iOS app Android app

Crouzon Syndrome

What It's Like Waking Up With A New Face

Natalie Merlo | Posted 11.28.2013 | Teen
Natalie Merlo

Now that the halo device is off, I get to see myself and my face the way it was supposed to look like -- if I didn't have Crouzon Syndrome. It's a fresh start for me with a new facial structure just in time for me to begin a new chapter of my life.

At First I Felt Every Stare, But Then I Realized Something

Natalie Merlo | Posted 11.17.2013 | Teen
Natalie Merlo

I avoided cameras like the plague, always volunteering to take the picture, or leaning out of frame when I saw I was in one. Now when I look through the photos of my senior year, it's like I wasn't even there.

Changing Faces and Transforming Lives: Why the National Foundation for Facial Reconstruction (NFFR) Is So Cool

Jeryl Brunner | Posted 09.18.2012 | Impact
Jeryl Brunner

For many decades, the renowned IRPS, which is funded by the National Foundation for Facial Reconstruction (NFFR) has helped children and families to be OK and much more.