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Lee Woodruff

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Who Will Care For The Caregiver?

Posted: 11/11/11 07:56 AM ET

On April 19, 2005, Debbie Schulz of Friendswood, Texas, got the call every parent of a service member in Iraq and Afghanistan dreads. Her child had been wounded. When she hung up the phone, in shock, all she knew was that her son was considered to be "VSI", an acronym that she would later learn meant: "very seriously injured."

More than 48 hours later Debbie began to learn some of the details. Her beloved eldest son, Steven Schulz, a Lance Corporal in the United States Marine Corps, had been patrolling Fallujah, Iraq when it happened. His unarmored humvee was hit by a roadside bomb, a mortar shell cleverly built into a concrete curb in order to elude detection. Insurgents remotely detonated the device and within the fraction of a second, thousands of pieces of shrapnel penetrated the vehicle. One piece of metal shrapnel flew into Steven's face near his right eye and lodged in his brain. Doctors told the family that he had sustained a severe traumatic brain injury and devastating damage to his right eye. Steven was paralyzed on his left side, lost most vision in his right eye as well as peripheral vision in his left.

Within 72 hours after their son's injury, Debbie and her husband Steve rushed to Steven's bedside at the National Naval Medical Center in Bethesda, Maryland. Packing only a small suitcase, Debbie could never have known that she would not return to her home in Friendswood for nearly seven months. Steven was in intensive care for 32 days and in June of 2005 he was moved to the Veteran's Administration Hospital in Tampa, Florida. In order to be at Steven's bedside around the clock, Debbie initially took a leave of absence from her job and ultimately had to resign her position, as so many in this situation do. Debbie had a new job--that of caregiver - an undefined role for which no one receives training. And yet more than 45 million of us in this country have stepped into those shoes.

Debbie Schulz

At the VA Hospital in Tampa, Debbie found herself alone and without a strong support network nearby. Her husband needed to return to Texas to get back to work and without Debbie's supplemental income, the family began to dig into retirement savings in order to continue to make ends meet. Finally, she demanded that her son be moved to a treatment facility close to home so that he would be able to re-integrate into their family and community.

Once there, Debbie and Steve began the long, frightening journey to wait and watch their son recover. The first step was healing from the acute wounds and then they began the slow and painstaking crawl of daily rehabilitation to try to regain as much of Steven's former self as possible. But as time passed, Debbie realized that if they only "waited and watched" rather than strongly advocate on their son's behalf, they might never see Steven reach his potential. They became determined to see some resemblance of the young, bright-eyed boy they had raised.

Steven is the eldest of three children. Steve was a national sales manager and before her son's injury, Debbie had been a thriving and successful local high school teacher. Like most families in America, theirs was a life full of blessings combined with its share of challenges and rough patches. At first, Debbie was apprehensive when her son joined the Marines, but Debbie and Steve were proud that their son had chosen to serve. Steve had even founded a non-profit called "Supplied to Survive," that lined up much-needed items such as GPS devices, rifle scopes, thick gloves, etc. for shipment to the troops in Iraq.

Debbie Schulz
Like so many caregivers, Debbie has led the charge on the family's journey to recovery and she has managed to keep her family together in the process. Debbie fought very hard to receive state of the art cognitive rehab and other rehabilitative therapies at a civilian hospital in Houston. And she continues to navigate through the red tape of our governmental system. Due to her efforts and the hard work of Steven himself, he has regained some use of his left leg, uses a walking stick and can perform most of his daily living activities. Steven is integrated into the community, volunteering and taking classes locally.

But here is where Debbie exemplifies so many caregivers I have met. She didn't just stop with her own son, as much as she had on her plate, Debbie went on to ensure that other service members would receive the same care she had fought so hard to win for her own child. She has worked tirelessly and traveled with Steven to Washington in order to fight for better funding and expansion of benefits and entitlements for injured service members and their families. Her dedicated efforts were instrumental in ensuring that patients had opportunities to receive treatment close to their homes and as a result, changed the way the Houston VA partnered with civilian treatment facilities to treat traumatic brain injury patients.

As a mother, a wife, and the center of the family by nature, Debbie holds it all together, some days, she would admit, just barely. Like so many female caregivers especially, the burden of care for their two other children and the household falls largely on her. The toll on a family is not to be underestimated. Debbie is the thread that keeps it all together and she pulls it taut in order that their home life doesn't unravel. It is an effort that continues without a break, without a vacation from stressors.

