iOS app Android app

Als

From the Heartwarming Real Story Behind the ALS Ice-Bucket Challenge to the Cancer #VolleyingChallenge

Paul Sanderson | Posted 02.25.2015 | Impact
Paul Sanderson

I began looking into the ice-bucket challenge because I was thinking of launching a challenge of my own. It turns out that it originated as the Cold Water Challenge. It was to donate to cancer research or jump into cold water. But my challenge is a bit different.

I Am Not Free to Move About the Cabin

Kevin Swan | Posted 02.23.2015 | Impact
Kevin Swan

The daily life of ALS is constantly filled with challenges for everyone involved. It is not just me, the patient (I hate that word), but for everyone around me. This is never more true than when travel, especially air travel, is on the horizon.

Here's What I Thought About The Theory of Everything as an ALS Patient

Dr. Christopher Pendergast | Posted 02.19.2015 | Healthy Living
Dr. Christopher Pendergast

So how would I react to a Hollywood conjured representation of a nightmare that I am forced to live every day?

Man With ALS Tells His Wife 'I Love You' For First Time In 15 Years

The Huffington Post | Ryan Grenoble | Posted 02.20.2015 | Good News

Don Moir was diagnosed with ALS in March 1995. By May of 1999, according to the video above, the nervous-system disease robbed him of his ability to s...

How Choosing to Go Public With Your Life Challenges Can Change the World

Kathy Caprino | Posted 02.17.2015 | Impact
Kathy Caprino

Claire's story reinforces a fundamental truth that is so important to remember but so easy to forget: Everyone you meet is fighting a hidden battle that you know nothing about. Be kind, and live from your heart, and share your love and support.

There's No Place Like Home: Caring for Our Ill, Disabled and Dying Loved Ones

BJ Gallagher | Posted 02.13.2015 | Healthy Living
BJ Gallagher

I often wonder about the millions of people who don't have any money -- those who don't have decades of savings to draw on for end-of-life care. What happens to them?

Love Letter to an Absent Twin: An Interview with Favorite Son Author Will Freshwater

Court Stroud | Posted 02.09.2015 | Gay Voices
Court Stroud

Author Will Freshwater agreed to chat with me about the inspiration behind writing his first book, including the encouragement of gay stand-up pioneer Bob Smith.

Is Aid in Dying a Civil Right Long Overdue?

Gail Sheehy | Posted 02.05.2015 | New York
Gail Sheehy

New York state is 18 years behind in offering terminally ill patients the legal right -- and comfort -- to make autonomous decisions about how to die when suffering intolerably from terminal disease.

News Anchor Announces He Has ALS In Heart-Wrenching Video

The Huffington Post | Leigh Weingus | Posted 01.26.2015 | Media

In an emotional message, longtime Raleigh, North Carolina news anchor Larry Stogner announced Friday he has been diagnosed with ALS and will be steppi...

Just a Lil' Potty Talk

Kevin Swan | Posted 01.21.2015 | Impact
Kevin Swan

Anyone who is familiar with ALS knows that it is tenacious and a master thief. It robs its victims of the physical use of their bodies, but maybe even more damaging is how it rapidly steals away elements of life like privacy and dignity.

Dying of ALS or Not

Carol Smaldino | Posted 01.21.2015 | Impact
Carol Smaldino

The film Still Alice starting Julianne Moore which deals with early onset Alzheimer's, has a back story in which one of the two directors was diagnosed with ALS, something poignant in and of itself, and something which had an impact on the film's direction as well.

Do You Believe in Miracles? Here's Living Proof!

Linda Bloom LCSW and Charlie Bloom MSW | Posted 01.12.2015 | Healthy Living
Linda Bloom LCSW and Charlie Bloom MSW

More than any other couple we've ever interviewed, Ron and Mariah embody the principle that when two hearts are separated, all difficulties can seem insurmountable, but when they are united as one, nothing is impossible.

