afflicts the majority at some point.

This chasm of heavy sadness that weighs upon so many is a result of some part (or whole) or a life lived inauthentically. You can get really good at living through a False identity but it will be emotionally exhausting.

"Speak up, speak loud, and be proud." is about claiming your truth (who you really are out from underneath the layers of early conditioning), owning your power (think, speak and act in the direction of your truth) and commanding your stage in your life expression.

I call it mustering up your Moxie - the confident courage to achieve authentic greatness with unrelenting drive and passion. It is what you are here to do.

I'm in deep appreciation to Joe, the soldiers and others who boldly express their truth to help others. In so doing they also heal themselves.

"Be the change you seek." - Gandhi

"Be who you are and say what you feel. Those who mind don't matter and those who matter don't mind." - Dr. Seuss.
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Valery Satterwhite
The Life You Lead is the Legacy You Leave
01:42 PM on 05/14/2010
Powerful!

Thoreau said "The masses of men lead lives of quiet desperation.". This desperation is a dark inner cloud, a heavy sadness that permeates every fiber of being. In my opinion this empty inner chasm is a result of some part (or whole) of a life lived inauthentically. You can get really good at living a life through a False identity but it will be unfulfilling, emotionally exhausting.

Life-affirming energy and sense of well being comes from claiming your Truth (knowing who you really are out from underneath the layers of early conditioning), owning your Power (thinking, speaking and acting in the direction of that Truth) and commanding your stage in life.

To do that you have to "speak up, speak loud, and be proud" as Joe says. I call it mustering up your Moxie - having the confident courage to achieve authentic greatness with unrelenting drive and passion.

Emotional trauma - especially as a witness to the horrors of war - throws the human spirit into a frenzied state of survival. Misguided coping patterns are automatically engaged that suck the life energy out of any living being. I'm in deep appreciation to Joe, the soldiers, and others who give of themselves to speak their truth in order to help others. In so doing, they heal themselves.

"Be the change you seek."- Gandhi

"Be who you are and say what you feel. Those who mind don't matter and those who matter don't mind." - Dr. Seuss
01:17 PM on 05/14/2010
Great job Joey. As always, the more information that's out there about depression and other such mental illnesses the easier it will be to stomp the stigma. I think it's important that people understand the difference between mental illness and having a poor diet. Depression comes in all forms and some forms are caused by poor diet, alcohol, drugs even though many folks with depression self medicate with drugs and alcohol. It can become a vicious cycle. However, there are people with biological chemical imbalances often seen with symptoms from childhood that can certainly be helped with a good diet and exercise, but not cured such as bipolar disorder and schizophrenia. Trauma can also have an immense impact and often is overlooked when discussing mental health. Keep up the great work! And looking forward to your book.
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Halsey
"There is a price to pay for speaking the truth. T
01:11 PM on 05/14/2010
Joe,
We here in cyberland have no idea if you read comments (most authors of pieces don't..I truly admire the ones that actually reply every now and again...okay.got that off my chest)...I knew A. Lincoln suffered depression but don't remember that quote..thank you. It speaks of a despair that blackens the soul and consumes the thought 24 hours a day. Allowing that for some (many even) a pharmaceutical is needed; I know a pill would not work for me..and may, indeed, give me that "push" off the ledge. I almost wrote my whole sad story here..but that's not the point of your post...so thank goodness..I pushed that aside. I love your use of words. I admire what you did for those you touched in Iraq (and now..here). I would never, in a million years, have thought you as carrying dis-ease... I must go back to my old mantra "nothing changes if nothing changes"...maybe this article is a stepping stone for me...
I am sad that so many of our soldiers survive battle, only to lose the war in their minds. I believe that you have saved lives; truly.
10:19 AM on 05/14/2010
What a beautiful, beautiful piece. And to the silly people who use this moment to create even more stigma about depression and its treatments, stuff it.
-- Katherine, Postpartum Progress
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KarenM
Former Air Force Brat.... I've lived all over the
10:13 AM on 05/14/2010
Our culture used to believe that suffering was an inevitable & valuable part of life. Somewhere along the line, we lost that perspective, expecting utter perfection where it simply cannot exist.
10:19 PM on 05/13/2010
Joe: I wanted to express my appreciation for you -- your writing on this topic, your wonderful performances over the years, your willingness to share with the soldiers who serve our country, and your obvious compassion. Thank you.
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OtayPanky
You're welcome
09:38 PM on 05/13/2010
Great blog and great work, Joe.

Clearly, the model we're using to deal with mental dis-ease is an abysmal failure. But there's an unbelievable amount at stake here - huge dollars which the medical, pharma and insurance communities stand to lose.

Oh...and don't forget life coaches. A lot of them are reconstructed therapists, who figure that they can do better seeing fewer people for twice or three times the fee, with no insurance companies to deal with.

It's all part of Capitalism Gone Wild, and the Oprafication of our society.
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LMPE
I connect the most dissimilar things
07:53 PM on 05/13/2010
Remind me, which of the Fratelli brothers were you?
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moonflowerjewelry
Buy American made, no excuses.
08:03 PM on 05/13/2010
Two things...
I do believe that depression and bipolar are profoundly overdiagnosed. Most everyone benefits from a healthy diet, exercise, sunshine, hobbies and lots of laughter.
However, some of us have struggled with devastating mental illnesses since childhood, and natural remedies might help take the edge off, but some of us do need that little pill to keep the inner demons at bay. it is dangerous, if not rude and irresponsible, to tell someone that is truly bipolar (or schizophrenic, for that matter) to ditch the pills because it makes a cute sound bite.
07:32 PM on 05/13/2010
Joe, don't be one of the sheep. Why are celebs so gullible? MJ was a billionaire yet lacked the smarts to get a good night's sleep. War is a profit business method of population control. And depression is caused by diet and nutritional deficiencies and lack of exercise. The answers to our problems are right under our nose. Don't ever believe false authorities, phony experts or fixed popular opinion. You can learn more about life from grandma who said "eat your greens" than any establishment disinfo pro. For sharp people to make money, naive people have to believe in the BS. Surf the web. For the first time in history, all truths are available online. Check out this link and educate yourself. It just may save your life.

http://naturalnews.com/
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aznurse
08:53 PM on 05/13/2010
insulting people won't do anything to make them think about listening to you.
11:55 PM on 05/13/2010
Truth hurts. And political correctness is its most polite enemy.
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getoffthecross
I take social satire seriously...
02:03 PM on 05/14/2010
Your post has an air of snakeoil.
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Dawn Diglio
04:23 PM on 05/14/2010
And it stinks to high heaven!
07:20 PM on 05/14/2010
No, the snake symbol of standard medicine is your screed. Big Pharma sells snake oil, not natural alternative treatments. Sell lies, disinfo trolls. But smart people will avoid drugs, and dumb sheep will eat processed food to make them sick and toxic drugs to help them die.
06:57 PM on 05/13/2010
Great piece. I can relate. I would like to know how you deal with your depression now.
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WRPrintz
Your Micro-bio is empty.
06:48 PM on 05/13/2010
Joe,

Excellent prose and a very important topic. Write.A.Book. I will stand in line to buy.
07:40 AM on 05/14/2010
Thanks , thats an excerpt from my new book " the great depression " out this november