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Amyotrophic Lateral Sclerosis

The Steve Gleason Act: A Triumph For The ALS Community

Sherwin Sheik | Posted 07.24.2015 | Good News
Sherwin Sheik

The passing of the Steve Gleason Act by Congress last week signals a major win for those living with ALS and touched me on a profoundly personal note as I recall the struggle my family faced in helping my uncle with the progressive, neurodegenerative disease find quality and affordable care.

Five Reasons You Should Do the ALS Ice Bucket Challenge Again!

Mark Malinowski | Posted 07.17.2015 | Impact
Mark Malinowski

All diseases are bad, but I've seen ALS up close and personal for nine years and it is horrific. My partner and husband Randy died in 2014 and he was only 41. He was young and vital and this disease slowly took over and killed him in the cruelest way imaginable. We need to find a cure now.

Creativity, a Pathway to Hope

New Harbinger | Posted 07.16.2015 | Healthy Living
New Harbinger

"What are you going to do when he is gone?" I don't think my beloved girlfriend expects an answer. Her question floats out on a sigh of concern as ...

Inspiration and Wisdom From Greece With the Challenge of ALS

Father Sophronios | Posted 06.03.2015 | Impact
Father Sophronios

My name is Father Sophronios and I am a Greek Orthodox monk living with (Amyotrophic Lateral Sclerosis) ALS for the past five years on the island of Crete in Greece. I want to share with you some of my experiences.

Cure Yourself of Planning and 'Dis Ease'

Craig Bowron | Posted 05.29.2015 | Healthy Living
Craig Bowron

I gave up on heroes a long time ago, but I still believe in prophets -- people who have a vision of what needs to be told, and the words and the imagi...

A True Patriots Fan in Life and Death

Mark Malinowski | Posted 04.04.2015 | Sports
Mark Malinowski

My partner Randy died of ALS nearly a year ago. His fight was a long one -- nine years. We moved to Boston from New York City in 2008 and soon thereafter Randy became a Patriots fan.

Just a Lil' Potty Talk

Kevin Swan | Posted 03.23.2015 | Impact
Kevin Swan

Anyone who is familiar with ALS knows that it is tenacious and a master thief. It robs its victims of the physical use of their bodies, but maybe even more damaging is how it rapidly steals away elements of life like privacy and dignity.

Iconic Interview: Kristen Stewart on 'Still Alice'

Andrew Fish | Posted 03.15.2015 | Entertainment
Andrew Fish

Stewart's character is the only one who can face her mother, illness and all, head-on with love, sympathy and the innate decency not to treat her any differently. Alice's relationship with Lydia is the tie that truly binds.

The Worst Year of My Life

Mark Malinowski | Posted 03.08.2015 | Healthy Living
Mark Malinowski

As 2015 begins, I cannot help but think of all that has happened in my in life in 2014. I lost my beloved husband Randy to ALS in March. He fought t...

An Artist With a Big, Blue Heart Fights ALS

Mark Malinowski | Posted 02.10.2015 | Impact
Mark Malinowski

Finding success at an early age, Tobie Giddio began illustrating advertisements for Bergdorf Goodman soon after graduating from college. The ads were somewhat iconic and ran through the end of the '80s.

Best Health-Themed Movie of 2014: The Nominees Are Announced

Cary A. Presant, M.D. | Posted 02.07.2015 | Entertainment
Cary A. Presant, M.D.

Awards shows are coming, and everyone is watching to see which films will be considered the best. For two years I have been awarding the best health-themed movie of the year. 2014 has several movies that are deserving of my nomination.

Moving Through Grief

Mark Malinowski | Posted 01.10.2015 | Healthy Living
Mark Malinowski

When you lose someone in your life who you love more than yourself, the experience will change you forever. I know I will never be the same. It will happen to most of us. and it's important to give yourself the permission and time to discover who you are following a great loss.

Celebrities Are Grabbing Their Balls In New 'Ice Bucket'-Like Campaign

The Huffington Post | Dino Grandoni | Posted 10.03.2014 | Technology

Talk about a ballsy campaign. Taking a page out of the playbook of ALS fundraisers, two brothers have started a social media campaign called "Crotc...

