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Down Syndrome

Becoming a 'Special Needs Mom'

Suzie Skougard | Posted 11.06.2015 | Parents
Suzie Skougard

When we got our prenatal diagnosis that our daughter, Carly, would be born with Down syndrome I was worried that I'd lose myself. I was worried I wouldn't be able to be around as much for my other kids. Now, I wish I could go back in time and tell myself not to fret.

Let Your Advocacy Voice Be Heard

Marla Murasko | Posted 11.06.2015 | Impact
Marla Murasko

A lot of people are comfortable in the "online" space, but I'm here to tell you to let your advocacy message have a voice, have a face! Above you see me doing a presentation about Down Syndrome Awareness and Inclusion to my son's class.

Every Child Is Like a Flower

Sue Shanahan | Posted 11.04.2015 | Women
Sue Shanahan

Once when I was feeling less than pretty, it occurred to me, "Who told you that you aren't beautiful?" I began to wonder, what if our differences act...

In Defense of My Son's First Mom

Lisa Eicher | Posted 11.03.2015 | Parents
Lisa Eicher

Our son was rejected at birth. That is a fact. And the truth of the matter is, it wasn't just his mother who said she couldn't keep him. It was the society that he was born into as a whole. And that's where the problem lies.

October's Down Syndrome Awareness Month Was Never About Human Rights

Kari Wagner-Peck | Posted 10.28.2015 | Impact
Kari Wagner-Peck

If Down syndrome is to survive it needs a message that accepts it as not a problem to solve, an experience to overcome or an opposing faction, but solely as a human rights issue to address.

Dad's Cartoons Capture Daily Life With His Daughter Who Has Down Syndrome

The Huffington Post | Caroline Bologna | Posted 10.26.2015 | Parents

Connecticut dad Fred Wills has been drawing cartoons practically his entire life, so it was only natural he would make them for his five children. As ...

My Son Who Has Down Syndrome Tells Me Something That Changes Everything

Kari Wagner-Peck | Posted 10.23.2015 | Parents
Kari Wagner-Peck

My son, Thorin, who has Down syndrome, celebrated his birthday earlier this week. His friend, Maggie, who has Down syndrome, shares his birthday. For the last four years they have celebrated not just a birth date but their birthday celebrations as friends. How they found each other is a reunion story.

How My Son Chooses to Teach Down Syndrome Awareness

Mardra Sikora | Posted 10.16.2015 | Parents
Mardra Sikora

This has been my dilemma as Marcus and I have met each new group. Should we talk about Down syndrome? And to what extent? It is, after all, Down Syndrome Awareness Month, and Marcus does happen to have Down syndrome.


Lisa Pullen Kent | Posted 10.08.2015 | Parents
Lisa Pullen Kent

I love teenagers. I do. Everything about them: the awkward, the self-conscious, even the angry bits. I'm especially intrigued by the way they shed their childhood like a skin and emerge a newer, older version of themselves.

Joyful Photo Series Shows Kids With Down Syndrome Loving Life

The Huffington Post | Caroline Bologna | Posted 10.07.2015 | Parents

For the past four years, Rhode Island photographer Laura Kilgus has been offering free photography sessions to kids with Down syndrome ...

48 Parents Of Kids With Down Syndrome Share What They Wish You Knew

The Huffington Post | Hollis Miller | Posted 10.01.2015 | Parents

Along with the changing leaves and the excitement of Halloween, October is special because it's Down Syndrome Awareness Month. There are about 6,000 b...

Woman Who Can’t Read Finds Success In Job Shredding Confidential Documents

The Huffington Post | Kimberly Yam | Posted 09.24.2015 | Good News

Emma: Master Shredder from ABC Open North Queensland on Vimeo. This woman's business is tearing it up.  Emma Lynam, a 21-year-old from ...

WATCH: Film Student With Down Syndrome Directs His Autobiography

HooplaHa | Posted 09.17.2015 | Good News

Jeff is truly an inspiration; through his warm personality, openness and through the perseverance of everything he's overcome and is now passing on that inspiration through this film.

