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Als

The Steve Gleason Act: A Triumph For The ALS Community

Sherwin Sheik | Posted 07.24.2015 | Good News
Sherwin Sheik

The passing of the Steve Gleason Act by Congress last week signals a major win for those living with ALS and touched me on a profoundly personal note as I recall the struggle my family faced in helping my uncle with the progressive, neurodegenerative disease find quality and affordable care.

The Summer Sequel You MUST See!

Kevin Swan | Posted 07.22.2015 | Impact
Kevin Swan

I have always been a movie guy. As long as I can remember, the entire movie-going experience has been a source of excitement and escapism.

Virus Hunters Turn to Social Media -- and Chili Peppers

Llewellyn King | Posted 07.15.2015 | Politics
Llewellyn King

Why were two of the world's most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths on fire?

Augie's Quest for a Cure

Mike Alpert | Posted 07.14.2015 | Impact
Mike Alpert

I have known Augie Nieto for over 25 years as the founder and owner of Life Fitness, one of the world's largest manufacturer's of Cardio & Strength equipment. When I first met Augie he was driving around in a Slugo Motor Home trying to sell his LifeCycles to Nautilus clubs.

ALS Stole My Body But Saved My Soul

Dr. Misee Harris | Posted 07.13.2015 | Impact
Dr. Misee Harris

The disease is strong, and without access to the means of someone like Stephen Hawking, Jason is in bad need of better care and living conditions in order to continue with his important mission. That is why his family and friends, have set up a GoFundMe campaign for Jason Pillow.

Who Are You? Identity and Dementia

Wray Herbert | Posted 06.10.2015 | Science
Wray Herbert

There is a widespread public perception that dementia can lead to a loss of a sense of self, but this notion has not been rigorously investigated. One way to study this is to look at actual cases of brain degeneration, and see if the damage is linked to identity changes perceived by others. Do people with specific kinds of brain damage become no longer themselves?

ALS Awareness Month -- Beyond the Ice Bucket Challenge

Stephen Finger | Posted 06.01.2015 | Impact
Stephen Finger

May was the first ALS Awareness Month since the Ice Bucket Challenge. That silly, organic, viral campaign did more for ALS awareness than years of marketing by any organization could have ever done. Millions of people created videos last summer. 

Disease-a-Week Challenge #1: How the California Stem Cell Program is Battling Lou Gehrig's Disease

Don C. Reed | Posted 05.28.2015 | Politics
Don C. Reed

Last year, chronic disease cost America as much as all federal income tax and the national debt combined. Let me prove that.

A Breathtaking View 100 Ft Below Ground

Kevin Swan | Posted 05.19.2015 | Impact
Kevin Swan

After living in New York City for almost 7 years, I feel like I am very familiar with most neighborhoods and certainly the many iconic buildings throughout Manhattan...or so I thought.

The Cold Reality That's Set In After Last Year's Ice Bucket Challenge

Dawn Q Landau | Posted 06.13.2015 | Fifty
Dawn Q Landau

While ALS has certainly gotten so much more focus than it would have otherwise, now that all the ice buckets from all the ice-bucket challenges have been emptied, those on the front line are still suffering, with too little funding and often with little company.

Cure Yourself of Planning and 'Dis Ease'

Craig Bowron | Posted 05.29.2015 | Healthy Living
Craig Bowron

I gave up on heroes a long time ago, but I still believe in prophets -- people who have a vision of what needs to be told, and the words and the imagi...

Man Gives 2 Strangers $100, Money Helps Village Halfway Around The World

The Huffington Post | Cameron Keady | Posted 03.17.2015 | Good News

Despite living with amyotrophic lateral sclerosis (ALS), a disease that is slowing down his body, Chris Rosati remains tireless in his efforts to make...

'Still Alice' Writer-Director Dies

AP | LINDSEY BAHR | Posted 03.11.2015 | Entertainment

LOS ANGELES (AP) — Richard Glatzer, who co-wrote and directed the Alzheimer's drama "Still Alice" alongside his husband, Wash Westmoreland, while ba...

