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Cystic Fibrosis

Life's Unforgettable Fog

Ashley Ballou-Bonnema | Posted 06.22.2015 | GPS for the Soul
Ashley Ballou-Bonnema

In the depths of darkness each heart is filled with the hope of dawn's radiant light. We each wait in anticipation for signs of morning's first reassu...

Beyond All Hope

Ashley Ballou-Bonnema | Posted 06.05.2015 | Healthy Living
Ashley Ballou-Bonnema

From a hospital bed and oxygen literally six months ago to a stage performing some of the most difficult music I've ever done. I cry because it shouldn't have happened: All odds were against me.

Capture Life

Ashley Ballou-Bonnema | Posted 05.26.2015 | Healthy Living
Ashley Ballou-Bonnema

It happens in a second but lasts a lifetime and beyond. Memories fade, but the vibrancy of a photo can breathe life back into a moment frozen in time....

Unexplainable Grace

Ashley Ballou-Bonnema | Posted 05.14.2015 | Healthy Living
Ashley Ballou-Bonnema

When my time does come, whether it be tomorrow, months, or years from now, I want to know I did everything I could to pay the goodness I've been shown forward. I want to live gratefully in each moment and for each person who has filled every grace given breath with beauty. With this grace I have so graciously been gifted, I will fight.

The Challenge to Truly Live

Ashley Ballou-Bonnema | Posted 06.30.2015 | Healthy Living
Ashley Ballou-Bonnema

When I come to the end of my journey, I want to see the beauty that filled every brave breath and made up my life. I want to hold each one of those unforgettable moments in my memory, gripping onto them as tightly as possible, but most of all I want to know for certain that I truly lived.

'Salty Girls' Photo Series Challenges Notions Of Beauty And Cystic Fibrosis

The Huffington Post | Cavan Sieczkowski | Posted 04.29.2015 | Style

Photographer and art director Ian Pettigrew was working on a photo series he called "Just Breathe: Cystic Fibrosis" when he realized the majority of h...

Are You a Scaredy-Cat Writer? 3 Life Lessons to Give You Courage

Holly Robinson | Posted 06.24.2015 | Books
Holly Robinson

I wrote more, much more, after I had children than I did before, even though I had far less time. When I was young and single, I squandered my hours. There was always a concert to go to, or a movie, or maybe I just felt like lying around and watching television.

The Roller Coaster Called Life

Stephen Bell | Posted 06.16.2015 | Healthy Living
Stephen Bell

Every now and then someone asks me if I wish I didn't have cystic fibrosis. Or if I ever wonder why I have to deal with all the bad? Lately, I've often flipped that question back on them. Well, yes sometimes life does suck, but life is also extraordinary.

A Voice Found

Ashley Ballou-Bonnema | Posted 06.15.2015 | Healthy Living
Ashley Ballou-Bonnema

The voice. It is the purest reflection of one's self and is the instrument from which our passions pour. It carries our emotions, gives wings to the ...

Uncertain Ground

Ashley Ballou-Bonnema | Posted 05.20.2015 | Healthy Living
Ashley Ballou-Bonnema

How little trust I have in this body and Cystic Fibrosis after it has betrayed me so vehemently these past months. It is not "if" my body will betray me again, but "when." But I must do it.

Unyielding Tenacity

Ashley Ballou-Bonnema | Posted 05.10.2015 | Healthy Living
Ashley Ballou-Bonnema

I am learning not to allow the past events to fill me with fear, or the unknown of the future to fill me with trepidation, but to live for the beauty that is present in this very moment. Cystic fibrosis may be progressively present in my life, but it will not rule by fear. I will breathe bravely: continually renewed by the strength and tenacity that live within, knowing I am never alone in this fight.

The Air of Fragility

Ashley Ballou-Bonnema | Posted 05.02.2015 | Healthy Living
Ashley Ballou-Bonnema

As I continue to navigate this new phase of my journey, each morning I still awake with hope and the belief that it's a new day filled with great possibility. I am learning to embrace the simplicity that life is built upon while never forgetting how truly fragile it all is.

The Quest for Purpose

Ashley Ballou-Bonnema | Posted 04.01.2015 | Healthy Living
Ashley Ballou-Bonnema

Whether it is something I've chosen or it has chosen me, my life is filled with great purpose and meaning. With every breath I am given, I will always seek to share good, show love, and reflect the beauty that is life.

