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Nancy Davis

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The Rise and Fall of The Komen Empire

Posted: 04/ 2/2012 12:20 pm

On March 24, 2012 The Associated Press announced at least five high-ranking executives from Komen have resigned.

On March 22, 2012 The Washington Post reported that a prominent Howard University surgeon, Dr. La Salle D. Leffall, Jr. stepped down from the charity's board.

NBC News claimed Komen's donations are down sharply. In southwest Florida, donations are down nearly thirty percent; in Lafayette, Louisiana they were down twenty-seven percent and in Fort Worth, Texas, registrations for races were down forty percent.

New York City cancelled it's annual "Gala," saying it was uncertain about further funding.

On March 22nd, 2012, NBC correspondent Lisa Myers explained:

The organization known for its iconic pink ribbon is taking a hit where it hurts, at Races for the Cure around the country... Eve Ellis, a former New York board member whose family has raised or donated about $250,000, says she's closed her check book." Ellis lamented: 'I've stopped giving to Komen because it no longer represents who I thought Komen was. And that, to me, is extremely sad.'
Myers continued: "Komen's hierarchy is in turmoil... Three top executives have resigned. All said it was a personal decision, but had opposed Komen's recent effort to withdraw funding of Planned Parenthood....there are growing demands for Komen to clean house."

Is this Komen's fall from grace? Or is this the the beginning of the fall of the Komen Empire?

I've always had great respect for Nancy Brinker and her unwavering, altruistic concern for people with Breast Cancer. These qualities alone made me a fan and supporter and advocate of hers, back when I was Stage I.

Now the foundation has crossed many boundaries with the Planned Parenthood debacle. Even more daunting is the connection with Penn State and the schmoozing with the NFL. Let's go back to 2010 with the law suits, suing lesser charitable groups over the phrase "For the Cure."

Perhaps even worse, and to me unconscionable, is the huge gap Komen has created between the Stages of Breast Cancer. These groups are totally divided. Stage I and II are the "Pinkies"; Stage III is borderline "Pink" and Stage IV "invisible."

Yes, poor Stage IV. We are left behind in research funding, new cutting edge treatments, support groups, the general public and, of course, for the most part, October. I do not believe this was intentional on Komen's part, but it's real, I know, I'm in Stage IV!!

I believe when one loses focus of one's original goal or mission, in this case curing Breast Cancer, one has lost control. Komen, in trying to protect their "empire" of brands, taglines, logos, phrases, marketing and so on, is suffocating in its own "pink haze." Kelly O'Keefe of VCU Brand Center made an observation about the self-inflicted wounds of Komen. "There's nothing more tragic than a management team that doesn't understand their own brand."

Komen seems to have lost the understanding of their followers. They don't seem to notice the connection between the appeal of other groups offering the same help. We the public are aware. We are aware that Komen has changed it's attitude and original mission from saving lives to bringing the world the ubiquitous "Pink Campaign."

We don't need anymore awareness! What we need to know is How and Why we go from Stage I to Stage IV and die. Why is the concentration then NOT on Stage IV so we never need to get there, period?

As the public now becomes more educated and the criticism mounts, those who have the most to lose are first and foremost the suffering patients -- and then those who profit from the Pink Conception. Unfortunately, Breast Cancer has become "big business." Corporations alone seem to gravitate to the BC bandwagon to make themselves look good. Anytime a disease is used for individual profit it's down right unethical!

This rise in corporate involvement and politics with Breast Cancer fund raising and charities will certainly be the fall of the Komen Empire.

In America alone, the odds of getting Breast Cancer has risen to one in every eight people. How is this possible with all the billions taken in over the past forty years?

The Roman Empire prospered and grew perhaps because they adopted the concept of "citizen," not "subject," thus building the best army and best communication system in the world at the time. Part of Rome's decline was the abandonment of the concept of "citizen" instead of "subject."

Komen prospered and grew because the organization adopted a strong concept for the "Breast Cancer Patient," focusing on"speedy research and a cure." It built the best army of "Pinkies" with some of the best publicity and communication strategies of our time.

