iOS app Android app

Down Syndrome

Boy With Down Syndrome Sings His Heart Out In Duet With Older Sister

The Huffington Post | Ryan Grenoble | Posted 09.03.2015 | Parents

Noah Kirwin and his sister Leah are titanium. Not literally, of course. In this instance, "titanium" is more of a metaphor for inner strength in the f...

The Weight of Our Words: Self-Advocate Speaks Out Against the R-word

International Down Syndrome Coalition | Posted 08.31.2015 | Impact
International Down Syndrome Coalition

The use of the R-word may seem harmless enough -- until real people get hurt. That one simple word affects people deeply. It hurts people living with intellectual and developmental disabilities, it hurts their families and it hurts their friends.

To My Daughter With Down Syndrome On Her First Day of Kindergarten

Deanna Smith | Posted 08.27.2015 | Parents
Deanna Smith

I know you can do this. It might take a while for you to figure out the new classroom and the new expectations of kindergarten, but you've got this.

Someone Is Missing From the Debate on Ohio's Bill to Ban Down Syndrome Abortions

Kari Wagner-Peck | Posted 08.26.2015 | Impact
Kari Wagner-Peck

My alliance is obviously with the pro-choice contingent, but I was disappointed with their advocates making no mention of people with Down Syndrome. They only spoke about "Down Syndrome" as a potential cause for concern for expectant mothers.

Open Letter of Gratitude and Well Wishes to Actor Chris Burke

Mardra Sikora | Posted 08.18.2015 | Impact
Mardra Sikora

My son was born in 1990, a time when the TV show Life Goes On aired on ABC weekly. This show, which featured a main character who happened to have Down syndrome, made its place in history.

"Black Day: The Monster Rock Band" Author, Marcus Sikora, Is A Storyteller who Happens to Have Down Syndrome

Kari Wagner-Peck | Posted 07.28.2015 | Books
Kari Wagner-Peck

When I handed my 8 year-old son a personalized, autographed copy of the children's book Black Day: The Monster Rock Band, I told him the author, Marcus Sikora, was a 25 year-old man with Down syndrome.

Plain Old Sibling Rivalry

Rachel Adams | Posted 07.22.2015 | Parents
Rachel Adams

Many children, especially young ones, lack the language and self-awareness to express their negative emotions in productive ways. Siblings become convenient targets for our feelings of jealousy and anger, and our dawning awareness of how unfair life can be.

Madeline Stuart, Model With Down Syndrome, Lands Two New Fashion Campaigns

The Huffington Post | Julee Wilson | Posted 07.14.2015 | Style

Madeline Stuart is not your average model. The 18-year-old with Down syndrome is challenging society’s narrow standard of beauty....

Supreme Court Justice for the Chromosome Rights Movement -- the Next Frontier

Joaquin M. Espinosa | Posted 06.30.2015 | Science
Joaquin M. Espinosa

Last week, the Supreme Court ruled against chromosome discrimination. Now, citizens with two X chromosomes can marry somebody with two X chromosomes, and those with a Y chromosome can marry other folks with a Y chromosome too.

Life With My 'Down's Kid'

Suzie Skougard | Posted 06.23.2015 | Parents
Suzie Skougard

The hardest thing about having a child with Down syndrome isn't the child and it isn't the Down syndrome -- it's public perception. It's a lack of funding, resources and research. It's having to fight just to get your child an education and therapies. It's battling ignorance, and it's a full-time job.

Boy With Down Syndrome Tells His Dad He's 'Doing A Great Job' For Father's Day

The Huffington Post | Caroline Bologna | Posted 06.19.2015 | Parents

Father's Day is a time to celebrate and express gratitude to dads, including dads of children with special needs. Told from the perspective of a b...

Taylor Swift Grants Fan's #SwiftAWish, Meets Girl Who Has Down Syndrome, Cancer

The Huffington Post | Kimberly Yam | Posted 06.17.2015 | Good News

Taylor Swift has proven once again that she always has time for a fan in need. The Dover Police Department in Delaware started a social media camp...

