I've shared stories with parents whose children, like my own daughter, have or have had a brain tumor. Many parents say that it took weeks, or even months, for their children to be correctly diagnosed. In our case, we were one of the "lucky" ones -- although I hesitate to use that word because my child died, albeit five years after diagnosis.
When you're first diagnosed with cancer, the hospital is the last place you ever wanted to be. Then when treatment stops, you miss going. It's not that you miss the treatments or the crappy way they make you feel. You miss the safety net of being able to check in with your doctor and the nurses on a regular basis.
Among his many achievements, Dr. Sender developed the joint Adolescent and Young Adult Cancer Program at CHOC Children's and UC Irvine Health and is currently the chairman of the United States' largest AYA patient advocacy group: Stupid Cancer. I had the opportunity to sit down with Dr. Sender to discuss his views on the AYA movement.