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Joseph Nowinski, Ph.D.

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When Does Grief Become Mental Illness?

Posted: 01/26/2012 12:38 pm

Imagine that you are a mental health professional and you meet with a new client who describes the following symptoms: "I haven't been sleeping well. I don't have much of an appetite and I've lost a few pounds in the last month. I feel sad most of the time and once a day I find myself crying. Basically it's all I can do every morning to get myself out of bed and start the day."

What would be your "diagnosis" and "treatment plan" for the above person? In reality, both would depend in large part on the context in which these symptoms appeared. If the person reporting them told you that a child, spouse, or parent had died of cancer a few weeks earlier, chances are you would conclude that this person was experiencing grief. On the other hand, if these symptoms were something that this client had experienced several times before, and for no apparent reason, you might suspect he or she was suffering from a depressive disorder. Depending on this context, your ideas about the most appropriate "treatment" would almost certainly be very different.

The Jan. 25, 2012 edition of the New York Times includes an article titled "Grief Could Join List of Disorders." The subject is a pending decision by the American Psychiatric Association, in the forthcoming revision of its Diagnostic and Statistical Manual (DSM) to eliminate the current exclusion of grief as a result of the loss of a loved one from the diagnosis of depression. In effect, a grieving person who exhibits the above symptoms for as little as two weeks or more may soon qualify for a diagnosis of "major depressive disorder." This amounts to opening the door to "diagnosing" what until now has been thought of as normal grief as a serious depression, and therefore treating it as such.

In defense of this pending decision, some have argued that bereavement and depression have much in common; therefore they should be treated in the same way (including, presumably, using medication). Others argue that some grief-struck individuals find themselves going over the edge into total dysfunction or suicidality. This may be the case, but the fact is that these individuals have always been the exceptions, not the rule. Given the way our culture has responded to problems such as anxiety and difficulty sleeping, it is highly likely that we stand poised to try to eradicate grief on a mass level through medication. Keep in mind that in today's world of defensive medicine it's a short step from thinking that someone may be experiencing some symptoms of depression to believing that they must be given medication for it.

In her book, The Year of Magical Thinking, Joan Didion chronicles the many "symptoms" an individual may experience when they are grieving the loss of a loved one as she records the year following the death of her husband and closest confidant, the writer John Gregory Dunne. To be sure it is a raw, unvarnished, and wrenching account. At the same time, it is clearly bereavement that she is describing. We must respect it for what it is and allow individuals the dignity of grief.

My colleague Dr. Barbara Okun and I have coined the phrase "the new grief" to refer to the process that families experience after a loved one has been diagnosed with a terminal illness. By this we do not mean to imply that grief has ceased to exist, or that bereavement has fundamentally changed. On the contrary, as long as we as humans are able to form interpersonal attachments we will grieve those attachments when they are lost. Our attachments enrich our lives, and in a sense they define who we are. When we lose someone we love, we lose a part of ourselves. To say that it is "abnormal" to grieve such a loss for longer than two weeks seems to fly in the face of what it means to be human.

What we have noted from the families we have interviewed is that some family members begin to experience some of the symptoms noted above even before their loved one dies. This appears to happen in what we call the upheaval stage of family grief. It seems to be the result of the stress that a prolonged terminal illness creates not only on the terminally ill patient, but on his or her family members as well. The protracted process of dying that is the result of modern medicine's ability to arrest terminal illness and stave off death creates unprecedented stresses in families seeking to cope with this protracted crisis. One concern we have is that these "symptoms" may also be erroneously "diagnosed" as a major depression, and therefore treated out of the context in which they occur.

An Alternative to Diagnosing Grief

The National Center for Complementary and Alternative Medicine is a repository of information and research findings on the effectiveness of what are commonly called "complementary" treatments. Increasingly, patients with cancer and other potentially terminal illnesses are turning to these treatments, not in place of medical care, but in addition to medical care. These treatments include meditation, yoga, and massage, among others. An increasing body of sound research (see the NCCAM site) is indicating that these treatments can reduce stress and improve the overall quality of life of these patients. If practiced regularly they may even extend the life of these patients. What we would recommend is that not only patients, but their loved ones as well, avail themselves of these complementary therapies as soon as possible. Doing so will not by any means prevent grief, but it may help to ameliorate the chronic stress that comes with coping with terminal illness, and which can can complicate the grieving process.

