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A Life Story Foundation

Amazing Race Ain't Got Nothing on ALS

Kevin Swan | Posted 10.13.2016 | Impact
Kevin Swan

The pope, the president and I walk into a bar. Ok, it didn't go exactly like that but you get the idea. A couple weeks ago we had our foundation's fourth annual culinary spectacular at Hearth restaurant in New York City.

The Cubs Are Doing What Modern Medicine Isn't

Kevin Swan | Posted 09.24.2016 | Impact
Kevin Swan

This year the Cubs and my ALS have had a lot to do with each other. Baseball is an eternity of a season (ask my girlfriend Elizabeth who has uttered "They play again tonight") that lasts a 162 games in a 188 days. It is a true war of attrition. A lot like ALS.

NYC's Top Chefs Prepare the Ultimate Family Dinner

Kevin Swan | Posted 09.21.2016 | Impact
Kevin Swan

This year's event will have an extra special amount of love and support. In the three previous years, my co-host has been the NYC great, Chef Gerry Hayden who was fighting the same disease. Not only was he a brother in arms, his beautiful and talented wife is Chef Claudia Flemming, the evening's pastry chef.

I Am Not Free to Move About the Cabin

Kevin Swan | Posted 04.25.2015 | Impact
Kevin Swan

The daily life of ALS is constantly filled with challenges for everyone involved. It is not just me, the patient (I hate that word), but for everyone around me. This is never more true than when travel, especially air travel, is on the horizon.

5 Reasons the Ice Bucket Challenge Will Find a Cure

Kevin Swan | Posted 10.22.2014 | Impact
Kevin Swan

5. We are having our Magic Johnson moment. When the basketball legend announced that he was HIV positive in 1991, he instantly brought the disease in...

Ice Cold for a Cure

Kevin Swan | Posted 10.15.2014 | Impact
Kevin Swan

As a foundation, the Ice Bucket Challenge has not only put us, but the disease itself in front of millions around office water coolers and dinner tables across the country.

A Tube Job

Kevin Swan | Posted 08.04.2014 | Impact
Kevin Swan

Remember when you were a kid and before a long road trip your parents would say "do you have to go to the bathroom?" Your answer was almost always a q...

Sense and Sensitivity

Kevin Swan | Posted 07.21.2014 | Impact
Kevin Swan

I was talking by the time they arrived, but because of my speech which has been directly affected by ALS, they thought I may have had a stroke because I was slurring my words. Nope, no stroke, just ALS.

Make My Day, Machu Picchu Part 2

Kevin Swan | Posted 08.17.2013 | Impact
Kevin Swan

On the most difficult stretches, I could feel the breath from every one of the men carrying me. Which made me wonder: if my body was tired, what did their bodies feel like? How did they have the capacity, the energy, the drive to continue to lift my chair over and over again?

Make My Day, Machu Picchu

Kevin Swan | Posted 08.04.2013 | Impact
Kevin Swan

What started as a very simple, almost cordial inquiry via Twitter in mid-February landed me strapped to an all-terrain wheelchair, clinging to the sid...

Spring Break Meets Oregon Trail

Kevin Swan | Posted 05.29.2013 | Impact
Kevin Swan

While my skiing days might be few and far between until we find a treatment for this disease, that's okay if, and only if, I realize the importance of harnessing that frustration and anger and channeling it into more valuable assets.

A Cure With Some Magic and Jordan

Kevin Swan | Posted 05.01.2013 | Impact
Kevin Swan

It had only been a couple of months since I had been diagnosed with ALS, but I was constantly reminded of how few people have actually ever heard of the disease. To say this was frustrating is the PG version of my feelings toward the issue. This sparked the creation of A Life Story Foundation.

My Body Is a Wonderland

Kevin Swan | Posted 04.16.2013 | Healthy Living
Kevin Swan

Every day is a challenge, even in a battle between my body and me. Don't get me wrong, I do have a choice in what I put in my body, but how my body functions or even appears is outside of my control because of ALS.

Former Ad Man Turns His Disease Into His Next Client

Kevin Swan | Posted 04.09.2013 | Impact
Kevin Swan

As if being diagnosed with a terminal disease (for the record, I have no intention of letting this beat me) isn't bad enough, it is a disease that the general public has never heard of or knows very little about.

Nine Years, Three Concussions, Zero Regrets

Kevin Swan | Posted 04.06.2013 | Impact
Kevin Swan

No press is bad press when it comes to creating awareness and action around a disease as devastating as ALS. After the conclusion of the AFC champions...

A Swan That Chose Fight Over Flight

Kevin Swan | Posted 03.25.2013 | Impact
Kevin Swan

It had taken nearly 18 months from the day I noticed my first symptom to get to that exam room. I suppose in the back of my mind, I always suspected or maybe even knew it was ALS.