Appearances Can Be Deceiving

Lianne Mandelbaum | Posted 03.25.2015 | Healthy Living
Lianne Mandelbaum

Why are we so judgmental as a society to those we sense are getting away with something, or being treated differently? If someone has that handicapped sticker, or is pre-boarding a plane with or without an obvious impairment, there is most likely an untold story. Many illnesses or disabilities can be invisible, and they could be fighting a battle we don't understand and cannot see.

The Precipice

Ashley Ballou-Bonnema | Posted 03.22.2015 | Healthy Living
Ashley Ballou-Bonnema

The last month has sparked some serious discussions about my lifestyle, my future, and the reality of the cost of what I've been putting my body through. Simply put, I was given two choices. Either continue doing what I've been doing and know that it could ultimately be killing me, or make some drastic lifestyle changes and learn to respect my body and get as many beautiful days as I can.

The Journey of Being Brave

Ashley Ballou-Bonnema | Posted 03.11.2015 | Healthy Living
Ashley Ballou-Bonnema

For now, I am celebrating all the good, the pain, the laughter, and all the tears of yesterday. Tomorrow begins another beautiful day in my unique life. Here's to each day that calls upon us to be brave, courageous, and share love unconditionally.

The Gift of Life

Ashley Ballou-Bonnema | Posted 03.02.2015 | Healthy Living
Ashley Ballou-Bonnema

I have received the most beautiful of gifts. This gift cannot fit in a box, nor can it merely be purchased: It is one of a kind and irreplaceable. What is this magnificent gift? My life.

The Act of Truly Living

Ashley Ballou-Bonnema | Posted 02.22.2015 | Healthy Living
Ashley Ballou-Bonnema

The candles on my cake represent the life I have lived and the life I have yet to live: all a beautiful gift. They are all filled with immense hope and goodness. Each day I am stronger, more grateful, and filled with more love. This will be a birthday that will live with me always.

Today's Patience Is Tomorrow's Possibility

Ashley Ballou-Bonnema | Posted 02.11.2015 | Healthy Living
Ashley Ballou-Bonnema

I am so thankful for every person that is on this journey with me. I owe my life to so many wonderful people. I am so incredibly humbled by the generosity, love and endless kindness I have been shown. I am learning that the pursuit of patience holds a beauty all its own. Love to you all.

The Art of Breathing Bravely

Ashley Ballou-Bonnema | Posted 02.06.2015 | Healthy Living
Ashley Ballou-Bonnema

The problem with CF? It doesn't play fair, it doesn't make deals, and it doesn't care about the life you want or have. It's an ugly disease that hurts a lot of people in its wake. A disease I've tried to protect so many people from, to protect myself from.

Cystic Fibrosis: The Disease That Came to Stay

Sue Holt Landgraf | Posted 12.06.2014 | Healthy Living
Sue Holt Landgraf

Cystic fibrosis came to stay on Good Friday 1986 at 5 p.m. when my giggly toddler was 22 months old. It began to take her breath away before we even knew what it was.

Seeking a Bit of Normalcy

Stephen Bell | Posted 11.05.2014 | Healthy Living
Stephen Bell

Cystic Fibrosis requires attention. Constant attention. And for me, for everyone with CF that is normal. And in less than two weeks I'm getting married. To a girl who is anything but normal. And our relationship is anything but normal because it takes a girl who is anything but normal to marry me.

This Blind Grandpa Is Running 11,000 Miles Around The U.S. To Raise Funds For Cystic Fibrosis

The Huffington Post | Robbie Couch | Posted 08.20.2014 | Impact

David Kuhn is jogging through every perimeter state in the U.S., a distance about the equivalent of 420 marathons. It's a feat many would consider adm...

Miley Cyrus Sends Moving Video Message To Dying Fan Just Before Girl Dies

The Huffington Post | Robbie Couch | Posted 06.22.2014 | Impact

Miley Cyrus may be best known for her twerking and controversial music tours, but no one should dismiss the 21-year-old's heart of gold. The forme...

Surrogacy Between Close Friends: Think Twice

Suzette Standring | Posted 07.30.2014 | Women
Suzette Standring

Laurie Miller offers a cautionary tale about gestational surrogacy between close friends. Expectations and disappointment ended their friendship, and the two women never saw it coming.