We should continue our cultural tradition of recognizing grief as a normal (and expected) human experience. It may vary in intensity and duration from person to person, and also depending on the nature of the loss. If anything, the grieving person may benefit from support and sympathy, rather than being diagnosed as mentally ill and treated as such.

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10:49 AM on 01/28/2012
For a good read see Loving and Leaving the Good Life by Helen Nearing. Thanks to all who chose to join the conversation. Dr Joe
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Madame Tiffany
05:56 PM on 01/27/2012
All maladies that the mind deals with have a mental health basis. As a teacher of mental wellness, it is important to understand that we have all experienced pain, sorrow and heartache. Some of us bury it, some work through it and others ignore the very nature of its existence. It is crucial to understand that we are all on a continuum which means you are on either side of the spectrum of mental wellness or mental illness, if you will. Which indicates that we are all touched by some issue that lends to some problem at one time or another. When one ignores the issue at hand it can mushroom into a larger than life problem. The longer it lingers the more momentum it picks up causing more evidence of its very existence.
The fact that it is being considered as a "new" addition to mental ailments only makes one speculate that there is money behind the thought! Can you guess where that will lead?
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gin11153
10:23 PM on 01/26/2012
This article helped me a lot and I am going to save it. I have had a really hard time since I lost my beloved Dad 7/7/10. My husband gives me no sympathy any more. It's good to know from the article that grief lasts differently in people and yes, my dad took a big part of me when he went to Heaven, leaving me with feelings of suicide at times. Many I know don't understand
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Madame Tiffany
06:06 PM on 01/27/2012
I am so sorry that you still miss him so much. It often gets worse with time rather than better. Funny how people have a " get over it " attitude when it comes to personal sadness.
So then why is it that we morn 911 every year and people get that? Why do we remember our Vets? Because they are important to us that's why:-) It is because we don't want to forget! We want to retain the memory of those who were stolen from us.
Your sorrow is your own and you are entitled to it. However, don't let your sorrow run your life in the direction of losing what you have. Remember your Dad and honor him with your life. Suicide is never the answer, though we often think it will give us peace. True peace comes from knowing that you have a purpose, which I am sure is what your Dad would want you to fulfill. Set aside a day to remember him, and then live every day knowing that you are still here for a reason:-)
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gin11153
09:06 PM on 01/27/2012
Thank you for your reply-very kind of you. I would not hurt myself because I have 4 young adult kids who need me.
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VA Jill
I'm not perfect and neither are you
07:35 PM on 01/26/2012
One of my dear friends is currently in this horrible place. Her husband died 5 months ago and she is completely sunk in grief and depression. I feel helpless because I can't do anything for her......she's in Canada and I'm in Virginia. The mental health system doesn't seem any better there than it is here.
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french queen13
my beloved is mine and I am his
05:55 PM on 01/27/2012
If I may say so, she needs love and support, even if it's a phone call or letter from those who can't reach her - not the attentions of shrinks who'd try to tell her she's ill. Grief can take a long time to even begin healing.
11:41 AM on 02/19/2012
My husband died on May 31,2010.
Life after a great marriage of 37 years becomes surreal.
Just now am getting a bit better.
Really wanted to die!
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Madame Tiffany
06:14 PM on 01/27/2012
As a mental health worker, I have worked and networked on an international level. I am sorry to tell you that the mental health systems are ALL broken! While many are working to change that, the facts are the facts. My best advice is that she find a good therapist or coach to guide her and listen to her. Tell her to journal her pain if she can. Be the ear when you can and tell her to help someone else who is in need. Volunteering is a tremendous healer. It takes the focus off of the situation and the painful thoughts. And while time can be a healer, it is important to know that there is a void that can never be filled, but can be remembered with an adoring love.
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french queen13
my beloved is mine and I am his
06:51 PM on 01/26/2012
This whole 'grief for two weeks = mental illness' thing outrages me. Who came up with this idea - aliens? Robots? Psychopaths? It suggests minimal understanding of human nature and, I suspect, a complete lack of empathy. Have these people never grieved? Are their minds so inadequate, their emotions so atrophied, that they cannot even imagine how devastating and long-lasting the NATURAL reaction of grief is? This is indefensible. Nobody who tells the grieving that two weeks is their upper limit before they slide into "mental issues" territory is fit to be let loose near anyone vulnerable.

