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Amyotrophic Lateral Sclerosis

Moving Through Grief

Mark Malinowski | Posted 11.10.2014 | Healthy Living
Mark Malinowski

When you lose someone in your life who you love more than yourself, the experience will change you forever. I know I will never be the same. It will happen to most of us. and it's important to give yourself the permission and time to discover who you are following a great loss.

Celebrities Are Grabbing Their Balls In New 'Ice Bucket'-Like Campaign

The Huffington Post | Dino Grandoni | Posted 10.03.2014 | Technology

Talk about a ballsy campaign. Taking a page out of the playbook of ALS fundraisers, two brothers have started a social media campaign called "Crotc...

What the Pink Ribbon Can Learn From the Ice Bucket

Mark Malinowski | Posted 11.23.2014 | Impact
Mark Malinowski

After an incredible summer of ALS Ice Bucket Challenges, I think it's important to review this zeitgeist moment in order to learn. On the dawn of Breast Cancer Awareness Month, I think it's also interesting to compare and contrast the grassroots ALS Ice Bucket Challenge with years of "Pink" efforts to support Breast Cancer.

Celebrity the Art of ALS Through Artists Lend Support

Mark Malinowski | Posted 11.12.2014 | Impact
Mark Malinowski

For Brian, it took a terminal illness to fully appreciate the multitude of blessings that come with just being alive. His rediscovered love for the basic beauty of life, lead him to reconnect with artists and their work.

Kids Take Ice Bucket Dumping To An Adorable New Level In ALS Challenge Videos

The Huffington Post | Caroline Bologna | Posted 08.26.2014 | Parents

Unless you've been living in social media isolation for the past couple of weeks, you've probably noticed an onslaught of ice bucket challenge videos ...

In Defense Of Pamela Anderson

Aysha Akhtar, M.D., M.P.H. | Posted 10.25.2014 | Science
Aysha Akhtar, M.D., M.P.H.

How much closer would we be to a cure today if instead of wasting millions of dollars on failed animal experiments, the money had been used to create more effective human-based testing methods that accurately recreated the disease?

Benedict Cumberbatch Just One-Upped Everyone With His Ice Bucket Challenge

The Huffington Post | Lily Karlin | Posted 08.22.2014 | Entertainment

Benedict Cumberbatch has officially taken on the Ice Bucket Challenge -- or should we say Ice Buckets Challenge. In an over two-minute video pos...

O.J. Brigance: ALS Warrior and Giant Among Men

Kandice Ferrell | Posted 10.21.2014 | Impact
Kandice Ferrell

Entering O.J.'s office at Ravens Training Camp, you are immediately drawn in by his smile. It is enormous, radiant and genuine. While settling in for our interview, I was amazed by the combination of love and strength in the room.

This Man Has ALS. If You Only Watch One More Ice Bucket Challenge, It Should Be His

The Huffington Post | Dominique Mosbergen | Posted 09.09.2014 | Impact

Over the last few weeks, social media has gone berserk with the #ALSIceBucketChallenge, as celebrities, tech moguls, politicians, and people everywher...

Is the ALS Ice Bucket Challenge Art?

Mat Gleason | Posted 10.19.2014 | Arts
Mat Gleason

Two approaches to art practice fancy themselves to be the most radical fringes of all self expression: Performance Art and Social Practice. And in the past few weeks, Middle America has embraced their methods.

Beyond the Bucket: Giving ALS Patients a Voice of Their Own

Mark Malinowski | Posted 10.19.2014 | Impact
Mark Malinowski

Late last year my partner Randy began to drastically decline after years of fighting ALS. He was no longer mobile, he was down to 92 pounds (from a high of 165) and he was losing his ability to speak.

This Man Lost His Mom To ALS; And He Wants You To Know What The Disease Is Really Like

The Huffington Post | Dominique Mosbergen | Posted 08.18.2014 | Healthy Living

It seems just about everyone is taking the #ALSIceBucketChallenge this month -- from tech moguls, politicians, athletes and entertainers, to teachers,...

