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Loraine Boyle

Loraine Boyle

Posted: November 6, 2009 11:27 PM

In her book, "The Year of Magical Thinking", Joan Didion defined for me what it is to lose your husband. Her book helped get me through the hell of losing my husband of 29 years, Peter Boyle, who died nearly three years ago of an incurable blood cancer called myeloma.

Certainly I took time to work though the grief with my family and friends, but I also felt the need to help others just as Joan had done with her book. I'm not the type to hide my head under the blankets. Cancer is unfair and brutal. I wanted to get back at the deadly disease that robbed me of my soul mate.

Years ago when I first met Peter in Los Angeles, Joan Didion and her late husband John Gregory Dunne invited us to dinner at their Malibu home. While she chopped vegetables, I told her that I was bored with being a rock'n'roll writer but didn't know what I wanted to do next. She said take a break, do something else, learn to cook. You'll figure it out.

So I did take cooking lessons in Italy with the amazing Marcella Hazan. Hanging out at rock clubs and interviewing musicians became a thing of the past. Peter and I settled down and had two beautiful daughters. But I had to do something more and that something was being active in my local community and at my daughter's schools. I focused my energy on running fund-raisers and serving on boards in my local New York community.

When Peter and I first heard his diagnosis of myeloma in 2002 we didn't even know what it was. A relatively rare blood cancer, it's on the rise due in part to our exposure to environmental toxins. Firefighters, for example, have some of the highest incidence of the disease as do people living in the smog filled Los Angeles basin. In the past the disease affected older people but now myeloma is showing up in a younger ones.

When Peter finally lost his fight, I believed that I had to keep up the battle against myeloma. The International Myeloma Foundation's president Susie Novis had sustained us with her knowledge and compassion throughout the course of the dread disease. Its chairman, renowned researcher, Dr. Brian Durie treated Peter. Myeloma killed Susie's first husband so she became my sister in sorrow. When she asked, I accepted her challenge to help the IMF find a new way to raise money for research and patient support.

We decided to replace the usual boring rubber chicken benefit dinner with something in keeping with Peter's spirit, a comedy show. Although Peter played monsters and villains in many movies, his roots were in improvisational comedy. Laughter to fight disease made sense. Peter's old friends, colleagues and admirers volunteered to perform onstage at the Wilshire Ebell Club and Theatre in Los Angeles. This November 7 as always our dear friend Ray Romano takes up hosting duties. The 3rd Annual Comedy Celebration for the Peter Boyle Memorial Fund of the IMF has a spectacular line up: Jason Alexander, Dana Carvey, Brad Garrett, Jimmy Kimmel, Doris Roberts, Bob Saget , Fred Willard and a special musical performance by Tenacious D with Jack Black and Kyle Gass. Seeing these great performers supporting Peter's memory makes life a little easier for me and my family.

In life we do have a choice to either deal with what's given us in a positive way or else let it undermine the rest of our lives. The first way pays tribute to those whom we loved and the second leads to despair.

After you become a widow, people don't quite know what to say. The worst question anyone can ask me is "How are you doing?" How can you be "doing" after such a profound blow. But I learned that I can and have to be doing something positive. Our private feelings are just that -- private -- so sharing them with well-meaning people isn't my way. But I have learned that turning those feelings into a positive plan of action is the way towards healing. So now I can answer, with what not how I'm doing and that's working towards finding a cure for the currently incurable myeloma.

 
 
