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Mohammad Barry

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20 is Too Young to Die

Posted: 05/16/2012 8:32 am


This is part of our new series "Gen: Change," in partnership with Youth Service America, featuring stories from the 25 most influential and powerful young people in the world. Click here to read more about Mohammad and his amazing story.

Hello, my name is Mo Barry and I'm 20 years old. I'm serving a death sentence for a crime I did not commit. This is my story.

Far from the madding crowd, when I walked through the front door of the AIDS ward, the first thing I noticed was the odor. Then I heard the groaning. I saw pale faces staring at me with sharp eyes like daggers. Heaps of pills had formed everywhere, and the patients were so isolated that no one could hear them even when they screamed for help. I remember the occasion quite vividly, although it was over 10 years ago in the Gambia. The same struggles for life and battles with AIDS are still present in the lives of nine million people across the globe. They are young and old; men and women; children and adolescents around the globe, all in the same boat of waiting for ARVs on a daily basis.

These memories will always remain with me. Today, nine million like those people whose staggering sights frightened me -- whose vomiting scared me and whose grisly figures horrified me over 10 years ago in the Gambia -- are still present in different areas around the globe and eagerly waiting for life-saving drugs. They include the over 40 percent of people living with HIV in the Gambia who are in need of treatment, just like the 85 percent of people living with HIV in the Democratic Republic of Congo who are dreadfully waiting for HIV medication. This is indeed sad and unjustifiable.

When is the day when they will get access to HIV medication, the day when they will survive the plight of this pandemic, the day when they will escape the sufferings triggered by HIV and AIDS? We often blame our governments, yet for the most part we must question the existence of humanity and integrity once more. Indeed, this should be a great reason for communities to turn their backs on their leaders and ask for accountability when dealing with their lives, specifically in the context of AIDS. Therefore it is completely frustrating for me to try to understand how things will get better in the future when half the children born with HIV die before their second birthday in the developing world. Drug companies continue to hold onto their patents and prevent generic production of the same drugs, and wealthier nations push for copyright laws that will make it even harder to access cheaper, less toxic, and affordable generic drugs. It is frustrating that political parties spend millions on party festivals while their constituents are dying of AIDS on a daily basis.

You might be wondering why I'm mainly focusing on HIV treatment. As I mentioned in an open letter to the political leaders of my nation, Gambia, prior to the November 24 elections, HIV treatment bridges divided communities, restores hope, bestows a sense of belonging, generates economic interest in any community, reduces the healthcare burden and curbs the number of new infections simultaneously. That is why I am reiterating this point. Because of my personal experiences, I am committed to strongly arguing for universal access to treatment for all.

With treatment, there is the possibility of creating a whole generation that is free of AIDS. But this will only become a reality if we take action to not to see people dying of AIDS in our communities. Wearing an ''HIV positive'' T-shirt, I stood before the world -- specifically, in front of the nations hardest hit by the AIDS epidemic -- and asked politicians to remove the shroud of silence that has been draped over the issue of HIV and AIDS in the global South, with a specific consideration to the Gambia and Senegal. It is in these countries that I had the opportunity to address over 1,000 and 2,300 people respectively around World AIDS Day in December 2011. I used different mediums to communicate my bitterness and disappointment around the current state of the AIDS epidemic we are experiencing.

In conclusion, I want to ask you what are you doing to end AIDS in your own way? You can try to use sports to raise AIDS awareness -- I started running, hitchhiking and biking for health. Remember, 20 is too young to die.

 
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This is part of our new series "Gen: Change," in partnership with Youth Service America, featuring stories from ...
This is part of our new series "Gen: Change," in partnership with Youth Service America, featuring stories from ...
 
 
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03:02 AM on 05/17/2012
Humanity, that is a strange word for the western world
In Greece there is a scandal right now where they found some 20 prostitutes in Athens that were positive to the virus, some of them with visible scars.
Still, people went with them, with no protection, spreading the virus to their families and lovers.
And all that because they wanted to have some "different" sex or because the Greek laws are so loose or because human trafficking is unstoppable in Greece or because many women that have a drug habit can support it only with illegal prostitution.
Who is the 3rd world now?
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Luketalks
Insane? Vote for Repubs OR Dems expecting change
01:49 AM on 05/17/2012
Mr. Barry, I'm assuming you know about these agencies that collect meds from patients here in the U.S. to send abroad.