Genes May Play A Larger Role In Lou Gehrig's Disease Than Previously Thought

Posted 12.08.2014 | Healthy Living

By: Rachael Rettner Published: 12/07/2014 10:00 AM EST on LiveScience In most cases of Lou Gehrig's disease, or amyotrophic lateral sclerosis (AL...

The Most Deserving Sportsman of the Year

Kevin Swan | Posted 02.02.2015 | Impact
Kevin Swan

There is still much work to be done, but the ALS Ice Bucket Challenge is our greatest chapter. For that reason, Pete Frates is my nominee for Sports Illustrated's Sportsman of the Year.

The Doctor and the Patient

Greg O'Brien | Posted 02.02.2015 | Healthy Living
Greg O'Brien

Barry says you can fish on the flats for two hours -- an hour before and after low tide -- without having to worry. The tide, as it is with aging, creeps in deceptively.

ALS Patient's Ice Bucket Challenge Was A Tearjerker, And So Is His Wedding Video

The Huffington Post | Ashley Reich | Posted 11.26.2014 | Weddings

Anthony Carbajal won the hearts of millions -- 16,276,733, to be exact -- with his touching ALS ice bucket challenge video, in which the 26-year-old r...

Beloved Former NFL Player Opens Up About Battle With ALS

The Monday Morning Quarterback | Posted 11.24.2014 | Sports

Epic punt-blocker, eight-year NFL veteran, ALS activist: Steve Gleason is both a symbol of recovery for Hurricane-ravaged New Orleans—his blocked pu...

Amanda Gutterman

Eddie Redmayne In 'The Theory Of Everything' Puts A Face To ALS

HuffingtonPost.com | Amanda Gutterman | Posted 11.24.2014 | Entertainment

Eddie Redmayne, playing a young Stephen Hawking, tries to explain to his Cambridge classmate that he's just been diagnosed with ALS. "I have motor neu...

Share This ALS Ted Talk The Same Way You Shared Your Ice Bucket Challenge

The Huffington Post | Eleanor Goldberg | Posted 11.20.2014 | Impact

When Pete Frates, 29, was diagnosed with ALS two years ago, he set one goal. The former D-1 college baseball player declared he would get this litt...

Needed: Buckets of Research

Llewellyn King | Posted 12.07.2014 | Science
Llewellyn King

Two seemingly unrelated items of medical news: Ebola is devastating West Africa and may spread around the world, and the entertaining ice bucket challenge has raised $115 million for ALS research. The linkage is that both diseases have needed and still need medical research. So do hundreds of other diseases and conditions.

Celebrities Are Grabbing Their Balls In New 'Ice Bucket'-Like Campaign

The Huffington Post | Dino Grandoni | Posted 10.03.2014 | Technology

Talk about a ballsy campaign. Taking a page out of the playbook of ALS fundraisers, two brothers have started a social media campaign called "Crotc...

That Other Syndrome

Laurie Townshend | Posted 11.25.2014 | Black Voices
Laurie Townshend

You are being distracted from the true debilitating disease plaguing this nation, namely DBLS: Disposable Black Life Syndrome.

The Ice Bucket Halo

Robin L. Smith | Posted 11.16.2014 | Impact
Robin L. Smith

I think there's a remarkable ice-bucket halo effect rippling across social media, one that is truly exciting for anyone who runs a healthcare charity. Every single day I see a new healthcare challenge popping up somewhere. People are inspired. They feel connected like never before.

Strategic Lessons From Dissecting the #ALSIceBucketChallenge

David Nour | Posted 11.11.2014 | Impact
David Nour

The Ice Bucket Challenge has proven that even in a time of philanthropic fatigue, the right call to do something for others can get our attention--and our action.

ALS Patient Says Support For His Ice Bucket Video That Broke The Internet Changed His Life

The Huffington Post | Dominique Mosbergen | Posted 09.09.2014 | Impact

It was a moment Anthony Carbajal will never forget: standing on the stage of one of TV’s most popular talk shows, fighting for a cause that touches ...