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Childhood Cancer

Girl, 4, With Cancer Inspires Community To Raise Thousands For Research

gloucestertownship.patch.com | Posted 06.12.2013 | Impact

Watch out, cancer, here comes your worst enemy. She’s a new masked, pink-caped crusader with a bionic arm and an unwavering resolve not to let cance...

Teen WIth Brain Cancer Turns Grad Party Into Fundraiser

plymouth-mi.patch.com | Posted 05.31.2013 | Impact

Max Merget is no stranger to beating the odds -- the 18-year-old Salem High School senior has battled brain cancer four times in his young life. M...

Child Soldiers -- The Forgotten Victims

Jonathan Agin | Posted 07.28.2013 | Impact
Jonathan Agin

This Memorial Day, we paused to offer thanks to all those men and women who have bravely and selflessly donned the uniform of our country to ensure ou...

How I Explained My Miracle Baby's Story To Her

Amy Blumenfeld | Posted 07.18.2013 | Parents
Amy Blumenfeld

Those birds and bees conversations once reserved for junior high health class are now taking place between kids in the sandbox.

Adrift in the Waters of Childhood Cancer -- Arguing to Change the Standard of Care

Jonathan Agin | Posted 07.16.2013 | Impact
Jonathan Agin

April 11, 2008 will always remain etched in my memory for one simple reason. It is the day that we heard the words "your daughter has cancer." They are four of the worst words that a parent could ever imagine hearing.

Complain to Me, Please!

Jane Roper | Posted 05.16.2013 | Healthy Living
Jane Roper

Perspective is important. We should all keep in mind that our problems could be worse, and that all suffering is relative. This can help us feel less overwhelmed by our own challenges, more grateful for our many blessings, and more compelled to empathize with and help others.

What I Know About Motherhood Now That My Child Has Died

Sheila Quirke | Posted 07.10.2013 | Parents
Sheila Quirke

It is so very easy to get stuck in the muck of mothering. It is tough freaking stuff. I work hard to not get caught up in the minutia anymore. It just doesn't matter.

A Recipe for Success - Lemonade Days Returns With the Help of Some Famous Foodies

Jay Scott | Posted 07.09.2013 | Impact
Jay Scott

As we have done every year since my daughter Alexandra "Alex" Scott held her very first front yard lemonade stand, volunteers across the country will host over 2,000 lemonade stands and events to raise funds for the fight against kids' cancer during National Lemonade Days.

Teens With Cancer Raise Funds For Each Other

AP | TAMARA LUSH | Posted 05.08.2013 | Impact

ST. PETERSBURG, Fla. -- In a normal school setting, Tony Colton and Ashley Krueger probably wouldn't cross paths. He's 13. She's 18. He's short and o...

The Patient Choice Act - Providing Choice Instead of Death

Jonathan Agin | Posted 07.02.2013 | Impact
Jonathan Agin

As time went by during my daughter Alexis' long thirty-three month battle, we found out that her tumor was growing. We found ourselves in Manhattan seeking to gain enrollment in what looked to be a potentially promising trial. But after preliminary tests we were told that Alexis was ineligible.

The Lessons We Learned From My Daughter's Unbearably Short Life

Parenting.com | Posted 06.29.2013 | Parents
Parenting.com

In the days left, we would live life in the way that Maddie loved. We would enjoy our time, and use our "forever" to miss her. She was here now and needed her little sisters, Amelia and Lucy, her family, her friends and lots of fun.

2 Teens Suffering Cancer Relapses Raise Money For Each Other

The Huffington Post | Eleanor Goldberg | Posted 04.24.2013 | Impact

When they learned that their battles with cancer were far from over, teens Tony Colton and Ashley Krueger became each other’s biggest supporters. ...

My Childhood Cancer Road Map - Epilogue

Jonathan Agin | Posted 06.18.2013 | Impact
Jonathan Agin

The manner in which we as a country have been attacking the cancer problem is not working. Cancer still takes kids from their families on a daily, weekly and yearly basis and the incidence rates are not lessening. That is unacceptable.