Madeline Stuart, Model With Down Syndrome, Walks In New York Fashion Week

The Huffington Post | Carly Ledbetter | Posted 09.14.2015 | Style

Madeline Stuart, an 18-year-old Australian model who has Down syndrome, walked the runway at New York Fashion Week on Sunday. Stuart opened South...

Connie-Rose, Toddler Model With Down Syndrome, Wins Hearts Everywhere

The Huffington Post | Carly Ledbetter | Posted 09.09.2015 | Style

At nearly two years old, Connie-Rose Seabourne is already changing the world one smile at a time. The British toddler, who was diagnose...

Sarah Palin Supports Ohio Bill That Would Ban Abortions For Down Syndrome

The Huffington Post | Marina Fang | Posted 09.06.2015 | Politics

WASHINGTON -- Sarah Palin urged Ohio lawmakers to pass a state bill that would bar women from getting abortions solely because they do not wish to hav...

Boy With Down Syndrome Sings His Heart Out In Duet With Older Sister

The Huffington Post | Ryan Grenoble | Posted 09.03.2015 | Parents

Noah Kirwin and his sister Leah are titanium. Not literally, of course. In this instance, "titanium" is more of a metaphor for inner strength in the f...

The Weight of Our Words: Self-Advocate Speaks Out Against the R-word

International Down Syndrome Coalition | Posted 08.31.2015 | Impact
International Down Syndrome Coalition

The use of the R-word may seem harmless enough -- until real people get hurt. That one simple word affects people deeply. It hurts people living with intellectual and developmental disabilities, it hurts their families and it hurts their friends.

To My Daughter With Down Syndrome On Her First Day of Kindergarten

Deanna Smith | Posted 08.27.2015 | Parents
Deanna Smith

I know you can do this. It might take a while for you to figure out the new classroom and the new expectations of kindergarten, but you've got this.

Someone Is Missing From the Debate on Ohio's Bill to Ban Down Syndrome Abortions

Kari Wagner-Peck | Posted 08.26.2015 | Impact
Kari Wagner-Peck

My alliance is obviously with the pro-choice contingent, but I was disappointed with their advocates making no mention of people with Down Syndrome. They only spoke about "Down Syndrome" as a potential cause for concern for expectant mothers.

Open Letter of Gratitude and Well Wishes to Actor Chris Burke

Mardra Sikora | Posted 08.18.2015 | Impact
Mardra Sikora

My son was born in 1990, a time when the TV show Life Goes On aired on ABC weekly. This show, which featured a main character who happened to have Down syndrome, made its place in history.

"Black Day: The Monster Rock Band" Author, Marcus Sikora, Is A Storyteller who Happens to Have Down Syndrome

Kari Wagner-Peck | Posted 07.28.2015 | Books
Kari Wagner-Peck

When I handed my 8 year-old son a personalized, autographed copy of the children's book Black Day: The Monster Rock Band, I told him the author, Marcus Sikora, was a 25 year-old man with Down syndrome.

Plain Old Sibling Rivalry

Rachel Adams | Posted 07.22.2015 | Parents
Rachel Adams

Many children, especially young ones, lack the language and self-awareness to express their negative emotions in productive ways. Siblings become convenient targets for our feelings of jealousy and anger, and our dawning awareness of how unfair life can be.

Madeline Stuart, Model With Down Syndrome, Lands Two New Fashion Campaigns

The Huffington Post | Julee Wilson | Posted 07.14.2015 | Style

Madeline Stuart is not your average model. The 18-year-old with Down syndrome is challenging society’s narrow standard of beauty....

Supreme Court Justice for the Chromosome Rights Movement -- the Next Frontier

Joaquin M. Espinosa | Posted 06.30.2015 | Science
Joaquin M. Espinosa

Last week, the Supreme Court ruled against chromosome discrimination. Now, citizens with two X chromosomes can marry somebody with two X chromosomes, and those with a Y chromosome can marry other folks with a Y chromosome too.