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Amyotrophic Lateral Sclerosis

Partnerships Play a Key Role in the Battle Against Brain Diseases

Howard Fillit, MD | Posted 06.06.2016 | Impact
Howard Fillit, MD

When the Lauder family founded the Alzheimer's Drug Discovery Foundation (ADDF) in 1998, they knew that proprietary boundaries would only limit effort...

Artists and Real-life Superheroes Come Together to Fight ALS

Mark Malinowski | Posted 06.06.2016 | Impact
Mark Malinowski

When Amyotrophic Lateral Sclerosis (ALS) takes over your life, it's hard to think about the beautiful things that exist in this world... especially th...

How a Service Dog Saved My Life

Stuart Sherman | Posted 04.05.2016 | Healthy Living
Stuart Sherman

Today, Swanson is my companion who looks to me for direction and who gets excited when she completes tasks. She infuses my heart with gratitude and her energy is contagious.

Advocacy Drives Medical Progress Forward

Mary Woolley | Posted 04.05.2016 | Politics
Mary Woolley

We should and must continue to invest sufficiently in research to keep pace with scientific opportunity. Congress must increase funding for the NIH by at least 10 percent ($3.2 billion) in FY17 to help patients like Lorri who are determined to find solutions to what ails us.

Grief: Two Years and Counting...

Mark Malinowski | Posted 03.27.2016 | Healthy Living
Mark Malinowski

Knowing that I will be living with a hole in my heart for the rest of my life, I had to take some time to figure out my next steps at this point in my journey. Here's what I have come up with:

The Social Security Con: How Stay-at-home Moms (or Dads) Lose Their Social Security Disability

Margaret M. Kruse | Posted 03.14.2016 | Politics
Margaret M. Kruse

Applying for SSDI is a more difficult decision than anyone can imagine. It means looking at your once healthy self in the mirror and saying, "I am a disabled person." Can you do that? Can you even conceive of it? Neither could my sister-in-law just two short years ago.

One Man Makes a Difference with 'ALS One'

Mark Malinowski | Posted 01.26.2016 | Impact
Mark Malinowski

When a fatal disease like ALS comes into your life you have two choices: accept the diagnosis and wait to die or use everything you've got to fight. When Kevin Gosnell was diagnosed, he chose to fight. Kevin immediately put his business acumen and CEO leadership skills to work to come up with an idea - ALS ONE.

The Next Big Short

Judy Frankel | Posted 01.13.2016 | Business
Judy Frankel

Mike Burry, the hedge fund manager featured in the movie The Big Short, anticipated the housing crash by reading loan documents. Similarly, those in the food and agriculture arena predict a massive shift in farming practices by studying the inimical effects of the widely used weedkiller, RoundUp®.

The ALS Ice Bucket Challenge Returns! Check Out These Celebrity Ice Bucket Challenges.

Jeryl Brunner | Posted 08.29.2015 | Impact
Jeryl Brunner

Remember this time last year when your Facebook feed was littered with videos of friends getting doused with ice water to help raise funds for curing amyotrophic lateral sclerosis (ALS)? One year later the #ALSIceBucketChallenge is back!

Efforts Initiated to Conduct First FDA Phase I Trial for ALS

April Rudin | Posted 07.30.2015 | Impact
April Rudin

Although designated an "orphan disease" because it affects less than 200,000 Americans, Amyotrophic Lateral Sclerosis (ALS) saw millions of benefactors stand tall last year to douse themselves with ice water in support of a cure. The numbers were staggering.

The Steve Gleason Act: A Triumph For The ALS Community

Sherwin Sheik | Posted 07.24.2015 | Good News
Sherwin Sheik

The passing of the Steve Gleason Act by Congress last week signals a major win for those living with ALS and touched me on a profoundly personal note as I recall the struggle my family faced in helping my uncle with the progressive, neurodegenerative disease find quality and affordable care.

Five Reasons You Should Do the ALS Ice Bucket Challenge Again!

Mark Malinowski | Posted 07.17.2016 | Impact
Mark Malinowski

All diseases are bad, but I've seen ALS up close and personal for nine years and it is horrific. My partner and husband Randy died in 2014 and he was only 41. He was young and vital and this disease slowly took over and killed him in the cruelest way imaginable. We need to find a cure now.