The study of grieving over those with long-term illnesses may be new, but the process isn't. It's not just modern medicine that has made for long-drawn-out deaths. Tuberculosis is a good example of a disease that took years to kill - but kill it did, and people knew it, and grieving started well before death. Of course people start grieving when they know, or fear, they're soon to lose someone they love, of whatever species. I grieved for my Katie-cat more in the two weeks between her cancer diagnosis and her passing than I did afterward, but the difference there was that she was in contact with me only two days after her crossing, and that eased my grief a great deal. But then I suppose these rigid, everyone-the-same so-called physicians would think that was some sort of mental illness too ...
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Madame Tiffany
07:04 PM on 01/27/2012
I agree with you! Two weeks...are they kidding? But then when you look at the bigger picture and see those catch words like "medicine" and "depression" you begin to see where this is headed. It moves more people into the world of BIG Pharmaceutical Companies, and an expansion of drugs!

As a mental health worker I have seen more and more people depend on drugs rather than their own abilities to move on. However, that being said the propaganda is so moving and enticing ,anyone in any time of emotional pain would be fair game! No one wants to suffer! So now adding "a new ailment" will reinforce the distribution of MORE drugs.
08:28 PM on 01/27/2012
I couldn't agree more. Like you, the first thing that came to mind while reading this was: this is about money. Create a new disease and treat it with drugs. It makes me very angry.
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french queen13
my beloved is mine and I am his
06:45 PM on 01/31/2012
So true. And you wonder if greed is the only motivator with this everyone-must-be-medicated push, or if there's a dose of cowardice in there as well - are the pushers afraid of sorrow? Or is it a wish to control everything, to have a sort of Brave New World situation with everyone on their happy-smiley drugs? Be convenient for the 1%ers and the politicians they own, wouldn't it? The hoi-polloi Prozac'd into smiling submission, no uppity protests ...
03:39 PM on 01/26/2012
Grief needs to be recognised as a mental health issue depending on the circumstance, deepened and prolonged grief can often arise from unexpected deaths, I am not a big fan of throwing pills at people with depression but people need counselling and coaching to help get some meaning back to their lives.
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Madame Tiffany
04:43 PM on 01/28/2012
I so agree with the premise that people need counseling and coaching, as life coaching is my field. However many people seek doctors first. What do doctors do they diagnose and write scripts. When you go to a car showroom, you know that you are not going to have your car worked on there, that is not their gig. They are there to sell cars. Such is true of doctors, they are not there to counsel. Even psychiatrists don't counsel anymore (for the most part...very few do)! There are many good doctors, some of which are my good friends, however the word must be: Reality is....pain must be worked through....meds only cover the issue ... or on a positive note can allow a person to stabilize to work through the issue at hand. I know so many people on up to 10 drugs for mental health...some for depression and anxiety. These are people who are not diagnosed with serious persistent mental illness. That is out of line! Those doctors have given cocktails of drugs to counter the affects that one drug has on another, and these people are walking zombies. I am not anti medication...I just think prudence and discretion needs to be exhibited. Another reason I like alternatives.
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Wizard33
02:13 PM on 01/26/2012
My ten year old daughter died in her sleep four months ago. I can't express in words the depth of grief and sorrow that I feel still. I know someday I'll find a way to deal with it. It's impossible to describe how sweet and loving this little girl was. I don't know what other people feel in this situation but she was my reason for being when she was here and her loss was like losing your heart yet still living on. There's no comparing this type of sorrow with clinical conditions.
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MKWewer
03:10 PM on 01/26/2012
I'm so sorry for your loss. I lost my twin boys at 22 weeks. You will never be the same, this is your new reality but I promise, it won't always hurt this bad. It will hurt but the pain will be less sharp - I just can't tell you when that will be. Be kind to yourself. Fall apart in the grocery store, scream, wail, hate the world, do whatever you need to do but please don't hold it in. I'm sure you've found a support group but if you need someone to talk to, this is a good organization. http://kindermourn.org/parentsgrieving.html
Take care.
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french queen13
my beloved is mine and I am his
06:40 PM on 01/26/2012
Wizard, I am so sorry for your loss ...