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Alexis Agin

My Daughter's Death From Childhood Cancer; A Gift for Life

Jonathan Agin | Posted 01.29.2016 | Impact
Jonathan Agin

Our destinies became inextricably woven together. Alexis inspired me never to accept no for an answer in the pursuit of this destiny.

Children's Cancer Therapy Development Institute: A New Attempt at Bridge-Building for Childhood Cancer Research

Jonathan Agin | Posted 04.04.2015 | Impact
Jonathan Agin

We live in an era of immense hope for the future of cancer research and the quest for new and promising treatments. The identification of new genetic mutations as viable markers for therapeutic development is driving researchers and clinicians to focus on specific pathways for targeted therapies.

Be Careful What You Wish for, Michael Alan -- You Do Not Wish Your Kids Had Cancer

Jonathan Agin | Posted 08.04.2014 | Impact
Jonathan Agin

Having a child with autism was a significant concern of mine prior to the birth of my first child Alexis back in January 2006. But then, on April 10, 2008 cancer knocked on our door and without an invitation took up residence in our then 27-mont-old daughter Alexis. Mr. Alan, do you still wish your kids had cancer?

Attracting Large Scale Philanthropy for Childhood Cancer

Jonathan Agin | Posted 05.10.2014 | Impact
Jonathan Agin

I issue a challenge to the Mark Zuckerbergs, Donald Trumps and Phil Knights of the world: Will you step up to the plate and help children with cancer at least take a swing?

Open Letter to Aaron Eckhart

Jonathan Agin | Posted 03.28.2014 | Parents
Jonathan Agin

You see, I am one of those parents who has sat in that room and participated as these raw emotions have flown like water over Niagara Falls. My amazing daughter Alexis was taken from me two weeks shy of her fifth birthday by an indiscriminate killer called brain cancer.

My Childhood Cancer Road Map - Epilogue

Jonathan Agin | Posted 06.18.2013 | Impact
Jonathan Agin

The manner in which we as a country have been attacking the cancer problem is not working. Cancer still takes kids from their families on a daily, weekly and yearly basis and the incidence rates are not lessening. That is unacceptable.

The FDA and Childhood Cancer -- the Change That Has to Come -- Piece No. II

Jonathan Agin | Posted 05.26.2013 | Impact
Jonathan Agin

It starts with us as advocates educating our physicians on these pathways and expanding the overall knowledge base of these channels. This is often difficult for a parent who is trying to balance saving their child with making every moment count.

Engaging the Pharmaceutical Industry in the Fight Against Childhood Cancer - Piece No. I

Jonathan Agin | Posted 05.19.2013 | Impact
Jonathan Agin

The fight against childhood cancer is not possible without innovative drugs that are available for delivery without significant restrictions.

Childhood Cancer, My Road Map

Jonathan Agin | Posted 05.12.2013 | Impact
Jonathan Agin

It is easy for me to write about childhood cancer in many respects. It matters to me. It touched me personally through the diagnosis and loss of my amazing daughter Alexis. Where I think the struggle lies is changing the entire landscape with respect to fighting the disease.

Italian Wedding Soup

Jonathan Agin | Posted 04.23.2013 | Impact
Jonathan Agin

Every parent who has lost a child to disease or some other mechanism knows this pang. In most instances, as time marches beyond the day your child passed away, these moments of blunt force trauma to the soul are brought about without any warning or advanced notice.

The Empty Chair of Harold Varmus, M.D.

Jonathan Agin | Posted 04.14.2013 | Impact
Jonathan Agin

It could not be more important that the federal government, through the direction of NCI, does more to fight childhood cancer.

Alexis Agin, You Are an Ironman

Jonathan Agin | Posted 04.07.2013 | Impact
Jonathan Agin

There are times in long endurance events when the destructive thoughts begin to filter through your brain, suggesting how truly pleasurable it would feel to simply take a seat and stop. As those thoughts taunted me, my mind turned to one thought: my daughter never quit, neither will I.

Open Letter to President Obama

Jonathan Agin | Posted 03.24.2013 | Impact
Jonathan Agin

I wanted to take this opportunity to bring to light an issue that I think deserves much more awareness and attention on the federal level. Childhood cancer. Childhood cancer is the number one disease killer of our children in this country. Were you aware of this fact?

Cancer One, War Less Than One

Jonathan Agin | Posted 03.21.2012 | Impact
Jonathan Agin

The FDA and the institutional review boards, rather than being impediments to patients gaining access to potentially life-saving drugs, must become a partner with patients. Regulatory impediments before parents must be eased.