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Jose Antonio Vargas

Jose Antonio Vargas

Posted: April 20, 2010 09:17 AM

Is there another disease in America as politicized and as polarizing as HIV/AIDS?

It's about sex and drugs, it's about race and class and homophobia -- the very things that we, as a society, grapple with every day. No wonder then that the story of AIDS in America, nearly 30 years after we first heard of the disease, is really the story of American identity itself. Or, more to the point, the story of America's underclass as seen through a virus.

That's especially the case in Washington, D.C., the nation's capital, whose HIV/AIDS rate is greater than or equal to some African countries. "Our rates are higher than West Africa," Shannon L. Hader, director of the city's HIV/AIDS Administration, famously said, making headlines worldwide. "They're on par with Uganda and some parts of Kenya." When I first started reporting on the issue in 2003 -- as a summer intern for The Washington Post -- I discovered that the rate of new AIDS cases in D.C. was, at the time, higher than New York, San Francisco and Baltimore. Lack of access to health care in the capital city was one of the reasons. By the time a D.C. resident tested for HIV, he or she already had AIDS, the later stage of the disease.

Six years later, after millions in federal and local funds had been spent in prevention and care, the city's HIV/AIDS Administration reported that at least 3 percent of District residents are living with HIV or AIDS. That's a particularly striking figure for two reasons. First, it far surpasses the 1 percent threshold that constitutes a "generalized and severe epidemic," as determined by the Centers for Disease Control and Prevention and UNAIDS, the Joint United Nations Programme on HIV/AIDS. Second, it provides an alarming historical context. At the height of the AIDS epidemic in San Francisco, the city announced that 4 percent of its population was HIV positive. That was in 1992, when longtime AIDS activist Larry Kramer's autobiographical play "The Destiny of Me" burned the New York stage, its main character, Ned Weeks, most memorably asking, "What do you do when you're dying from a disease you need not be dying from?"

AIDS in America was part of the national consciousness then.

And not to take away from the heartbreak and devastation of AIDS in Africa, in southeast Asia, in Latin America -- in all corners of the globe, especially in the developing world -- AIDS in America, in our own backyard, must be part of the national consciousness now.

The numbers speak for themselves. A recent study of 500 gay men in Washington. D.C. found that 14 percent are HIV-positive. As of December 2008 in New York City, a little more than 50 percent of new HIV and AIDS infections were among African Americans, and new HIV infections were highest among those ages 20 to 29 and and 30 to 39, according to the New York City Department of Health. Across the country, every nine and a half minutes someone in the U.S. is being infected with HIV, reports the CDC. And AIDS is the leading cause of death for African American women ages 25 to 34. In 2010. In the Age of Michelle Obama.

But numbers and statistics, as James Baldwin once said, hide as much as they reveal. In seven years of reporting on AIDS in Washington, D.C. -- and, by extension, AIDS in America -- my goal has always been to feature the voices and faces of everyday people infected with the disease. Blacks, whites, Hispanics. Gays, straights, transgenders. Of all ages, from various backgrounds. That was the mission of A Living HIV Quilt, which was part of a year-long Washington Post series that I wrote in 2006, on the 25th year of the AIDS epidemic.

Now those articles and the quilt have inspired a 90-minute feature length documentary, premiering at the Tribeca Film Festival next week. It's called "The Other City" -- in every city, there's another city, and this is the Washington, D.C. that people and tourists barely see. Or recognize. The title also speaks to the perception of AIDS in America nearly 30 years after we first heard of it. Oh, AIDS has nothing to do with me -- it's gay people, it's black people, it's minorities, it's "The Other People" who get it anyway. It's directed by Susan Koch, a long-time D.C. resident and documentary filmmaker. Our producer is Sheila C. Johnson, the multifaceted businesswoman and philanthropist who's lived in the D.C. area for many years. I wrote the film and co-produced it.

Watch the trailer of the documentary below. You can find more information on our website, follow us on Twitter and be a fan of our Facebook page. Additional screening information at the Tribeca Film Festival can be found here.