Creativity, a Pathway to Hope

New Harbinger | Posted 07.16.2016 | Healthy Living
New Harbinger

"What are you going to do when he is gone?" I don't think my beloved girlfriend expects an answer. Her question floats out on a sigh of concern as ...

Inspiration and Wisdom From Greece With the Challenge of ALS

Father Sophronios | Posted 06.03.2016 | Impact
Father Sophronios

My name is Father Sophronios and I am a Greek Orthodox monk living with (Amyotrophic Lateral Sclerosis) ALS for the past five years on the island of Crete in Greece. I want to share with you some of my experiences.

Cure Yourself of Planning and 'Dis Ease'

Craig Bowron | Posted 05.29.2015 | Healthy Living
Craig Bowron

I gave up on heroes a long time ago, but I still believe in prophets -- people who have a vision of what needs to be told, and the words and the imagi...

A True Patriots Fan in Life and Death

Mark Malinowski | Posted 04.04.2015 | Sports
Mark Malinowski

My partner Randy died of ALS nearly a year ago. His fight was a long one -- nine years. We moved to Boston from New York City in 2008 and soon thereafter Randy became a Patriots fan.

Just a Lil' Potty Talk

Kevin Swan | Posted 03.23.2015 | Impact
Kevin Swan

Anyone who is familiar with ALS knows that it is tenacious and a master thief. It robs its victims of the physical use of their bodies, but maybe even more damaging is how it rapidly steals away elements of life like privacy and dignity.

Iconic Interview: Kristen Stewart on 'Still Alice'

Andrew Fish | Posted 03.15.2015 | Entertainment
Andrew Fish

Stewart's character is the only one who can face her mother, illness and all, head-on with love, sympathy and the innate decency not to treat her any differently. Alice's relationship with Lydia is the tie that truly binds.

The Worst Year of My Life

Mark Malinowski | Posted 03.08.2015 | Healthy Living
Mark Malinowski

As 2015 begins, I cannot help but think of all that has happened in my in life in 2014. I lost my beloved husband Randy to ALS in March. He fought t...

An Artist With a Big, Blue Heart Fights ALS

Mark Malinowski | Posted 02.10.2015 | Impact
Mark Malinowski

Finding success at an early age, Tobie Giddio began illustrating advertisements for Bergdorf Goodman soon after graduating from college. The ads were somewhat iconic and ran through the end of the '80s.

Best Health-Themed Movie of 2014: The Nominees Are Announced

Cary A. Presant, M.D. | Posted 02.07.2015 | Entertainment
Cary A. Presant, M.D.

Awards shows are coming, and everyone is watching to see which films will be considered the best. For two years I have been awarding the best health-themed movie of the year. 2014 has several movies that are deserving of my nomination.

Moving Through Grief

Mark Malinowski | Posted 01.10.2015 | Healthy Living
Mark Malinowski

When you lose someone in your life who you love more than yourself, the experience will change you forever. I know I will never be the same. It will happen to most of us. and it's important to give yourself the permission and time to discover who you are following a great loss.

Celebrities Are Grabbing Their Balls In New 'Ice Bucket'-Like Campaign

The Huffington Post | Dino Grandoni | Posted 10.03.2014 | Technology

Talk about a ballsy campaign. Taking a page out of the playbook of ALS fundraisers, two brothers have started a social media campaign called "Crotc...

What the Pink Ribbon Can Learn From the Ice Bucket

Mark Malinowski | Posted 11.23.2014 | Impact
Mark Malinowski

After an incredible summer of ALS Ice Bucket Challenges, I think it's important to review this zeitgeist moment in order to learn. On the dawn of Breast Cancer Awareness Month, I think it's also interesting to compare and contrast the grassroots ALS Ice Bucket Challenge with years of "Pink" efforts to support Breast Cancer.

Celebrity the Art of ALS Through Artists Lend Support

Mark Malinowski | Posted 11.12.2014 | Impact
Mark Malinowski

For Brian, it took a terminal illness to fully appreciate the multitude of blessings that come with just being alive. His rediscovered love for the basic beauty of life, lead him to reconnect with artists and their work.