What the Pink Ribbon Can Learn From the Ice Bucket

Mark Malinowski | Posted 11.23.2014 | Impact
Mark Malinowski

After an incredible summer of ALS Ice Bucket Challenges, I think it's important to review this zeitgeist moment in order to learn. On the dawn of Breast Cancer Awareness Month, I think it's also interesting to compare and contrast the grassroots ALS Ice Bucket Challenge with years of "Pink" efforts to support Breast Cancer.

Celebrity the Art of ALS Through Artists Lend Support

Mark Malinowski | Posted 11.12.2014 | Impact
Mark Malinowski

For Brian, it took a terminal illness to fully appreciate the multitude of blessings that come with just being alive. His rediscovered love for the basic beauty of life, lead him to reconnect with artists and their work.

Kids Take Ice Bucket Dumping To An Adorable New Level In ALS Challenge Videos

The Huffington Post | Caroline Bologna | Posted 08.26.2014 | Parents

Unless you've been living in social media isolation for the past couple of weeks, you've probably noticed an onslaught of ice bucket challenge videos ...

In Defense Of Pamela Anderson

Aysha Akhtar, M.D., M.P.H. | Posted 10.25.2014 | Science
Aysha Akhtar, M.D., M.P.H.

How much closer would we be to a cure today if instead of wasting millions of dollars on failed animal experiments, the money had been used to create more effective human-based testing methods that accurately recreated the disease?

Benedict Cumberbatch Just One-Upped Everyone With His Ice Bucket Challenge

The Huffington Post | Lily Karlin | Posted 08.22.2014 | Entertainment

Benedict Cumberbatch has officially taken on the Ice Bucket Challenge -- or should we say Ice Buckets Challenge. In an over two-minute video pos...

O.J. Brigance: ALS Warrior and Giant Among Men

Kandice Ferrell | Posted 10.21.2014 | Impact
Kandice Ferrell

Entering O.J.'s office at Ravens Training Camp, you are immediately drawn in by his smile. It is enormous, radiant and genuine. While settling in for our interview, I was amazed by the combination of love and strength in the room.

This Man Has ALS. If You Only Watch One More Ice Bucket Challenge, It Should Be His

The Huffington Post | Dominique Mosbergen | Posted 09.09.2014 | Impact

Over the last few weeks, social media has gone berserk with the #ALSIceBucketChallenge, as celebrities, tech moguls, politicians, and people everywher...

Is the ALS Ice Bucket Challenge Art?

Mat Gleason | Posted 10.19.2014 | Arts
Mat Gleason

Two approaches to art practice fancy themselves to be the most radical fringes of all self expression: Performance Art and Social Practice. And in the past few weeks, Middle America has embraced their methods.

Beyond the Bucket: Giving ALS Patients a Voice of Their Own

Mark Malinowski | Posted 10.19.2014 | Impact
Mark Malinowski

Late last year my partner Randy began to drastically decline after years of fighting ALS. He was no longer mobile, he was down to 92 pounds (from a high of 165) and he was losing his ability to speak.

This Man Lost His Mom To ALS; And He Wants You To Know What The Disease Is Really Like

The Huffington Post | Dominique Mosbergen | Posted 08.18.2014 | Healthy Living

It seems just about everyone is taking the #ALSIceBucketChallenge this month -- from tech moguls, politicians, athletes and entertainers, to teachers,...

Why People Need To Stop Hating On The Ice Bucket Challenge

Allison Lantagne | Posted 08.13.2014 | Teen
Allison Lantagne

No matter what your stance on this particular campaign is, it boils down to a lot of money going towards doctors, nurses and scientists trying to improve the quality of life for the ill, and if we can't agree on that, what do we have left?

For All Those Complaining About the ALS #icebucketchallenge: 10 Reasons Why You Shouldn't

Mark Malinowski | Posted 10.12.2014 | Impact
Mark Malinowski

ALS is referred to as an "orphan disease," meaning people don't know what it is (unlike cancer and heart disease). That equates to a disease that's underfunded and under-researched.