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Eb

Epidermolysis Bullosa vs. The California Stem Cell Program: Disease-a-week Challenge # 12

Don C. Reed | Posted 08.13.2016 | Science
Don C. Reed

EB is a rare condition, sometimes called an "orphan disease". This is a good news/bad news situation: we want it rare, because no child should have to suffer such continual pain--but it also means the number of patients wanting cure may be too few to attract corporate money.

PHOTOS: Family Raises Awareness Of Baby's Incurable 'Worst Disease You've Never Heard Of'

Posted 08.27.2012 | Impact

Imagine, as a parent, not being able to touch and hold your baby. Two parents are on a mission to raise awareness for their little girl's little-known...