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Cystic Fibrosis

A Betraying Breath : Living In The Uncertainty Of A Chronic Illness

Ashley Ballou-Bonnema | Posted 11.23.2016 | Healthy Living
Ashley Ballou-Bonnema

All it takes is but a single breath for life to become so very real. In a single breath the heaviness of life and its fragility can pour into the dept...

A Superbug That Threatens People With Cystic Fibrosis Is Spreading Globally

Reuters | Anna Almendrala | Posted 11.10.2016 | Healthy Living

LONDON (Reuters) - A multidrug-resistant superbug infection that can cause life-threatening illness in people with cystic fibrosis (CF) has spread glo...

Breathtaking: Finding The Beauty In This Breathless Life

Ashley Ballou-Bonnema | Posted 10.17.2016 | Healthy Living
Ashley Ballou-Bonnema

This life I've been gifted? It's breathtaking. I feel it when I first awaken in the morning and as my first steps of the day kiss the cool wooden fl...

Life And Love With A Chronic Illness

Ashley Ballou-Bonnema | Posted 08.11.2016 | Healthy Living
Ashley Ballou-Bonnema

We wish it away while desperately clinging to it -- hoping to grip it tightly within the safety of our entangled fingers. But time is not ours to keep -- it's untamable and the very currency for which we trade to write the story of our unique and beautiful lives.

Boy With Cystic Fibrosis Gets Wish To Be Garbage Man During 'Best Day Ever'

The Huffington Post | Kimberly Yam | Posted 07.28.2016 | Good News

One sweet boy’s dream come true involved a lot of trash ― and that’s a good thing. Ethan Dean, who has cystic fibrosis, has always been fascina...

Discontented Chaos: The Search For Belonging

Ashley Ballou-Bonnema | Posted 07.26.2016 | GPS for the Soul
Ashley Ballou-Bonnema

The greatest of human contentment is found not in the world around us but within ourselves - in a deep self-peace that is reflected within the beauty of truly knowing that we are enough just as we are. Knowing that we truly belong. Knowing that it is the very uniqueness of our journey that gives meaning to every breath we are given.

The Right Words: Finding Empathy In Fearful Vulnerability

Ashley Ballou-Bonnema | Posted 06.20.2016 | Healthy Living
Ashley Ballou-Bonnema

There's a bit of fear that inhabits every truth that makes up who we are. It's a fear that is shared within every honest breath we give back to the world and undermines the self-assured faith we hold within ourselves.

The Hunt for Cures for Orphan Diseases

Robin L. Smith | Posted 04.19.2016 | Science
Robin L. Smith

Each year in the United States four million babies are born. Each birth is a time of great rapture and joy because of the tremendous amount of love an...

Unbreakable Hope

Ashley Ballou-Bonnema | Posted 04.14.2016 | Healthy Living
Ashley Ballou-Bonnema

As CF and its truth steadily chip away at my being, I can't help but reflect over these past several years and the extended and frequent courses of powerful antibiotics.

To the Nurse who Denied Coverage to My Granddaughter With Cystic Fibrosis

Laurie Levy | Posted 03.22.2016 | Impact
Laurie Levy

My nine-year-old granddaughter has cystic fibrosis. Apparently, the nurse at Blue Cross Blue Shield authorized to rule on healthcare coverage appeals doesn't know much about CF. She rejected a letter from the only pediatric CF center in my granddaughter's state justifying her continuing care there.

The Inner Chaos of Anxiety

Ashley Ballou-Bonnema | Posted 02.22.2016 | Healthy Living
Ashley Ballou-Bonnema

There's a bottomless well of churning thought and emotion that engulfs the very core of our being and is born of a silent inner strength. That strengt...

Embracing Our Honest Beauty

Ashley Ballou-Bonnema | Posted 02.02.2017 | Healthy Living
Ashley Ballou-Bonnema

We are each stitched together by a stunningly unique beauty, both externally and inwardly. That unique beauty is what makes each of us wonderfully different and truly who we are.

The Artistry of Being Honest

Ashley Ballou-Bonnema | Posted 01.21.2017 | GPS for the Soul
Ashley Ballou-Bonnema

There's a unique artistry in which we each live our lives, a way in which our journey poetically unravels itself. It is rooted in an unchangeable hone...

