Losing my two boys at such a young age was devastating, and in our journey for answers we discovered that there was very limited understanding on cardiomyopathy in children and no support services for families affected by the disease. With this realization, my husband and I knew something had to be done to address the unmet needs of the disease.
You would never send your child into the ocean if you saw a shark. You would never send your child into a pool if you saw lightning. Let's treat our kids' hearts with the same sense of caution and urgency because the real threat to our kids may not be found in the water or sky. It is likely hiding in their chest.
Joey Middlemiss had a big heart. Like many first-graders, he loved music and Spider-Man. Tragically, however, he was struggling with cardiomyopathy, a muscular heart condition that took his life in September 2013. His best friend, Will Manganis, missed his buddy terribly and wanted to do whatever it took to make sure his memory lived on.