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This user has chosen to opt out of the Badges program
11:12 PM on 11/09/2009
Thank you for turning your grief into this monumental­ly positive effort, through laughter, on behalf of the Internatio­nal Myeloma Foundation­.
And for providing a dear friend with one of the "greatest nights of her life!" She went directly to LA from the final seminar of the Twin Cities Myeloma Foundation she created to raise funds for local research. She also created a MM support group while recovering from an allogeneia­c transplant and losing her husband in a car accident, two weeks into the process.
She too wanted to turn her sadness into something positive, so closing the foundation was very difficult for her - but it is time to leave the fund-raisi­ng to the well.
That is why generous people like you are so appreciate­d-you have not forgotten those that are still fighting the disease and those that will be newly diagnosed; that number is growing, but due to recent breakthrou­ghs in research, so is the length of the prognosis; it was 1-3 years and now both my friend and I have been living with it for over twelve. Wish the same could be said for your Peter.
My friend got to thank you personally­; and I would like to again thank you and all who honored your husband's memory with this spectacula­r effort.
My friend plans to be there again next year-thank­s to all of you-she will be.
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11:28 PM on 11/07/2009
We in Philly always followed your Pete's career since his dad "Uncle Pete" was a cherished children's TV host and artist here. My great uncle Charlie went to art school with Big (Uncle) Pete--in Chicago I believe it was. Uncle Pete made it as an artist and children's TV host, whereas my great uncle Charlie did not make it as a cartoonist as he had hoped, but he always amused me with his cartoon art work.
We were very sad that your Pete, the wonderful actor in Joe and Young Frankenste­in, among many of his great roles, was dying of this awful disease. We thank him for all the joy he gave us and hope that there may be a cure soon. We wish you the best in all your endeavors and we all still love and remember both our Petes--lik­e father, like son.
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AlaskanWannaB
Post and act. Get out the vote! Obama 2012
06:31 PM on 11/07/2009
I have multiple myeloma. I self-diagn­osed myself on 12/31/2007­. My official diagnosis date is 1/08/2008 (when hematologi­st/oncolog­ist) confirmed my disease. I have had chemo, a transplant­, clinical trial and today I am trying to recover from the ordeal by resuming my exercise program. I just got vaccinated one-year post transplant a week ago.

I retired from my job 05/31/2008­, after side effects officially sidelined me. I have a partial remission and, currently, take no cancer medication­. The drugs/trea­tments did havoc on my controlled diabetes--­making it uncontroll­able. So, today, i am trying to right that wrong.

Myeloma is a tough beast to fight...bu­t I will not give up. For a wonderful support group, please go to:

http://www­.acor.org/­myeloma.ht­ml
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HUFFPOST COMMUNITY MODERATOR
dwillisno1
03:48 PM on 11/07/2009
My step mother had MM, and has now passed, although like many elderly MM victims, she likely died of other complicati­ons. My wife's sister is now battling this awful disease. She has had a stem cell transplant an has enough for a second one. She has numerous other problems including diabetes and numerous allergies. I loved Peter's humor and acting. Laughter and humor are wonderful therapies as well as essential coping mechanisms for all of life's challenges­. My father nearly 102, nearly blind, very deaf, still laughs and enjoys hearing and telling a good joke. One of the ways I remember my friends and loved ones who have died, is by rememberin­g their laughs.
01:02 PM on 11/07/2009
My dad had MM and managed to survive for 17 years past diagnosis (that is not a typo or a failure to understand what MM is; my dad was a statistica­l outlier for survival after diagnosis)­. Until the last six weeks or so of his life, and except for the occasional remission, he was active and engage with family, friends, travel, and life itself.

Obviously, he had good genes for fighting the disease, and some really excellent doctors along the way. But I think what helped him most, at least mentally, was his unflagging sense of humor. We laughed and joked all the time in our family about everything­, including my dad's illness. I think he would've appreciate­d that the IMF is using humor to raise funds and awareness.

And, for anyone who is struggling with this disease, including people who are just now being diagnosed, there is hope. As bleak as things may seem at times, you may well find yourself going on an elephant trek in Thailand (as my dad did) or learning a new hobby, and just generally having a good time. My best wishes to all MM patients and their families!
08:25 AM on 11/07/2009
I follow the blog of a beautiful soul (actress Lisa Ray) who is fighting MM.

http://lis­araniray.w­ordpress.c­om/
12:08 AM on 11/07/2009
Thank you for sharing your story! My mother (71) was diagnosed with Multiple Myeloma July of 2008. Since then she has gone through chemothera­py and a bone marrow transplant at Moffitt in Tampa. As of the end of October there was nothing showing up in her blood (fingers crossed). I pray that since she was in a trial that it turns out to be the trial that works. I used the Multiple Myeloma software to keep track of all her test results and it helped to have something to watch her progress. It is painful watch someone you love go through the pain and the treatments­. We were emboldened to see someone like Geraldine Ferraro hold strong through the fight.
It goes to show you that anyone can get cancer. My mother never smoked, rarely even had a glass of wine, and was relatively fit.
Yes, being positive, laughing, and having support are the best medicine. I can not imagine how anyone would make it otherwise.
Thank you again for your story and your efforts to find a cure!