Is Komen declining because they abandoned the initial concept of the "Breast Cancer Patient" and "speedy research and a cure" and began running "The Komen Empire" of the rich, highborn and powerful?

Komen's persona is dwindling quickly. For Susan G. Komen's sake, I hope this is NOT "The Fall of the Komen Empire" and perhaps just a wake up call for so many!

Until next time,

Peace

N~


 

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07:00 PM on 04/15/2012
Lost another of my dear metsisters today. Alicia was 45, had 3 young daughters and was a Yankee fan. We met in 2010 at the home of another metsister, Angela who has also since passed. We don't need Koman and all the crap that comes with it. We need more of all the billions raised in the name of breast cancer to actually go to research to find a cure for metastatic breast cancer. Right now, barely 5% goes to mets research. RIP Alicia.
05:48 PM on 04/06/2012
I need to dispute some comments made by Nancy Davis. And yes, I believe I am qualified to make these statements. I too am Stage IV, diagnosed metastatic 19 years after my original Stage II diagnoses. I’m also an advocate reviewer for Komen’s research program.

Has Susan G. Komen for the Cure forgotten me? NO! There are certainly support groups (non-Komen) that would rather I not participate because I’m not a success story. In January, I participated in Komen’s first Metastatic Breast Cancer Roundtable. The other participants and I made several recommendations, many of which Komen has begun to implement, to raise awareness about metastatic breast cancer and more.

Regarding research – we have not been forgotten there either. Just since 2006, Komen has awarded 108 grants totaling $35 million, solely for metastatic research. This year, the Promise Grants will focus on the “Causes of and/or Approaches to the Problem of Late Recurrence” -- each Promise Grant is up to $7.5 million over 5 years.

You say the research dollars should be concentrated on Stage IV, and how we got from Stage I to Stage IV. Wouldn’t it be better to detect the disease early and eradicate it at this stage -- never allowed to reach Stage IV? That’s the intent of these Promise Grants – to prevent recurrences and metastasis.

Will all of this happen overnight? NO! But Komen does invest in research that matters to me and others with metastatic breast cancer.
09:43 PM on 04/08/2012
Yes! Thank you!!
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12:18 AM on 04/15/2012
It's your right to your opinion of this Organization. I totally beg to differ.
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Maxedaddy
Leftwing extremist!
02:11 AM on 04/06/2012
You know ladies. Just out of curiosity, I clicked on the women's section of the HP and i noticed that there isn't anything about what attacks the Republican party are issuing via their laws passed around the country? It made me wonder why? And then i realized why women are actually being attacked by the Republican Party, because you guys are easy targets because you don't keep yourselves informed. They pass law upon law stripping the rights away from women and women are too bored or not interested by such matters. Its a damn shame but the way its going we shall have a form of Sharia law here if these Right wing Republican Christian fundamentalists have anything to do with it and you guys will have no one to blame but yourselves.
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12:22 AM on 04/15/2012
I find it sad to be called "easy targets". I like to keep the forum specific to my disease which I am versed in. I let the politicians fight their own battles. I sure hope your wrong about "Sharia law"!
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Maxedaddy
Leftwing extremist!
11:45 AM on 04/16/2012
The politicians are fighting battles that concern you! And if you all don't come together, why would anyone come to your defense if you don't care yourselves? Its coming to that by the way. Men are growing weary of fighting for women's rights when they don't make an effort themselves. In my office (corporate environment) when i ask women about what they think about the laws against women that passed in this state or some other state, all i get are blank stares and the proverbial "Ugghhh! Politics are so boring! I don't do politics!" Yes are too busy or preoccupied with the E channel when i go into the break room. They don't watch the news and just don't care. Oh, and that Sharia Law thing, you guys will complain when its too late!
12:04 AM on 04/04/2012
Excellent Nance - nothing else to add - xx
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mustlovecats2
trying to figure out how to emigrate if RandR win.
05:27 PM on 04/03/2012
First of all, my regrets that you are now dealing with stage four breast cancer. I know just from having stage 2, it is a miserable thing to have to go through.

