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The Cost of ALS Is Killing Us, and Our Vets

Jay Smith | Posted 11.19.2015 | Politics
Jay Smith

ALS is a very expensive disease, costing patients an estimated $300,000 a year. The average life expectancy for someone with ALS is 18 months. We wouldn't leave a soldier with a battle wound sitting around waiting to see a doctor for 16 months. So why are we now?

Amazing Race Ain't Got Nothing on ALS

Kevin Swan | Posted 10.13.2015 | Impact
Kevin Swan

The pope, the president and I walk into a bar. Ok, it didn't go exactly like that but you get the idea. A couple weeks ago we had our foundation's fourth annual culinary spectacular at Hearth restaurant in New York City.

The Cubs Are Doing What Modern Medicine Isn't

Kevin Swan | Posted 09.24.2015 | Impact
Kevin Swan

This year the Cubs and my ALS have had a lot to do with each other. Baseball is an eternity of a season (ask my girlfriend Elizabeth who has uttered "They play again tonight") that lasts a 162 games in a 188 days. It is a true war of attrition. A lot like ALS.

NYC's Top Chefs Prepare the Ultimate Family Dinner

Kevin Swan | Posted 09.21.2015 | Impact
Kevin Swan

This year's event will have an extra special amount of love and support. In the three previous years, my co-host has been the NYC great, Chef Gerry Hayden who was fighting the same disease. Not only was he a brother in arms, his beautiful and talented wife is Chef Claudia Flemming, the evening's pastry chef.

Mom With ALS Shares Incredible Breastfeeding Story In Viral Post

The Huffington Post | Caroline Bologna | Posted 09.11.2015 | Parents

Just two weeks after learning she was pregnant, Amanda Bernier received a heartbreaking diagnosis: amyotrophic lateral sclerosis, or ALS.  After ...

Neurological Diseases vs. the California Stem Cell Agency: Disease-a-Week Challenge #16

Don C. Reed | Posted 09.04.2015 | Science
Don C. Reed

First, a seeming digression from the subject of chronic illness. In my youth, I worked as an aquarium diver for Marine World Africa USA in Redwood Ci...

How Jerry Lewis Seduced Me

Petra Perkins | Posted 08.26.2015 | Entertainment
Petra Perkins

In the tradition of Same Time, Next Year where Alan Alda and Ellen Burstyn trysted annually for a quarter century, I was intimate with Jerry Lewis, every September. I'd meet him on Labor Day and we'd spend the entire night together. Drinks, dinner.

How The Ice Bucket Challenge Has Changed ALS Research

The Huffington Post | Leigh Weingus | Posted 08.13.2015 | Healthy Living

Last summer was full of people dumping buckets of ice on their heads in the name of funding ALS research. A year later, it looks like it was totally ...

The ALS Ice Bucket Challenge Leads To Scientific Breakthroughs

The Huffington Post | Aaron Barksdale | Posted 08.11.2015 | Media

VICE: A Big New ALS Report Shows Your Ice Bucket Challenge Dollars At Work   It turns out that the naysayers who dismissed the Ice Bucket Challe...

What A Dad Facing Death Put At The Top Of His Bucket List

Jay Smith | Posted 08.10.2015 | Parents
Jay Smith

Two years ago, at age 35, I was running my own company, traveling the world and enjoying my family. Now, I can only move a few fingers, can't take a step unassisted, and spend my days in a wheelchair with my family feeding me like a baby -- or a king, depending on how you look at it.

The Steve Gleason Act: A Triumph For The ALS Community

Sherwin Sheik | Posted 07.24.2015 | Good News
Sherwin Sheik

The passing of the Steve Gleason Act by Congress last week signals a major win for those living with ALS and touched me on a profoundly personal note as I recall the struggle my family faced in helping my uncle with the progressive, neurodegenerative disease find quality and affordable care.

The Summer Sequel You MUST See!

Kevin Swan | Posted 07.22.2015 | Impact
Kevin Swan

I have always been a movie guy. As long as I can remember, the entire movie-going experience has been a source of excitement and escapism.

