I started writing about my personal journey with epilepsy because I felt that those of us who can should start a cycle of sharing. The more we talk about a condition that has so often been whispered about, kept in the shadows, treated as a secret, the better off we all will be.
Despite her epilepsy, my wife is still a strong, wonderful person, and the woman of my dreams. And as long as she has epilepsy I will have secondary epilepsy. I choose to love her and walk with her every step of the way through this journey, and always will.
I can most certainly tell that since my epilepsy diagnosis, my heart has swollen with compassion, with love, with understanding and sympathy because I know what it is to face pain, heartache, loss and many other feelings.
One researched remedy that I recently took notice of in my journey, entitled "The Mozart Effect," captured my interest and as someone who has a love for music, I decided that I would dig deeper into this Mozart Effect to grasp a better understanding in my pursuit for a cure.
Over the past 2 years our family has fumbled our way through tuberous sclerosis complex and all the crazy curve balls it can throw. From seizures and hospital stays, to therapies and now brain surgery. I'll be honest though...I never expected to have to prepare for brain surgery.
This motivation and inspiration has propelled me forward throughout my entire journey. Becoming diagnosed at age 22, just four months after marriage was not what I was planning or prepared for. From the very beginning I've reminded myself and shared with others:
If you have epilepsy and if you're thinking about your independence, if it hurts that there are some things that you need a little help doing since becoming diagnosed, don't allow it to consume you not a second longer. It's okay to ask for help.
CBD appears to be a safe drug with no addictive effects, and the preliminary data suggest that it may have therapeutic value for a number of medical conditions. Addressing barriers that slow clinical research with CBD would accelerate progress.
Most people might take into assumption that because I look happy and healthy that there's absolutely nothing wrong. Here's the thing: For the most part, I am completely happy and healthy except for that one minuscule problem. That bump in the road. Epilepsy.
A person's seizure experience is unique to the individual. Having seizures is a major inconvenience to our lives. It's not fun. It's unsettling. It's uncomfortable. We don't want it in our lives. We want it gone. Forever. These are my experiences.