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Complete Digeorge Syndrome

Baby With Rare Disease Dies Awaiting Life-Saving Surgery

Posted 07.23.2011 | Chicago

Seth Petreikis, a 10-month-old baby born with an extremely rare genetic malfunction, died over the weekend while awaiting the surgery that could have ...

Indiana Won't Pay For Baby's Potentially Life-Saving Surgery

The Huffington Post | Will Guzzardi | Posted 05.25.2011 | Chicago

Seth Petreikis is a six-month-old baby trying to dodge a death sentence. He was born in Dyer, Indiana earlier this year with a rare and usually fatal...