Debbie is my definition of a true caregiver, compassionate, kind, articulate, educated, passionate, and a selfless person who has given every ounce of energy to improve her son's outcomes and those of other injured service members. With Debbie's constant care and dedication, Steven has worked hard to become more independent.

In the words of her son: "My mom is the strongest, smartest woman in the world" -- she has and will continue to carry him through the tough times.

Each Veteran's Day we spend a great deal of effort honoring those who have served. And rightly so. But this year let's also honor the loved ones here at home, like Debbie Schulz who serve every day in unsung roles. It is up to every one of us to support, care for and assist those caregivers. You can learn more at www.remind.org.

 

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On April 19, 2005, Debbie Schulz of Friendswood, Texas, got the call every parent of a service member in Iraq and Afghanistan dreads. Her child had been wounded. When she hung up the phone, in shock...
On April 19, 2005, Debbie Schulz of Friendswood, Texas, got the call every parent of a service member in Iraq and Afghanistan dreads. Her child had been wounded. When she hung up the phone, in shock...
 
 
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HUFFPOST SUPER USER
Ebeth Martine
10:30 AM on 12/15/2011
Many of our wounded will need to live in Assisted Living when their caregivers are gone or no longer able to take care of them. Congress needs to have investigation on why assisted living costs so much. What you get is essentially a motel room and 3 meals a day. You may get your room cleaned (poorly) once or twice a week. If you need transportation, assistance with meds, etc., you have to pay extra. The 24 hr care is usually some minimum wage person who is on the phone with friends (or out back making out with a boy/girl friend) and who is rarely around if you need him/her. What a scam. There are huge corporations whose livelihood is hundreds of assisted living facilities charging each resident thousands a month... for nothing!!! Instead of concentrating on Medicare and Social Security, Congress needs to look at why assisted living is so expensive!
12:42 AM on 11/17/2011
Debbie is a true "Steel Magnolia"...What the story doesn't tell is that Debbie's husband of nearly 40 years went missing in March of this year. He was found in September and had taken his own life. Not once did Debbie waver from keeping her beautiful family together and caring for Steven, during an extremely trying time...If that's not a heroine, I don't know what is. Thanks Lee for the very nice tribute to my Sister.
02:06 AM on 11/15/2011
Excellent article
09:55 PM on 11/13/2011
Thank you for writing this article! Though I'm not a caregiver to the same degree as Debbie & others, I can appreciate much of what she's going through because of my husband's medical situation. Thank goodness for the V.A.! Without it, thousands of families would have to file bankruptcy due to medical bills. I know what a tough job it can be, & can only imagine how it could be if the patient were one's own son. I hope my fellow caregivers are uplifted after reading the article.
iridium53
Semper Fi
07:37 PM on 11/13/2011
The caregivers are vital.

One might ask, however, what it is about this country that let's people feel so free about sending our young men and women in harm's way - and not holding our individual Congresspersons and Senators accountable for their lack of support for these individuals?

Why is it that our wounded warriors must go out and beg for care?

What is it about Americans that lets them feel so unappreciative of the defense they get from warriors that they can't pay for the care of these individuals when they are wounded and return?

What is is it about Americans that lets them feel so unappreciative that they cannot pay to help these warriors get jobs when they return?

What is it about Americans, like those in South Carolina, that would vote for DeMint, who will vote for corporate jet tax breaks, but not corporate tax breaks for hiring veterans?

What is it about Americans, like those in Arizona, that will vote for McCain and Kyl - who will not vote to pay for proper veteran care?
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blinkthink
Tax Wall Street Trades Now
03:53 PM on 11/13/2011
The caregivers like Debbie are indeed the unsung heroes, taking on tremendously important roles. God bless them and give them extraordinary strength.

What many may not realize is their was legislation put forth that would give the caregivers of traumatic brain injuries some respite. It was voted down in Congress, limited by the "cost cutters", so proud of what they do, after this country crashed on their watch in 2008.

