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Chronic Illness

Once Upon a Lyme: Starting the Conversation About Lyme Disease

Mark W. Guay | Posted 05.17.2015 | Impact
Mark W. Guay

Lyme Disease has grown to epidemic proportions with more than 300,000 new cases annually in the U.S. alone.

10 Things I Want You To Know About Living With A Chronic Illness

Michaela Shelley | Posted 05.12.2015 | Teen
Michaela Shelley

"But you look perfectly fine!" The problem is, we aren't "fine." The reason most people with chronic illnesses look "fine" is because approximately 96 percent of chronic illnesses are invisible.

Who Did I Need to Impress?

Chanel White | Posted 05.12.2015 | Healthy Living
Chanel White

When you must face the weathered look of chronic illness day in and day out those fleeting glances in the reflection can become quite unpleasant. The ...

My Disease Gave Me the Gift of Motherhood

Rachel Garlinghouse | Posted 05.11.2015 | Parents
Rachel Garlinghouse

This Mother's Day, I celebrated six years of motherhood and nine years with type 1 diabetes. Though my disease is expensive and exhausting, required 24/7/365 management, without it, I wouldn't be mothering my three children.

The Only Empathy Cards You Won't Feel Awkward About Sending

The Huffington Post | Kim Bellware | Posted 05.08.2015 | Healthy Living

We may not want to admit it, but even the most well-meaning of sympathy cards we give to loved one with a serious illness can land like a total dud. ...

Even Though My Body Continues to Fail Me, Every Fiber of My Being Feels Strengthened

Chanel White | Posted 05.06.2015 | Healthy Living
Chanel White

While I may not get as many years as I was hoping for in this life, I feel my very soul has lived a thousand years. This old soul, enlightened well beyond my 23 years, finally understands the true beauty in life.

5 Things You Should Never Say To A Chronically Ill Parent

Sarah Bunton | Posted 05.04.2016 | Parents
Sarah Bunton

We chronically ill folks have years of experience dealing with unknowingly rude comments. But something changes when you become a parent.

Americans Deserve Open-Minded Discourse on Medical Options

Michael Finkelstein, MD | Posted 06.30.2015 | Healthy Living
Michael Finkelstein, MD

According to the Centers for Disease Control (CDC), half of America suffers from at least one chronic illness; chronic illness causes 70 percent of de...

Why It's OK to Complain

Sarah Bunton | Posted 06.27.2015 | Parents
Sarah Bunton

I've always thought that if I complained, asked for help, or took a break that it somehow meant I was giving in and letting my struggles get the best of me. Thankfully, I'm here to tell you that that's just not true. It really is OK to complain sometimes.

To Those Caring for Sick Children

Lexi Behrndt | Posted 06.27.2015 | Parents
Lexi Behrndt

As a parent of a child who was deeply cared for by a medical team for nearly seven months before he passed, I cannot describe the respect and admiration we, as parents, have for you who are in the medical field.

What Stress Means for a Chronic Illness Patient: A Workplace Primer

Sarah Blahovec | Posted 06.27.2015 | Healthy Living
Sarah Blahovec

I don't like Crohn's symptoms and doctor's appointments, but I love challenges at work. New and interesting situations that make me think are invigorating, and I can use the adaptability I have learned over years to effectively address those scenarios.

I Don't Care If You Stare At My Feeding Tube

Michaela Shelley | Posted 06.22.2015 | Teen
Michaela Shelley

My personal motto is never be ashamed of something that keeps you alive. That's what I've stuck with. My tubes are my lifeline and without them I would literally drop dead.

How to Buy Weed, Legally

Sophie Cowley | Posted 06.21.2015 | Politics
Sophie Cowley

After traveling back home, I decided to call up a local dispensary. I hopped online and found one nearby that delivered. All I had to do was text them a photo of my California ID and the recommendation from my doctor.