 
 
 
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HUFFPOST SUPER USER
Turquoise66
12:38 PM on 05/02/2010
A lot if has to do with invented (knowingly or unknowingly) black men having sex with multiple black women at the same time. In other parts of the world like Russia, the HIV/AID epidemic is being fueled by drug transmissions. For blacks in America, it is by heterosexual intercourse. I think the black community needs to stop selling sex to kids and teach them the dangers of sex. We did a good job in lowering unwanted pregnancies in black women, now let's do that with STDs.
06:31 PM on 04/20/2010
So sad and scary!
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HUFFPOST SUPER USER
Southern Yankee
Southeast, NC
02:31 PM on 04/20/2010
And let's never forget the response of the black churches. They went running and screaming about the sinner and God's punishment. Most are still reluctant, even today, to help their own community, which has been torn apart by HIV,
02:11 PM on 04/20/2010
love is the strongest medicine.
02:00 PM on 04/20/2010
I know people are saying we need a cure, but that's VERY FAR AWAY. HIV is a virus. To date, WE HAVE NOT CURED ANY VIRUSES. The standard treatment for any virus is to treat the symptoms so the person feels better and then let the virus run its course. Most viruses die before we do. HIV does not - and destroys the immune system to boot. I was taught this in high school. Why did we stop teaching this?

In the case of HIV, prevention is the ony "cure".
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niko73
Dem belly full but we hungry
01:53 PM on 04/20/2010
Horrible.

So what’s the solution? I didn’t get that in this piece. Showing the rest of the country what’s happening is important, and a good goal. That could certainly get some much needed services/assistance for HIV+ people. But what about the curbing the infection rate? I’m guessing 99% of Americans know you can prevent the spread of HIV by using a condom. Yet people still don’t. I’ve seen this problem on the ground in Africa, where folks are educated by still not curbing the epidemic (“I can’t use a condom, it’s like eating a candy with the wrapper on.”) Changing behavior is extremely hard and I’m not sure what can be done about it. Anyway, thanks for telling an important story, Jose.
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03:49 PM on 04/20/2010
Changing behavior is not all that difficult. Look at seat belt laws, for instance.
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niko73
Dem belly full but we hungry
05:15 PM on 04/20/2010
Well then why are HIV rates still so high in Washington DC and Uganda? No, changing sexual behavior is very hard. Maybe that's the difference. There is no "reward" or "advantage" for not fastening your seat belt. I just don't know.

I've lived in Africa for many years and talked with the young men about condom use. Everyone I spoke with knew it was an effective means of preventing HIV. But few of them used them. That's what I'm sure of, which is why I explain it by saying behavior is hard to change. Educating people is the first step, and the easiest.
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HUFFPOST SUPER USER
John Ramsey001
03:50 PM on 04/20/2010
Condoms lesson the chance of getting infected. It does not prevent HIV infection. The only way not to get infected is either knowing that your partner is not infected or not having sex.
04:19 PM on 04/20/2010
Please stop it. Telling people that condoms don't prevent infection reinforces their negative feelings about using them. People are going to have sex and they need to use protection. If you think your posting will make people think twice about having sex, you are dead wrong.
01:17 PM on 04/20/2010
I personally think that HIV/AIDS education be included as part of sex education in schools. I was introduced to it when I was around 10 years old and the education never stopped there. I am informed now and therefore I have to assume personal responsibility for the actions I take then regarding my sexual life. It might not be perfect in places like Africa but they have HIV/AIDS education as part of their curriculum and it has saved some lives. It really needs to be taught to kids at an early age especially with them having sex very young, some as young as 12 years old.
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HUFFPOST SUPER USER
VungTauVet
Mayonaise is my favorite vegetable - Denny Tunnell
03:22 PM on 04/20/2010
While I'd have to check with my recently graduated children, I'm pretty sure STD's are part of current sex education and that would include AIDS/HIV. Might depend on where you live.
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03:46 PM on 04/20/2010
Depends upon where you live, all right.

http://www.washingtonpost.com/wp-dyn/content/article/2007/04/13/AR2007041301003.html

And the funding for abstinence only sex education in schools continues.
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HUFFPOST SUPER USER
wutzurbeef
99% All American, No FILLER!
01:10 PM on 04/20/2010
I work 8 hours a day, 5 days a week for a charity that helps people with HIV. They are no different than you or me. In fact they ARE you and me. Education is still the key. Also compassion and generosity until we find a cure. We cannot allow ourselves to forget about this epidemic or those who suffer from it. Please don't let length of time passed, or a feeling of complacency and apathy let you stop remembering those who have fallen or those who still need help to fight this disease.
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01:42 PM on 04/20/2010
For about five years, until it was closed by funding shortages, I did all the data entry/office automation for a service that provided therapeutic massage to people with HIV and other chronic debilitating illnesses, and I agree with you 1,000.