If a country refuses to take care of it's veterans and their families, then it has no reason to go to war, EVER, in my fervent opinion.
03:28 PM on 11/13/2011
Huge commendation and applause to Debbie! The role of caregiver is not an easy one as the article clearly states. Anyone who serves another as a caregiver is to be commended. Debbie reaching out and helping others is inspirational. This story is moving. I wonder how many other spouses and parents are caring for injured military relatives. Some have probably been doing so in one way or another (e.g. psychological, physical, financial) for decades. Thank goodness for these loving, caring people.

Denise
http://www.writemoneyinc.com
01:53 PM on 11/11/2011
My view has always been that the ones left behind and that care for the warriors, have without a doubt the toughest job. God bless my family and loved ones and all the lonely nights. They are the heroes.
HUFFPOST SUPER USER
Anne Rutherford
01:24 PM on 11/11/2011
My husband served in the Amry in Viet Nam - much later diagnosed with MS. I have found that in large metro areas there is more help, but if you live rurally, there is very little. You get inventive - like having roommates who are willing to help, you change your job schedule so you can make all those doctor appointments and where there aren't any directions, you make them up the best you can. I know for most caregivers, we don't want much except to be acknowledged. Finally, in some states there are tax credits for what we do, but that's about it. It is a labor of love, and the journey is amazing and teaches you so much about being present where you are, about appreciating what you have. I thought I understood what unconditional love was when I had children, but this has taught me so much more. I wouldn't trade this, but I wouldn't have asked for it either. Want to help? Offer to keep the person needing care company so that the primary caregiver can take a few moments to get a haircut or windowshop or see a movie alone. Bring coffee and a muffin and keep them company one morning (but please call first). Ask us how we feel. It's not hard.
03:30 PM on 11/13/2011
Bless you for being their for your husband. Might seem like a given, but not everyone stays. I'm sure he appreciates your love. What a blessing!
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LynneE
A not-so-elite liberal.
12:12 PM on 11/11/2011
As a nurse and a mother of an active duty soldier who just returned from Afghanistan, my heart goes out to the Shulz family. Navigation through our present healthcare system is difficult at best, and deadly at worst. Debbie's sacrifice for her son is heart-wrenching. I wish them all the best, and hope for his recovery.

Get us out of the Middle East!
10:39 AM on 11/11/2011
Compare and contrast these people to those who willingly do things which they understand are dangerous and destructive to the country as a way to improve the bottom line. Compare them to those who provide legislative favors in return for robust campaign contributions. Indeed, many of these would/will not support spending that would make the lives of these very wounded heros and their families easier, because it might mean raising the taxes of the most powerful and influencial a few percent. All our nation's enemies are not abroad.
11:39 AM on 11/11/2011
Absolutely.

F&F
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Mustang Marine
I'm a cheap date, but an expensive pet.
09:31 AM on 11/11/2011
YES!! YES!! I am a retired Marine and disabled veteran. My wife has been my biggest advocate and supporter throughout. But there is little or no support for her needs in this process. I have often told people that it is harder on her than it is on me and when I do I get funny looks from those who do not have first-hand experience. Her intelligence, common sense, and commitment has saved my life on several occasions. And I tell her so frequently. By all means, these volunteers (they sure ain't paid!!) deserve our recognition. Semper Fidelis, indeed!
11:41 AM on 11/11/2011
Love that strong is a gift.
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LynneE
A not-so-elite liberal.
12:10 PM on 11/11/2011
All the best to you and your wife on this Veteran's Day. Thank you both for your service to all of us.
03:30 PM on 11/13/2011
Yes! Blessings to you both!
09:24 AM on 11/11/2011
Thank you for this article. Please remind others that caregivers are also Fathers and Wives. My Mother cared for my paraplegic Dad from 1967 until her death in 1999. My Dad was severely injured while in the U.S. Army and she became his nurse, changing catheters, bathing him, administering his medications and sitting by his side day after day whenever he was hospitalized. She learned to change bandages, repack pressure sore wounds, irrigate wounds, etc. She then died, from exhaustion and emphysema. Dad died 13 months later. He would not have lived as long if it were not for her devotion and care.
03:33 PM on 11/13/2011
Never cared for anyone who was injured in the military. We did care for my dad for several months before he transitioned. If you get into a routine and have help it's manageable. My heart goes out to people who caregive for another person single-handedly. Everyone needs a break and to get out and do things they enjoy. It's also amazing that more training isn't provided for caregivers. These folks are resilient!

Denise
http://www.writemoneyinc.com