The Roller Coaster Called Life

Stephen Bell | Posted 06.16.2015 | Healthy Living
Stephen Bell

Every now and then someone asks me if I wish I didn't have cystic fibrosis. Or if I ever wonder why I have to deal with all the bad? Lately, I've often flipped that question back on them. Well, yes sometimes life does suck, but life is also extraordinary.

This Is What It's Like To Be A Teen Living With A Chronic Illness

Michaela Shelley | Posted 06.08.2015 | Teen
Michaela Shelley

It is hard enough to be a teenager trying to figure out what you want to be when you grow up. Adding on a chronic illness makes that 10 times harder.

'Coming Out' as a Spoonie

Sophie Cowley | Posted 06.08.2015 | Healthy Living
Sophie Cowley

If you know what a "spoonie" is, then odds are you may be one yourself. A spoonie can refer to any individual who suffers from a chronic illness. The term originated from a post written by Christine Miserandino entitled The Spoon Theory.

What If I'm Not as Strong as You Think I Am? A Headache Confession

Stephanie Harper | Posted 05.28.2015 | Healthy Living
Stephanie Harper

I've recently reached the 18-month mark in the saga of my never-ending headache. This was something that if you'd asked me when I started writing abou...

(Not) Sorry to Have Caused the Offense

Sarah Blahovec | Posted 05.23.2015 | Business
Sarah Blahovec

I've been in some extremely frustrating job situations, but this may have been the worst. A disability rights organization I admired, a dream position for which I felt qualified, but due to another offer, I needed to know if I was still in the running.

My Life-Threatening Disease Is A Blessing In Disguise

Michaela Shelley | Posted 05.19.2015 | Teen
Michaela Shelley

Most of the things people are thankful in life are the basic: health, family, life, a place to call home and friends. Yet, those things don't always come easily for me. What I am thankful for is quite different than the average person.

Man Marries Diabetes in Downtown New York City

Riva Greenberg | Posted 05.19.2015 | Healthy Living
Riva Greenberg

Photo credit Michael Dote. The invitation read "Marry the Beast," and more than 100 people were in attendance. The marriage was actually a commitment...

Why Compassion Matters

Randi Hutter Epstein, MD, MPH | Posted 05.09.2015 | Science
Randi Hutter Epstein, MD, MPH

Doctors rarely cure diseases, he added. For the most part, they manage them. He told my students that being a good physician means helping patients navigate illness.

Your Syndrome's Missing Benefit

David Katz, M.D. | Posted 05.06.2015 | Healthy Living
David Katz, M.D.

Doctors don't much care for conditions we don't understand well, can't treat effectively, and can't even confirm with a blood test. The frustration that results often translates into one of medicine's more common, and most regrettable missteps: blaming the victim. Patients with syndromes are often overtly, or at least covertly, blamed for their symptoms and engender an "it's all in his/her head" attitude in their doctor.

Avoiding Negative Self-Talk: Why the Phrase 'F*ck Cancer' Is No Longer in My Vocabulary

Joanna_Montgomery | Posted 05.05.2015 | Healthy Living
Joanna_Montgomery

I'll treat my cancer wholeheartedly each time it flares up, and do whatever I can between occurrences to keep the disease at bay for as long as possible. And I'll live my life with joy and gratitude in the meantime. Because peace is less stressful and more sustainable than war, and love is more powerful than hate. Always.

What's the One Thing Employers Can Do Today to Support Women with MS?

Jennifer Owens | Posted 05.04.2015 | Healthy Living
Jennifer Owens

Work place flexibility helps all employees, so it's little surprise that women with MS say it's important as well. Women with MS need more help in the workplace -- and flexibility is an easy place to start.

4 Unfair Perceptions of People With Disabilities or Illnesses

Sarah Blahovec | Posted 04.20.2015 | Women
Sarah Blahovec

Some perceptions of disability and illness are too messed up and extreme for my liking. Persons living with these conditions are seen as really good or really bad, but there never seems to be a middle ground. This means that disability/illness status is used to judge our characters. Without further ado, here's the "good" and the "bad" of disability/illness perceptions.