People should be helped because they need it; not because we think they deserve it.
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HUFFPOST SUPER USER
Barbara Folk
07:06 AM on 05/03/2010
Your last line is one I'd love to plaster on walls, buildings, write in the sky. After all the arguing about health care, social justice, etc. you said in one line, what everyone should think.

Kudos!
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HUFFPOST SUPER USER
VungTauVet
Mayonaise is my favorite vegetable - Denny Tunnell
12:45 PM on 04/20/2010
While I'm no expert, I disagree. Thirty years ago was 1980. Wasn't the first patient, some gay flight attendant, I think they referred to him as patient X, diagnosed with AIDS in 1976 and his activities traced to Fire Island ? Remember, it came about during the 200 year bicentennial celebration.
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01:46 PM on 04/20/2010
You're correct; but the disease didn't come into public awareness until the early '80s, when it was identified, and I think that's the point of reference for this post.

Which demonstrates how long it can take between when a disease crops up and when the response to it starts.

[sarcasm] Regarding HIV/AIDS, the gap couldn't possibly have anything to do with what population group was initially identified as suffering from the disease.[/sarcasm]
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HUFFPOST SUPER USER
VungTauVet
Mayonaise is my favorite vegetable - Denny Tunnell
03:18 PM on 04/20/2010
Hey Party, had to fan you for being knowledgeable and having my back. It was patient Zero. Whether Bushwhacky agrees or not, history does matter. Not many comments on this topic.
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HUFFPOST SUPER USER
William Munny
12:45 PM on 04/20/2010
Unfortunatly, AIDS is big business. I don't think the public has been given the full story on HIV/AIDS.
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kcinpa
Stop the insanity: PEOPLE before corporations!!!!!
01:03 PM on 04/20/2010
We were given the full story back in the 80's & early '90s, but that was a generation ago and people forget. We're back to "if it feels good do it," "Tiger Woods is the man!!" type mentality.
04:27 PM on 04/20/2010
I hate this theory. Anyone who has been paying attention knows the full story. I was an HIV counselor for 15 years and I have heard every ridiculous conspiracy theory ever dreamed up. Deal with the facts for a change.
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William Munny
04:32 PM on 04/20/2010
What you've heard and researched are two diffrent things.
12:23 PM on 04/20/2010
So, yes AIDS is horrible, yes we need a cure, yes - yes - yes...

However, AIDS is also almost 100% preventable and unless you are very unlucky and get it through a blood transfusion - or by birth - you sort of have to work at getting it...

You have to have sex with people who have AIDS and not use protection.

You have to share needles with someone else.

After 30 years - if people don't know how to lower their risk for getting AIDS by almost 100% - well - we can't really do much for those people...
04:30 PM on 04/20/2010
Do you have the same opinion about people who smoke and get lung caner, or people who overeat and become diabetic or get heart disease? How about people who have wine with dinner and then drive.
See my point?
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HUFFPOST SUPER USER
The Albany Kid
From the 518 to the 651
12:15 PM on 04/20/2010
Let's hope and pray that the bushmeat trade (which has reached NYC) does not lead to another HIV/AIDS-like health crisis in the USA.

http://news.discovery.com/animals/bushmeat-diseases-entering-new-york.html
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rain33
be bold & strong as a independent person
12:10 PM on 04/20/2010
AIDS is a serious disease for too long. i think that we need to find cures for AIDS/HIV, Cancer, Diabetes etc because people cannot continue to suffer anymore. i stress to my children that if you are going to have sex, use a condom and be careful who are you sleeping with. men pass the disease 10 times to women yet women are more likely to become HIV positive. knowledge is the power. i would save myself and take all precautions to fight any sexual transmitted diseases including HIV because my life is very precious to me.
11:43 AM on 04/20/2010
Oh AIDs Is so 1990s Cancer is so in right now.
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Lance Jones
Griot
11:38 AM on 04/20/2010
As someone who grew up and currently works in Washington D.C., I'm glad this issue is beginning to receive the press it needs. HIV/AIDS is truly an epidemic here.