The Runners' Spirit & the Human Spirit

Jay Scott | Posted 06.16.2013 | Impact
Jay Scott

I am not here to speculate on what happened at the finish line, instead I am here to share what I know of the special bond that exists between runners, those who cheer them on, and the clear display of heroism that is found in both.

Bringing Us All Together - Part IV

Jonathan Agin | Posted 06.10.2013 | Impact
Jonathan Agin

From my earliest entree into blogging in my daughter Alexis' journal, I learned quickly that the childhood cancer community was a very disorganized and dis-unified group of entities and individuals who all had the same ultimate goal: a cure.

The Words I Don't Like Hearing After My Daughter's Death

Sheila Quirke | Posted 06.08.2013 | Parents
Sheila Quirke

The words we use to talk about cancer, in children and adults, influence how we think about cancer and those unlucky enough to be touched by it. Survivors are called "victorious" and "winners." Those who have not survived their cancer are called "angels" and "in a better place.

Even Still

Amanda Magee | Posted 06.03.2013 | Women
Amanda Magee

I used to believe that there was a formula -- ...step on a crack, break your mother's back. I thought that if even against my better judgement or despite my best efforts, if I indeed stepped on a crack, that I could avoid the next seven cracks and take it back.

Arguing for Increases in Federal Funding for Childhood Cancer Research -- Part III

Jonathan Agin | Posted 06.03.2013 | Impact
Jonathan Agin

Money makes the world go 'round. Or so we are told. Certainly for medical research, this is true. And, for the childhood cancer community, it is clear where we fall in the federal spectrum, i.e. on the low end of the stick.

The Nausea of Cancer

Dan Duffy | Posted 06.02.2013 | Healthy Living
Dan Duffy

It's hard to actually convey just how horrendous nausea can get. With my own experience, I didn't have a lick of it after my first three days of chemo. The docs said that most of that was because of the anti-nausea drugs. And then came day four.

What A Drawer Full Of Mementos Reminds Me About My Daughter's Short Life

2013-02-28-brainchild1.jpg | Posted 03.28.2013 | Parents

Written by Suzanne Leigh for Brain, Child Months before my elder daughter was diagnosed with a malignant brain tumor, I started leaving brief hand...

Community Gives Dying Teen A Gorgeous Dream Prom

The Huffington Post | Eleanor Goldberg | Posted 03.29.2013 | Impact

Updated March 29, 2013: Katelyn Norman passed away Friday morning after a two-year battle with bone cancer, according to WBIR. When doctors told K...

The FDA and Childhood Cancer -- the Change That Has to Come -- Piece No. II

Jonathan Agin | Posted 05.26.2013 | Impact
Jonathan Agin

It starts with us as advocates educating our physicians on these pathways and expanding the overall knowledge base of these channels. This is often difficult for a parent who is trying to balance saving their child with making every moment count.

Engaging the Pharmaceutical Industry in the Fight Against Childhood Cancer - Piece No. I

Jonathan Agin | Posted 05.19.2013 | Impact
Jonathan Agin

The fight against childhood cancer is not possible without innovative drugs that are available for delivery without significant restrictions.

A Dog's Life

Jay Scott | Posted 05.14.2013 | Impact
Jay Scott

Evidence of her enduring loyalty followed Shammy from the beginning of her time with us. Shammy joined our family when Alex was battling cancer. All along Shammy was teaching us an important lesson about life -- to be excited about the little things that life had to offer.

Childhood Cancer, My Road Map

Jonathan Agin | Posted 05.12.2013 | Impact
Jonathan Agin

It is easy for me to write about childhood cancer in many respects. It matters to me. It touched me personally through the diagnosis and loss of my amazing daughter Alexis. Where I think the struggle lies is changing the entire landscape with respect to fighting the disease.