For All Those Complaining About the ALS #icebucketchallenge: 10 Reasons Why You Shouldn't

Mark Malinowski | Posted 10.12.2014 | Impact
Mark Malinowski

ALS is referred to as an "orphan disease," meaning people don't know what it is (unlike cancer and heart disease). That equates to a disease that's underfunded and under-researched.

75 Years Later, Lou Gehrig's "Luckiest Man on the Face of Earth" Speech, Remains the Greatest Speech in Sports History

Dave Kreissman | Posted 09.07.2014 | Sports
Dave Kreissman

On July 4, 1939 a frail Henry Louis Gehrig stepped in front of a packed crowd at Yankee Stadium. The Manhattan-native knew he was sick, but he was unaware that his illness (Amyotrophic lateral sclerosis or ALS) would soon claim his life.

Thinking About Theater and Ode to Joy

Cara Joy David | Posted 08.20.2014 | Arts
Cara Joy David

For a change of pace, today I'm offering you a series of random theater-related thoughts. None of which could take up a post on its own, but together they seem worthy.

75 Years Later, Gehrig's Still the Man

Ken Reed | Posted 08.09.2014 | Sports
Ken Reed

Gehrig was not only a great baseball player, he was a great man. Not only did he set a standard that all baseball players can aspire to, as Landis pointed out, he also set a standard that all human beings can aim for, whatever role they play in life.

What Happens When the Love of Your Life Dies?

Mark Malinowski | Posted 07.27.2014 | Healthy Living
Mark Malinowski

After a nine-year battle, my husband Randy Pipkin died of ALS in late March. Aside from the horrors of ALS, we had a great life together. We lived in the moment and truly were partners in life. Before Randy got sick, we traveled the world, lived in New York City and enjoyed the best life had to offer. We had big jobs, a big life and, most importantly, we were truly in love.

They May Call It Lou Gehrig's Disease, but They'll Call It Augie Nieto's Cure

Rich Polt | Posted 07.15.2014 | Impact
Rich Polt

Augie Nieto didn't just come to grips with his ALS, he began to persevere and overcome. He summoned those same rare qualities that made him an effective and respected leader, and applied them to his new reality.

The Last Blog Post

Mark Malinowski | Posted 06.24.2014 | Impact
Mark Malinowski

We watched movies. We drove around our town, Hingham, and took in the beautiful sites on the South Shore of Boston. We tried, until the very end, to keep our life together going.

Post-Surgery Hell and the Important Lessons Learned

Randy Pipkin | Posted 05.27.2014 | Healthy Living
Randy Pipkin

I have been fighting a PEG tube for long time. But never in my wildest imagination would I think the experience would turn into a gore fest. So, what did I learn from all of this?

Changing My Body to Stay Alive

Randy Pipkin | Posted 04.02.2014 | Healthy Living
Randy Pipkin

My spouse Mark and I begin a new journey this month. The second half of last year kicked my ass and left me in a severely weakened state. I lost 30 pounds in six months. It was weight that I could not afford to lose.

Why the NFL Should Embrace Medical Marijuana

Steph Sherer | Posted 02.19.2014 | Sports
Steph Sherer

The following is an open letter to the two most powerful people in football to explain why and to provide policy suggestions they should consider when drafting the new NFL Policy and Program for Substance Abuse.

How Facebook Gives Me A Voice After ALS Took It Away

Hiro Fujita | Posted 01.25.2014 | Good News
Hiro Fujita

In January, I had to get a tracheotomy so I now breathe through a tube. This means I can no longer speak, but it does not mean I am giving up. My friends give me strength and I will keep fighting. For myself. For others. For a cure. My voice is louder now that ALS took it away.

The 'Dis-Ease' of Disease: Who's Living Well?

Craig Bowron | Posted 01.23.2014 | Healthy Living
Craig Bowron

We've all heard stories from cancer survivors or cancer non-survivors about how the cancer made them more alive than ever, about how it brought their world out of black and white and into Technicolor, like Dorothy landing in Oz.

Why the NFL Needs to Have Its Head Examined

Aysha Akhtar, M.D., M.P.H. | Posted 01.23.2014 | Science
Aysha Akhtar, M.D., M.P.H.

The NFL continues to fund misleading head injury studies on animals that will not get the league closer to identifying the precise causes of brain trauma in football players and how to prevent and treat it.