Virus Hunters Turn to Social Media -- and Chili Peppers

Llewellyn King | Posted 07.15.2015 | Politics
Llewellyn King

Why were two of the world's most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths on fire?

Augie's Quest for a Cure

Mike Alpert | Posted 07.14.2015 | Impact
Mike Alpert

I have known Augie Nieto for over 25 years as the founder and owner of Life Fitness, one of the world's largest manufacturer's of Cardio & Strength equipment. When I first met Augie he was driving around in a Slugo Motor Home trying to sell his LifeCycles to Nautilus clubs.

ALS Stole My Body But Saved My Soul

Dr. Misee Harris | Posted 07.13.2015 | Impact
Dr. Misee Harris

The disease is strong, and without access to the means of someone like Stephen Hawking, Jason is in bad need of better care and living conditions in order to continue with his important mission. That is why his family and friends, have set up a GoFundMe campaign for Jason Pillow.

Who Are You? Identity and Dementia

Wray Herbert | Posted 06.10.2015 | Science
Wray Herbert

There is a widespread public perception that dementia can lead to a loss of a sense of self, but this notion has not been rigorously investigated. One way to study this is to look at actual cases of brain degeneration, and see if the damage is linked to identity changes perceived by others. Do people with specific kinds of brain damage become no longer themselves?

ALS Awareness Month -- Beyond the Ice Bucket Challenge

Stephen Finger | Posted 06.01.2015 | Impact
Stephen Finger

May was the first ALS Awareness Month since the Ice Bucket Challenge. That silly, organic, viral campaign did more for ALS awareness than years of marketing by any organization could have ever done. Millions of people created videos last summer. 

Disease-a-Week Challenge #1: How the California Stem Cell Program is Battling Lou Gehrig's Disease

Don C. Reed | Posted 05.28.2015 | Politics
Don C. Reed

Last year, chronic disease cost America as much as all federal income tax and the national debt combined. Let me prove that.

A Breathtaking View 100 Ft Below Ground

Kevin Swan | Posted 05.19.2015 | Impact
Kevin Swan

After living in New York City for almost 7 years, I feel like I am very familiar with most neighborhoods and certainly the many iconic buildings throughout Manhattan...or so I thought.

The Cold Reality That's Set In After Last Year's Ice Bucket Challenge

Dawn Q Landau | Posted 06.13.2015 | Fifty
Dawn Q Landau

While ALS has certainly gotten so much more focus than it would have otherwise, now that all the ice buckets from all the ice-bucket challenges have been emptied, those on the front line are still suffering, with too little funding and often with little company.

Cure Yourself of Planning and 'Dis Ease'

Craig Bowron | Posted 05.29.2015 | Healthy Living
Craig Bowron

I gave up on heroes a long time ago, but I still believe in prophets -- people who have a vision of what needs to be told, and the words and the imagi...

Man Gives 2 Strangers $100, Money Helps Village Halfway Around The World

The Huffington Post | Cameron Keady | Posted 03.17.2015 | Good News

Despite living with amyotrophic lateral sclerosis (ALS), a disease that is slowing down his body, Chris Rosati remains tireless in his efforts to make...

'Still Alice' Writer-Director Dies

AP | LINDSEY BAHR | Posted 03.11.2015 | Entertainment

LOS ANGELES (AP) — Richard Glatzer, who co-wrote and directed the Alzheimer's drama "Still Alice" alongside his husband, Wash Westmoreland, while ba...

Help Her Live Better Days: An ALS Documentary

Jennifer Wolfe | Posted 05.09.2015 | Impact
Jennifer Wolfe

You may not know anyone with ALS. You may not want to know about this disease, or how devastating it is. You may not want to think about things that are so frightening or painful or things that could actually happen to you.

Terminally Ill Woman's Dying Wish To See Rembrandt Exhibit For Last Time Is Fulfilled

The Associated Press | Posted 03.06.2015 | Good News

AMSTERDAM (AP) -- A Dutch charity has granted a terminally ill woman's dying wish, wheeling her into Amsterdam's Rijksmuseum on a special bed for a pr...