IMHO Komen for the Cure was always a bloated self serving organization that cared more for its hype and not to serving other individuals. The thing that made me as angry as anything else when they "defunded" Planned Parenthood, is that they used so little of the money they raised to achieve its perported mission. While it seems extreme and angry, I think there would be many other charities that would at least use their contrabutions in a meaningful way.

Best of luck to you. Be well.
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03:40 PM on 04/03/2012
Charities, like churches, with tax-exempt status should stay out of politics--but it isn't going to happen.

Even though I strongly disagree w/the "righties" and their 'war' on the rights of women, each charity needs to be judged by what the charity does, not (solely*) by what the individuals involved, actually do. Some numbers showing how donations are spent would be helpful. That said.....

*The use of fame access, influence as a direct result of the charity work used to further a politcal cause that is offensive to the senses of the doner is, in my view, justification for finding another place for donor dollars.
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03:27 PM on 04/03/2012
While this is little comfort and may seem heartless, as a practical matter, cures are more attainable in the early stages of any disease.

As to the lawsuit--seems petty, but when you consider how much money is given to "charities" that provide little to the cause they are actually advertising as championing, it is at least somewhat understandable that those truly intent upon a cure would not want to see the good intentions of doners abused and that they would make an effort to direct every available dollar to the real work of finding the cure.

If, however, donors find that any organization is putting more and more into "overhead" and an increasingly less percentage of the donations toward their stated objective, then perhaps it is time that organization does fail--it certainly would be time to reconsider where those donor dollars go..
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Jim Mccarthy
YEAH- LIBERAL LEFTY
01:01 PM on 04/03/2012
recently attended "race" in Tucson- march 25th. racrers/walkers numbered 7,000, last year was around 14,000. most of the day heard many a critical complaint from women during most of the event about Komen org........i don't think Komen really got "the message"............
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09:42 AM on 04/03/2012
I have always written my checks directly to the hospitals who do the research and the organizations who perform the pallative and hospice care. That's how anyone will get the most for their donation dollar. No one needs another magnetic ribbon or another 'awareness' campaign or a circle drawn small to divide us from 'them.'
All the signs that Komen was out-of-touch have been there for years. I'm just glad more people are choosing to open their eyes.
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Annie Snyder
Not Going to Sit Down and Shut Up
08:07 PM on 04/02/2012
I'll never donate another dime to Komen. They're contaminated with the stink of the Right Wing's War on Women, and I'll never trust them. Too many other concerns about their organization have also come to light. Let them die, and let new and better organizations form to serve women, all women.
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Jim Mccarthy
YEAH- LIBERAL LEFTY
01:03 PM on 04/03/2012
i was shocked to find out Nancy Brinker was in the pocket of "W". she was a huge asset to both of his prez. campaigns, and he made her an ambassador .......she's a true Rightie.
08:01 PM on 04/02/2012
Thanks for bringing this to our attention it is such a shame that now all of the stages of Cancer are being recognized.

What does Planned Parenthood have to do with any Stages of Cancer they are definitely losing their focus and muddying the waters.
07:38 PM on 04/02/2012
Nancy you hit it on the head with so much. Like the way you describe stage IV as I take it to mean "can't help them so why waste time" And they shift to where the money is. I believe Children's cancer to be a much bigger problem. As I have said before" If we don't take care of the children first, there will be no us!" There should be every effort for equal support across the board. Why? We are suppose to be working for a common goal. Not so as S. G. Komen has clearly shown the world. And how many within there ranks got away with taking from everyone? Anyone want to ask for or pursue that answer? What happen to those that we are aware of, whats happening to them? Why should anyone that donated to them not have the right to know what's really being done! What the newspapers show is next to nothing. Demand to know and choose to make every voice known. If this were someone taking from your child, how would you react then? Why not react right now and say thank you Nancy for writing this.