A Brave Journey

Ashley Ballou-Bonnema | Posted 01.04.2017 | Healthy Living
Ashley Ballou-Bonnema

Whatever life offers we must be brave -- never afraid to remember the journey that got us to this very beautiful moment in life while living bravely in today. And most of all, we must always be rooted in endless hope for tomorrow's possibility. Here's to remembering 2015 and the great possibility 2016 holds.

The Gift of Genetic Testing

Dr. Richard T. Scott, Jr. | Posted 12.18.2016 | Parents
Dr. Richard T. Scott, Jr.

Many couples will make life's most exciting resolution this year -- the decision to start a family. While the choice to become a parent can be filled with excitement and exhilaration, some individuals face apprehension and anxiety -- knowing that they could pass along genetic diseases to their children. This is where the gift of genetic testing comes in.

The Choice to Live Boldly

Ashley Ballou-Bonnema | Posted 12.02.2016 | Healthy Living
Ashley Ballou-Bonnema

Life is uncertain -- for every single one of us. We are all gifted with the same type of borrowed time, only different journeys. It's how we choose to embrace our journey despite its uncontrollable uncertainties that allows us to truly live.

Life Is Not Fair

Ashley Ballou-Bonnema | Posted 10.30.2016 | GPS for the Soul
Ashley Ballou-Bonnema

"Life is not fair." I think we all have uttered those words at some point in our life -- when we lack the ability to comprehend the life that has been...

Holding My Breath

Ashley Ballou-Bonnema | Posted 10.07.2016 | Healthy Living
Ashley Ballou-Bonnema

Sometimes we are forced to open our eyes and realize the beauty that surrounds us no matter the season. The seasons are changing. I can't stop that. I can, however, embrace the unique goodness this very season offers. After all, this moment is all any of us are guaranteed. What's the use in ignoring its unique, unbridled, and nondiscriminatory beauty?

9-Year-Old Boy With Cystic Fibrosis Asks For Fun Facts. The World Answers.

Elbi | Posted 10.06.2016 | Impact
Elbi

Jack loves rugby. He supports Leeds Rhinos, but had his fingers crossed for England in the Rugby World Cup. Ah. Sorry about that, Jack. But he's got more to cope with than his team not getting through. He was diagnosed with cystic fibrosis at just 22 hours old. Now he's 9.

Embraceable Reality

Ashley Ballou-Bonnema | Posted 09.08.2016 | Healthy Living
Ashley Ballou-Bonnema

We live stagnantly, trying to get through the throughs of every day life: just merely existing. We become numb to the world around us and ourselves as we join the steady unthinking chaos around us.

Changing the Unchangeable

Ashley Ballou-Bonnema | Posted 08.13.2016 | Healthy Living
Ashley Ballou-Bonnema

But then that despondency turns to gratitude. I am grateful. Grateful for the life I am living, the people I know and love, and the incredible experiences I've embodied. It's because of this very unchangeable component in my life it is so very beautiful and incredible.

Setting the Scene of Life

Ashley Ballou-Bonnema | Posted 07.13.2016 | Healthy Living
Ashley Ballou-Bonnema

No matter the story we are each given, there are countless conflicts, resolutions, characters, rising and falling action, and lessons learned that fill every scene of our lives. Today this is my scene, and it's filled with the hope of tomorrow.

Life's Unforgettable Fog

Ashley Ballou-Bonnema | Posted 06.22.2016 | GPS for the Soul
Ashley Ballou-Bonnema

In the depths of darkness each heart is filled with the hope of dawn's radiant light. We each wait in anticipation for signs of morning's first reassu...

Beyond All Hope

Ashley Ballou-Bonnema | Posted 06.05.2016 | Healthy Living
Ashley Ballou-Bonnema

From a hospital bed and oxygen literally six months ago to a stage performing some of the most difficult music I've ever done. I cry because it shouldn't have happened: All odds were against me.

Capture Life

Ashley Ballou-Bonnema | Posted 05.26.2016 | Healthy Living
Ashley Ballou-Bonnema

It happens in a second but lasts a lifetime and beyond. Memories fade, but the vibrancy of a photo can breathe life back into a moment frozen in time....