NF has so many variations and the severity and manifestations can vary greatly, even among family members. Sometimes the manifestations of NF are invisible, and with many with NF, you might not know someone has it, unless you know what to look for.
Participating in clinical trials makes me feel extremely hopeful. Any study promises a chance of therapeutic benefit, but to me, none of these drugs work until proven, so therapeutic benefit is not my expectation.
What happens if you turn the being genuinely myself -button to full volume? Or do you want to skillfully combine discipline and liberation? What kind of self-leadership strategy serves you and our environment best?
Have you fallen into the "who's busier?" trap? How do you stay sane when life becomes overwhelming and busy? Mother's Day is the perfect time for me to be more conscientious and stop overcommitting, over-stretching, and comparing my busy-ness to other moms.
It's so easy to take the same route to work day after day and fall into a routine. Of course there's nothing wrong with routine, as long as it's serving you well. Routine can help give us structure and stability.
Different partners draw out of us different emotions -- some we didn't even know we had -- and sustaining a relationship becomes tedious from both ends. But we must ensure that at least we're doing our part. So how do we navigate it through it all and improve the quality of our love?
Are you living and leading, right now, by drift or by design? Are you conscious and intentional and designing the actions needed to take care of what you most care about? Or, are you too busy reacting to circumstances, events, and what other people want for and from you?
He is unmissable. He is loud. His tongue is more out of his mouth than it is in. He is handsome, cheeky and adorable. I don't hide him and I don't hide his autism. He doesn't hide his diagnosis either.
It seems to be a signature of our time that old-style nation-states built on mono-ethnic and mono-cultural contexts are being infused with ethnic and cultural diversity from around the world--thus prompting countries like Germany to shift their national identity from shared blood to shared ideas.
Genocide is never the same thing twice, but its consequences for the victims and the survivors are chillingly similar. Comparing human suffering between one genocide and another serves no purpose and to my knowledge there is no meter for human pain.
Of course, we're taught not to judge a situation unless we've been through it ourselves; however, where parenting is concerned, once that baby is out it's pretty hard to look at other parents the same again.