Liane Kupferberg Carter’s articles and essays have appeared in more than 40 publications, including the New York Times, the Chicago Tribune, Newsday, Parents, McCall’s, Cosmopolitan, Glamour, Skirt!, and many literary journals. She is a columnist for Autism After 16, and is working on a family memoir. Connect with Liane on Facebook and Twitter.
When I first heard that autistic people didn't have empathy, I assumed my son Mickey must be an exception.
He was not yet 2 when the developmental specialist told us all the things our child would never do. Pretend play. Eye contact. Empathy. I remember sitting on the floor...
There's no way you'd spot us in a crowd. We don't have a secret handshake. But somehow, special needs parents always manage to find each other. Maybe it's that unmistakable look of exhaustion and resolve many of us wear. Whatever it is, I've been part of this family...
Remember that saying from the 1970s, that the personal is political?
As the parent of an autistic 20-year-old son, I know what my own family is struggling with. The need for employment. Housing. Health care. Insurance. Long-term community-based services and supports. Education. Transportation. Research. Improving the quality of life for autistic children and adults is my top priority.
I'm not telling you who to vote for. I'm not telling you who I'm voting for. Because this is a bipartisan issue. We need politicians who will lead, not follow. Politicians who will actually develop and co-sponsor bills, not ones who just show up for photo ops during an election year. They need to know just how urgent these issues are to the autism community. They need to understand that funding our families' futures isn't discretionary; it's a necessity.
On Friday, Sept. 28, both the Obama and Romney campaigns will address the nation's disability issues, including autism, at an election forum between 12:30 p.m. and 3:30 p.m. EST. (You can watch the webcast by registering here.)
It's up to our whole community to remind our politicians that our voices count. We need programs, not just promises. We need to know how our politicians intend to make a difference for the autism community.
Because my 1 in 88 can't wait. He needs a plan, and he needs it now.
For more information on what you can do to get involved, please visit Autism Votes.
This week began with World Autism Awareness Day, created five years ago by the group Autism Speaks as a locus for fund-raising and spreading the word. It comes at the start to National Autism Awareness Month, which was created by Congress back in the...
I'm a middle-aged mom and I love Facebook. And no, I'm not playing games like Farmville, Kingdoms of Camelot or Mafia Wars. I love it for networking....
She was meant to be a companion for our cat Dizzy. She looked identical. The same kohl-rimmed eyes. The same silky, silver fur. The same sweet face. She was Dizzy's Doppelganger.
The blogosphere has been buzzing in outrage recently over controversial author James Frey's newest publishing venture, Full Fathom Five, a fiction factory that pays a stable of young writers just $250 for commercially viable young-adult novels, and...
It's a devastating diagnosis for a parent to hear. But it's a one-two punch when your insurance company then refuses to cover the critical, medically necessary therapies your child desperately needs.
When our then-2-year-old son was diagnosed with a developmental disability 16 years ago,...
3. Rent a vacation house from people who don't have kids and don't like kids. Rent a house from people who are fond of model ships in bottles, glass sculptures, and white, wall-to-wall...
On April 2, we will celebrate the third annual World Autism Awareness Day. But there is a war raging within the autism community.
Parents are still pitted against each other over the vaccine issue, despite the fact that numerous well designed scientific studies have failed to show any...
The letter was terse. Our health insurance company would no longer cover our son's epilepsy medication unless we switched from the brand name drug to a generic form. They would re-authorize covering the brand name medication only if he took the generic drug for a month and had "a...
I can't be faithful to just one fragrance. I have serial love affairs; no signature scent for me. This morning, I own thirty-something bottles of perfume and 103 sample vials on a dedicated closet shelf. And that doesn't include the bottles...
The phone rings late one afternoon as I am chopping salad. Cordless receiver wedged between my shoulder and my ear, I line up a row of cherry tomatoes on the cutting board.
"Hi, my son Jeremy is a volunteer in your sports program," a woman who identifies herself as "Jeremy's...
(10) Comments | Posted May 17, 2013 | 5:24 PM