Martin Mahkovtz
laptopsoflove.com
07:37 PM on 04/02/2012
Nancy, The rest of what I have to say is much of the feelings of shame that for us as human beings allow others to hurt and take from those not able or don't have means due to something unforeseen that's happened. Shame that we have dumped billions down a black hole for what, A cure? Something that works? Anything that won't kill you treatment? There are those that survived the old school treatment. The total numbers though are so bad, so horrid, that soon there will be nothing left. No one to pump the medical Companies drug's into others for the sake of a buck. Komen took it to a new level of hurting others. Copy-write tag lines! Whats the point anymore if all anyone is looking for is to line there pockets! Help, it's become a thing of the past maybe, or rather has that feeling now days.
05:30 AM on 04/24/2012
I do not understand any person who is stage IV in any cancer, or their friends and relatives putting their money into anything other than stage IV "mitigation or cure" research. Most organizations do little to none of the kind of research we need. If we do not put our money and voices forward then who will? I am tired of Stage IV being the orphan of breast cancer research.

Even Pete Bevin Host of BCmets.org, on Facebook said -

"If you're posting random fruit names to Facebook to indicate you relationship status and you haven't already given at least $250 to metavivor.org, then you're part of the problem ..."

So he knows where our priorities have to be to make a difference for us, Komen's millions did nothing to save his wife.

As an alternative to Komen and the "Clock" Etc,. Metavivor.org gives 100% of grants to Metastatic research only. Not the petty 2% the rest give to almost exclusively prevention (too late for Stage IV). Metastatic researchers work on targeted Metastatic cancer of many kinds as what benefits one cancer may benefit others too. for adults and children.

I have great respect for all the Cancer organizations, volunteers, paid staff and supporters - I know they truly believe they are saving lives in the most efficient way possible, but cannot do otherwise than to stand for Stage IV specific research,

I want to live ....
09:27 PM on 04/24/2012
Understanding. No one questions who respects who. Who knows better than you? Pete Bevin does I guess?!?!? Didn't Komen to like so many though. Point is, all the eggs got put into one basket and is still getting filled up and going to useless things. No one is speaking up, less want to believe. The idea of what you stand for is what you are going through, seems to over shadow much needed time and money that is better spent elsewhere. Seems lop sided. I do get it. Your afraid and want to live. Understandable. What if one can't see the pain in all stages in all ages then it all becomes watered down. So what, start with adults and hope it trickles down to kids. Mind you, this is my own take on your response. I've said the same as you in the past. I now hope the same effort is placed on all cancers, but sadly it's not. " If we don't stop it in our children there will be no adults left." I want to live also... Not at the expense of our children though. We need our cure. I do think it will come from the private sector, a cure that is. Until then, we have only this. For me that's not good enough. We all deserve a cure! Don't you agree?

May your fight always be as big as your heart. ; )
06:38 PM on 04/02/2012
Nancy, as always, you hit the nail on the head. Komen needs to get back to its roots and of course, give more of what it raises to research to find a cure for metastatic breast cancer.
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Rockerbabe
02:48 PM on 04/02/2012
Komen made its greatest mistakes by listening to women like Karen Handel, who mix up the mission of Komen with the dreadly aweful politics of women's reproductive rights and healthcare. For most women, Komen and Planned Parenthood are essentially one in the same - they provide care and support to women of all ages, all religions, all economic classes and they do so with professionalism and compassion. Kicking PP like Komen did, was an assault most of us, who have used PP for medical care in our younger years. Komen needs to clean house from top down and start over again, if it wants to resurrect its "brand".
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03:17 PM on 04/02/2012
AMEN! Thank you for your response and for reading my blog.
07:32 PM on 04/02/2012
"essentially one and the same" no way. First Komen has to take some % of the money received to fund their efforts that does nothing to benefit the cause. Hey those fund raisers are doing this for two reason, one to support a cause the other to support themselves. Second Planned Parenthood actually provides services for women. Komen is essentially a middleman fund raiser, which if they can bring lots more additional money and take very little to support itself then it is a good organization. But it is always better to give directly to the organization that accomplishes the services, providing. To me Komen was never the organization to give money to, give directly.