http://www.thebody.com/content/art2502.html
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lenguss
07:20 PM on 05/16/2012
Soldiers die younger - and for better reasons. Kid drivers die younger - for poor reasons. There is no age 'too young to die'. How did these people get aids? Did they do it to themselves? I save my sympathy for the soldiers who get killed in war and the kids too stupid not to drive too fast or drunk.
10:54 PM on 05/17/2012
AIDS is a disease often transmitted from mother to child. While this cannot happen when the child is in the womb, babies often get the virus during childbirth. This is why, as Mr. Barry noted, half of the children born with HIV die before their second birthday. Also, we must consider the lack of education in many of these regions. In so many areas, it is believed that having sex with a virgin will cure the disease. This is one of the biggest reasons for the spread of the disease, and imagine how many women are raped over this belief! As with so many problems in our world, pills are not the full answer, money and resources must also be spent in dispelling these myths and preventing the transmission of the disease.
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lenguss
12:18 AM on 05/18/2012
These 'myths' as you call them are really a quasi-religion, dark and powerful. You will not readily succeed in 'dispelling' these myths. They include not only having sex with virgins, but with babies to assure that they are indeed virgin. The babies of course die. I have no interest at all in saving the lives of the men who rape these children. The quicker they die, the better for all.
03:29 PM on 05/16/2012
I think we all agree that compassion is key in every human endeavor. There are obviously many changes the African people can make in their own self destructive behavior as well as some serious reevaluating of birth control issues by organized religion. When you ask me for compassion for people who are suffering horribly on the other side of the planet my heart dies a little because I wonder where the compassion is from those parents in Africa who perpetuate this heartache personally and are not yet moved to do anything to protect themselves and their own children.
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simplemee
Tis better to remain silent and be thought a fool.
12:46 PM on 05/16/2012
Good luck to you, young man. You are brave and strong and fighting the good fight.
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Fonsini
Let there be pie.
11:14 AM on 05/16/2012
And why is AIDS/HIV so prevalent in African nations, but not elsewhere? Simple - it's because African males refuse to practice safe sex, and sexual intimacy is regarded as little more than a handshake by both men and women. This lack of personal responsibility somehow becomes morphed into attacks on "rich nations" and "greedy drug companies" - apparently it's our fault that most of sub-Saharan Africa is incapable of self-control and unwilling to accept personal responsibility for their actions.

If the author really feels the need to target the west as being in some way responsible for this nightmare, then focus your attentions on the legions of Catholic missionaries who devote their lives to converting Africans to their version of Christianity, a version that forbids the use of condoms.

I also note that the author spends his time touring the west giving presentations and asking for assistance, no surprise there. I'm sure he knows that attempting to stop his brethren from their self-destructive lifestyle is pointless. No, it's much better to wait for the evil west to develop a pill that will cure the disease, one that Africans will of course expect to get for free.

Am I missing anything here?
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simplemee
Tis better to remain silent and be thought a fool.
12:48 PM on 05/16/2012
The only thing you are missing is compassion.
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Fonsini
Let there be pie.
02:06 PM on 05/16/2012
Compassion doesn't stop this self-destructive behavior, compassion doesn't develop a cure, compassion doesn't fund drug procurement, in fact compassion has done nothing to stop this situation or fix the damage.

We need realism, and that I have in large, free doses.

Forget drug regimens for the infected, no one will fund that. Instead we need to fund local education programs and the wholesale distribution of free condoms, it's much cheaper and much more effective.
02:15 PM on 05/16/2012
I think your argument is worth digesting. I have been poz since 1996, and for the most part remained celbate as I can not see passing this on. Also, I have been fortunate to live in a country that has, in the past, really fought hard to prevent the spread of this virus. One should never consider it a death sentence in their head, never should one operate that way, for any cancer virus or disease. However, pharmaceutical wealth building has far outweighed human compassion, Lipitor is one of those examples, there are a thousand more. Strangely, in our USA their are wait list to get on HIV drug assistance, how can that be???? I would hold that up as an example, of a rich nation, not able to get help to the working or poor classes of people. As another note, for those in previous posts, who are so judgmental, I became positive by a Seattle hospital that was reusing dirty needles. 5 years ago, about 4000 were infected by a Nevada hospital doing the same. Sex is not the only transmission means.
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kenhamlett
03:16 PM on 05/16/2012
I agree with much of what you say. But, I think there is an element that you have not considered fully. Personal responsibility is essential to bring the infection rate under control. But, achieving that level of responsibility is not easy in locations where the population is unsophisticated, uneducated, and familiar with only on set of habits and practices -- the only ones they have ever known. Education is the answer, but it has to be an education program designed to reach a population that includes many who live in abject poverty, unsanitary surroundings, and despair. You cannot just drop an education program designed for this country -- or another more developed nation -- into this audience. As you partially noted, you also have to find a way to counter the superstitions to which they cling out of fear, counter the unhelpful message they have received about sexual practices from a number of religions, and convince the people to believe that you really can help when their normal reaction would be to believe the opposite. The reason the situation has grown so critical is that it involves many complexities that no one has been able to fully address. So, while much of what you say is accurate, it does not represent the entire situation.
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larry cifuentes
11:08 AM on 05/16/2012
I never thought mortals would become smart enough at complaining, 'The Death' to be discriminatory too.
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db08
Embrace each moment, each day!
09:25 AM on 05/16/2012
You are a brave soul Mo Barry. Thank you for your committment and for shining a bright light on this pandemic and posing a solution. Keep your voice strong. We hear you.
Some in their own shame and inhumanity will respond cynically and harshly. Others will, indeed, reflect on what they can do to support this effort. Twenty is too young to die.
08:52 AM on 05/16/2012
We are all serving a death sentence folks. We live until about 80, then we die (or 'rot' as atheists say). You might think it's not fair, but you have to grow up and live with the situation.
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db08
Embrace each moment, each day!
09:28 AM on 05/16/2012
Did you read what Mo wrote? Twenty is not eighty. Thank good we do not think like you or we would die from the flu.
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kenhamlett
03:22 PM on 05/16/2012
Your message seems to be "people die, and if they die at 20, get used to it." That message is amazingly insensitive and cruel. There are all sorts of organizations and individuals -- religious, social, governmental, etc. -- who do not accept your approach to this situation. The best thing that we can do while on this earth is to make it a better place and help the other inhabitants. We cannot simply tell them that we regret that they were born into poverty, political upheaval, and illiteracy, but,there is nothing we can do. There is always something that can be done to help others.