Help Her Live Better Days: An ALS Documentary

Jennifer Wolfe | Posted 05.09.2015 | Impact
Jennifer Wolfe

You may not know anyone with ALS. You may not want to know about this disease, or how devastating it is. You may not want to think about things that are so frightening or painful or things that could actually happen to you.

Terminally Ill Woman's Dying Wish To See Rembrandt Exhibit For Last Time Is Fulfilled

The Associated Press | Posted 03.06.2015 | Good News

AMSTERDAM (AP) -- A Dutch charity has granted a terminally ill woman's dying wish, wheeling her into Amsterdam's Rijksmuseum on a special bed for a pr...

From the Heartwarming Real Story Behind the ALS Ice-Bucket Challenge to the Cancer #VolleyingChallenge

Paul Sanderson | Posted 04.27.2015 | Impact
Paul Sanderson

I began looking into the ice-bucket challenge because I was thinking of launching a challenge of my own. It turns out that it originated as the Cold Water Challenge. It was to donate to cancer research or jump into cold water. But my challenge is a bit different.

I Am Not Free to Move About the Cabin

Kevin Swan | Posted 04.25.2015 | Impact
Kevin Swan

The daily life of ALS is constantly filled with challenges for everyone involved. It is not just me, the patient (I hate that word), but for everyone around me. This is never more true than when travel, especially air travel, is on the horizon.

Here's What I Thought About The Theory of Everything as an ALS Patient

Dr. Christopher Pendergast | Posted 04.21.2015 | Healthy Living
Dr. Christopher Pendergast

So how would I react to a Hollywood conjured representation of a nightmare that I am forced to live every day?

Man With ALS Tells His Wife 'I Love You' For First Time In 15 Years

The Huffington Post | Ryan Grenoble | Posted 02.20.2015 | Good News

Don Moir was diagnosed with ALS in March 1995. By May of 1999, according to the video above, the nervous-system disease robbed him of his ability to s...

How Choosing to Go Public With Your Life Challenges Can Change the World

Kathy Caprino | Posted 04.19.2015 | Impact
Kathy Caprino

Claire's story reinforces a fundamental truth that is so important to remember but so easy to forget: Everyone you meet is fighting a hidden battle that you know nothing about. Be kind, and live from your heart, and share your love and support.

There's No Place Like Home: Caring for Our Ill, Disabled and Dying Loved Ones

BJ Gallagher | Posted 04.15.2015 | Healthy Living
BJ Gallagher

I often wonder about the millions of people who don't have any money -- those who don't have decades of savings to draw on for end-of-life care. What happens to them?

Love Letter to an Absent Twin: An Interview with Favorite Son Author Will Freshwater

Court Stroud | Posted 04.10.2015 | Gay Voices
Court Stroud

Author Will Freshwater agreed to chat with me about the inspiration behind writing his first book, including the encouragement of gay stand-up pioneer Bob Smith.

Is Aid in Dying a Civil Right Long Overdue?

Gail Sheehy | Posted 04.07.2015 | New York
Gail Sheehy

New York state is 18 years behind in offering terminally ill patients the legal right -- and comfort -- to make autonomous decisions about how to die when suffering intolerably from terminal disease.

News Anchor Announces He Has ALS In Heart-Wrenching Video

The Huffington Post | Leigh Weingus | Posted 01.26.2015 | Media

In an emotional message, longtime Raleigh, North Carolina news anchor Larry Stogner announced Friday he has been diagnosed with ALS and will be steppi...

Just a Lil' Potty Talk

Kevin Swan | Posted 03.23.2015 | Impact
Kevin Swan

Anyone who is familiar with ALS knows that it is tenacious and a master thief. It robs its victims of the physical use of their bodies, but maybe even more damaging is how it rapidly steals away elements of life like privacy and dignity.