Meet Louise, My 4-Month-Old Daughter With Two Arms, Two Legs and One Extra Chromosome

Caroline Boudet | Posted 06.10.2015 | Parents
Caroline Boudet

She is my daughter. Louise. She is four months old, has two arms, two legs, two great chubby cheeks, and one extra chromosome.

Dad Says He Was Fired For Asking Coworkers Not To Say The R-Word

The Huffington Post | Caroline Bologna | Posted 06.04.2015 | Parents

When Pennsylvania dad Bruce Casper heard his coworkers repeatedly use the R-word, he complained to upper management. As a result of his speaking out, ...

An Uncomplicated Life: A Book Review

International Down Syndrome Coalition | Posted 06.03.2015 | Books
International Down Syndrome Coalition

Still looking for the perfect gift for Father's Day on June 21? Do you have a book lover to shop for? Maybe you know a father to a new baby with an intellectual or developmental disability?

The Best Day Ever Was The Day We Met Our Son, Who Has Down Syndrome

Kari Wagner-Peck | Posted 05.28.2015 | Parents
Kari Wagner-Peck

Most people meet their child for the first time in a delivery room. Ours was introduced to us in the reception area of a single-story administrative building located in a business park alongside warehouses.

What We Really Mean When We Say, 'I Could Never...'

Mardra Sikora | Posted 05.21.2015 | Parents
Mardra Sikora

In all honesty, when my son was diagnosed with Down syndrome, I thought. Well, if it had to be something... I can handle this. I don't know if that's weird, maybe it's a coping mechanism of some sort, but it's also true.

Meet The Aspiring Teen Model Who's Challenging Stereotypes

The Huffington Post | Dominique Mosbergen | Posted 05.19.2015 | Teen

Madeline Stuart is an 18-year-old aspiring model, and she’s here to challenge society’s rigid definition of what “beautiful” is. (function...

Where Hope Grows, Is a Heart-warming Movie

Jackie K. Cooper | Posted 05.19.2015 | Entertainment
Jackie K. Cooper

I guess it is old-fashioned to call it that, but "Where Hope Grows" is an old-fashioned kind of movie in that it harkens back to a time where movies promoted positive values.

David DeSanctis, an Actor Shattering Stereotypes

Kari Wagner-Peck | Posted 05.20.2015 | Entertainment
Kari Wagner-Peck

Where Hope Grows--which opens today--is a buddy film with the two male protagonists played by DeSanctis and Kris Polaha journeying through a series of comedic, dramatic and heartfelt interactions that unite this unlikely pair and reveal the nature of friendship.

'Where Hope Grows': A Review

International Down Syndrome Coalition | Posted 05.12.2015 | Impact
International Down Syndrome Coalition

The International Down Syndrome Coalition staff had the privilege of a private screening of Where Hope Grows. Staff members were impressed and moved by the film. This inspiring movie shatters stereotypes of those with Down syndrome.

What I Learned About My Son Is the Best Mother's Day Gift Ever

Kari Wagner-Peck | Posted 06.01.2015 | Parents
Kari Wagner-Peck

At eight years old, Thorin had figured out something I didn't learned until my 30s: Do what you love for no one else but yourself. My guess is the greater part of parenting is not getting in the way of your child becoming who they are.

Daughter With Down Syndrome Inspires Mom to Create Fashion Accessory Business

HooplaHa | Posted 05.07.2015 | Good News
HooplaHa

This is the ultimate story of a mothers love for her child. Boynton Beach, FL mom, Laurie Ruehlman wanted to spend more quality time with her daughter, Payton, who has Down Syndrome.

What I Learned From My Son After The Death Of Our Dog

Kari Wagner-Peck | Posted 06.22.2015 | Parents
Kari Wagner-Peck

Thorin made accommodations for his friend's fragility. The forts he built for the two of them now had a cushy bed for Walt. He understood Walt could no longer jump up on his bed, needing to sleep on the floor instead.

Mom's Disney Photos Prove 'The Only Disability In Life Is Having A Bad Attitude'

The Huffington Post | Caroline Bologna | Posted 04.22.2015 | Parents

If this isn't Disney magic in action, what is? Florida mom Kristina Bewley started taking her daughter Giselle to Disney World in September 2014. T...