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Kevin Swan
Kevin Swan was diagnosed with ALS in February of 2012 and founded A Life Story Foundation in April of that same year. Before focusing 100 percent of his time on finding a cure for this horrible disease, by way of storytelling, he was the Director Of Communications for SingleHop, a rapidly growing Infrastructure Service Provider located in Chicago.

Prior to moving to Chicago, Swan spent almost seven years in New York City. The first half of his tenure was spent on Madison Avenue (working in advertising, not panhandling) and the second half was spent creating and managing, what the New York Times called a “fledgling” television production company.

Swan’s tenacity and ability to always see the positive side of every situation are at the core of the foundation’s mission to completely abolish disease.

Entries by Kevin Swan

The Summer Sequel You MUST See!

(0) Comments | Posted July 21, 2015 | 8:15 PM

I have always been a movie guy. As long as I can remember, the entire movie-going experience has been a source of excitement and escapism. When I lived in New York I had a Saturday morning ritual: 1 medium coffee - milk and sugar and 1 chocolate glazed donut from...

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A Breathtaking View 100 Ft Below Ground

(3) Comments | Posted May 19, 2015 | 6:08 PM

After living in New York City for almost 7 years, I feel like I am very familiar with most neighborhoods and certainly the many iconic buildings throughout Manhattan...or so I thought.

I recently visited the city with my girlfriend, Elizabeth, and her 14-year-old son, Cullen. Elizabeth and I have been...

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I Am Not Free to Move About the Cabin

(1) Comments | Posted February 23, 2015 | 7:15 PM

We have all been there before. White knuckles wrapped around the steering wheel, constant glances at the clock, turning down the radio while you go over your mental packing list. That frantic ride to the airport, the one that began fifteen minutes later than originally planned. We love that moment...

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Just a Lil' Potty Talk

(0) Comments | Posted January 21, 2015 | 3:39 PM

Anyone who is familiar with ALS knows that it is tenacious and a master thief. It robs its victims of the physical use of their bodies, but maybe even more damaging is how it rapidly steals away elements of life like privacy and dignity. Once the initial shock of hearing...

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The Most Deserving Sportsman of the Year

(0) Comments | Posted December 3, 2014 | 12:52 PM

This summer, baseball celebrated the 75th anniversary of Lou Gehrig's "luckiest man in the world" speech. 75 years since the man who never missed a game was mysteriously afflicted by Amyotrophic Lateral Sclerosis, a disease that few had heard of and even fewer understood. 75 years in which very little...

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Wheel Life Changes

(0) Comments | Posted November 18, 2014 | 12:19 PM


There are so many scary life experiences and dramatic changes that lie ahead of anyone diagnosed with ALS. When you are at your earliest symptom, which may be as innocent as a twitching finger, the idea of not being able to walk simply...

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5 Reasons the Ice Bucket Challenge Will Find a Cure

(0) Comments | Posted August 22, 2014 | 10:45 AM


5. We are having our Magic Johnson moment. When the basketball legend announced that he was HIV positive in 1991, he instantly brought the disease into every home in America. Overnight, everyone knew someone with HIV. The ice bucket challenge does not have...

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Ice Cold for a Cure

(1) Comments | Posted August 15, 2014 | 2:20 PM


I have to admit that I was not a believer. Our vice president sent an e-mail on July 22nd explaining this crazy idea about people dumping ice cold water on themselves for the sake of awareness, I filed it under the category...

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A Tube Job

(0) Comments | Posted June 4, 2014 | 5:56 PM

Remember when you were a kid and before a long road trip your parents would say "do you have to go to the bathroom?" Your answer was almost always a quick "no" even though the moment after they asked, you felt a instant urge. We all know the feeling, we've...

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Sense and Sensitivity

(0) Comments | Posted May 21, 2014 | 5:27 PM

I fully understand the challenges ahead of my team at A Life Story Foundation as we try to raise awareness and create action around the horrible disease that is ALS. This challenge was never clearer than a couple of weeks ago when I was surrounded by, of all people, medical...

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Cold Hands, Warm Hard Drive

(0) Comments | Posted April 23, 2014 | 6:09 PM

As this tenacious disease continues to attack my body, I am forced to rely on others for so much of my day-to-day life. Accepting this was extremely difficult in the beginning but I have learned to not only accept it, but embrace it. I now find myself reliant on humans...

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Make My Day, Machu Picchu, The Finale

(2) Comments | Posted August 20, 2013 | 4:55 PM

When you're on the side of a mountain in the middle of a range chock full of them, dusk turns to darkness in an instant. We were on hour six of our four hour hike, our large group of 25 people, was now two or three smaller groups, walking the...

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Make My Day, Machu Picchu Part 2

(0) Comments | Posted June 17, 2013 | 4:05 PM

It was another very early wake-up call on very little sleep. And while we knew we had an extremely long day ahead of us, at the time, we had no idea it could have been our last. Our group, including the film crew and Peruvian porters, numbered around 28 people...

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Make My Day, Machu Picchu

(0) Comments | Posted June 4, 2013 | 1:24 PM

What started as a very simple, almost cordial inquiry via Twitter in mid-February landed me strapped to an all-terrain wheelchair, clinging to the side of a Peruvian mountain and fearing for my own life just six weeks later. I remember being at dinner with my parents and mentioning the message...

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Spring Break Meets Oregon Trail

(0) Comments | Posted March 29, 2013 | 3:56 PM

Spring skiing, there is nothing like it. Especially if you're talking about spring skiing in Colorado. It is that perfect time of year when, if you're lucky, you can grace down the side of a mountain in a t-shirt and sunglasses. Well, and pants, boots, and skis, of course. The...

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A Foodie Finds Helping Hands

(2) Comments | Posted March 27, 2013 | 6:53 PM

The perfect meal: I don't know if I have had it, or if I were to design it, if I would know what to include, but I can tell you with absolute certainty that dining out is and always will be one of my favorite pastimes. Apparently the love of...

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A Cure With Some Magic and Jordan

(1) Comments | Posted March 1, 2013 | 11:03 AM

The decision was made: something had to be done. There was no way I was going to sit by and not make some noise. It had only been a couple of months since I had been diagnosed with ALS, but I was constantly reminded of how few people have actually...

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My Body Is a Wonderland

(0) Comments | Posted February 14, 2013 | 3:04 PM

Every morning I walk to my local Starbucks for my beverage of choice -- which varies from day to day, but whatever it is, it's iced, so I can use a straw -- and find a warm place to sit and people watch.

It is obvious with every new caffeine-seeking...

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Former Ad Man Turns His Disease Into His Next Client

(1) Comments | Posted February 7, 2013 | 4:10 PM

As if being diagnosed with a terminal disease (for the record, I have no intention of letting this beat me) isn't bad enough, it is a disease that the general public has never heard of or knows very little about. I can honestly admit that I never had feelings of...

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Nine Years, Three Concussions, Zero Regrets

(0) Comments | Posted February 4, 2013 | 3:49 PM

No press is bad press when it comes to creating awareness and action around a disease as devastating as ALS. After the conclusion of the AFC championship, I was thrilled to see O.J. Brigance, a former linebacker for the Baltimore Ravens, not only in the locker room to...

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