Times are changing. These kids are fighting harder and longer. Their stories are getting out there because the chemo drugs are not curing kids, but they are extending their lives. People ARE aware of them. Awareness of pediatric cancer is out there. But now we are getting stalled because the movement is not moving.
To be with Donna could be heartbreaking, and sometimes impossible, if we allowed ourselves to think about her death. We learned to detach from the reality of her dying in her presence. I think, if we were different parents, it could have easily gone the other way -- detaching from Donna. That was unacceptable.