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Epilepsy

Parents Across The Globe Fight To Find Treatment For Epilepsy

Stephanie R. Caudle | Posted 07.13.2016 | Parents
Stephanie R. Caudle

While America continues to struggle with finding a cure for epilepsy our friends in Canada are dealing with the same epidemic.

This 11 Year Old Stood For The First Time in 4 Years -- Amazing!

Wendy Robbins | Posted 07.13.2016 | Impact
Wendy Robbins

Alexis was seven and a half when #FIRES hit. Febrile Infection-Related Epilepsy Syndrome is a rare epilepsy syndrome causing up to hundreds of seizures a day. Her mom shared her daughter's story.

I Looked Back

Tiffany Kairos | Posted 07.08.2016 | Healthy Living
Tiffany Kairos

So often, I found myself looking back to moments before epilepsy barged into my life unannounced. Every now and then, my mind will drift there and I must assure that I can learn, grow and become strengthened in these moments.

Reading And Riding 4 Taylor

Amikka Smith | Posted 07.01.2016 | Impact
Amikka Smith

Reading, riding and praying for a solution this mother travels cross country in 90 days in hopes to promote literacy awareness, and not just for anyone, but for her daughter Taylor.

When Hate Calls Itself Hope

Bill Couzens | Posted 05.31.2016 | Politics
Bill Couzens

My mother told me that people would not understand what I had and would make judgments about me. She told me I would have to stop doing some things like riding my bike, and I might not be able to drive -- that they would have to see how the medicine worked.

How Running (Literally) Everywhere Helps Me Cope With Epilepsy

Willemien Kets | Posted 05.11.2016 | Healthy Living
Willemien Kets

People who have had a seizure in the recent past are prohibited from driving. And my doctor felt that even biking would be too risky in my case. So, I just ran everywhere, even if that meant running a half marathon to get some paperwork done on the other side of town.

Prince and the Sparkle Brains: Growing up epileptic, surviving sexual abuse, and loving Prince

Karrie Higgins | Posted 04.25.2016 | Arts
Karrie Higgins

The day Prince died, I was walking to the audiologist office to pick out hearing aids, Purple Rain playing on my purple iPod, my lipstick-red walkin...

Please Make Marijuana Legal to Help My Son's Epilepsy

Katie Corkern | Posted 04.08.2016 | Parents
Katie Corkern

Dear legislator, I am writing to you as a mother -- a heartbroken mom to a child with uncontrollable seizures. I come to you in tears as I sit here holding my vibrating child as yet another seizure has taken hostage of his brain. Parents are supposed to protect their children and here I am failing at it.

5 Things I've Said To Strangers That Were Not Jokes

Hillary Savoie | Posted 04.06.2016 | Parents
Hillary Savoie

Having a child who is medically complex is serious business... but it also involves finding humor in unexpected places.

An Open Letter to Harrison Ford

Tiffany Kairos | Posted 03.09.2016 | Healthy Living
Tiffany Kairos

Again, thank you for shining a light on epilepsy. Having loving, caring support is astounding medicine in itself. Not only motivational and inspirational for your daughter Georgia but all who are fighting epilepsy too.

Harrison Ford Reveals Daughter Has Epilepsy During Emotional Speech

The Huffington Post | Julia Brucculieri | Posted 03.10.2016 | Entertainment

Harrison Ford has revealed that his daughter, 26-year-old Georgia Ford, has epilepsy. On Tuesday, the screen legend attended NYU Langone Medical Cent...

How Reddit Saved The Life Of A Woman Having A Seizure

The Huffington Post | Hilary Hanson | Posted 02.24.2016 | Good News

Anna Messner was horrified when she saw her fiancee begin to have an epileptic seizure thousands of miles away. Messner was in Tennessee, chatting wit...

Things To Never Do When Someone Tells You They Have Epilepsy

Tiffany Kairos | Posted 02.24.2016 | Healthy Living
Tiffany Kairos

I encourage epilepsy fighters, family and friends to take a look at both of the lists together and use these lists as a learning opportunity to think about what might be helpful and how this can offer support. It is my hope to make the epilepsy journey a little less stressful and exhausting.

Most Don't Make It, But That's Not My Story

Melissa Gil | Posted 02.10.2016 | Healthy Living
Melissa Gil

I started writing about my personal journey with epilepsy because I felt that those of us who can should start a cycle of sharing. The more we talk about a condition that has so often been whispered about, kept in the shadows, treated as a secret, the better off we all will be.

Epilepsy: What a Seizure Looks Like, When it Looks Like Something Else

Alicia Gonzalez | Posted 02.05.2016 | Parents
Alicia Gonzalez

My daughter was just two years old when she had her first seizure, due to Epilepsy. I didn't see it happen. I wish I had, because for the longest mom...

Lucky to Be Alive: Zika Coverage, Ableism, and the Terror of Disabled Bodies

Karrie Higgins | Posted 02.05.2016 | Healthy Living
Karrie Higgins

I am pro-choice. I am not talking about choice. I am talking about how it feels as a disabled person to witness panic about disabled bodies coming into this world. 

New Report Evaluates Medical Marijuana Programs Nation-wide

Steph Sherer | Posted 01.29.2016 | Politics
Steph Sherer

State lawmakers now have the tools they need to improve medical cannabis programs to truly meet the needs of the patients they are meant to serve.

How A Little Girl From Texas Helped Bring Medical Marijuana To Latin America

Penny Howard | Posted 01.19.2016 | Politics
Penny Howard

The story of my daughter Harper is that everybody's life, even if they have special needs, has a purpose.

Secondary Epilepsy

Tiffany Kairos | Posted 01.11.2016 | Healthy Living
Tiffany Kairos

Despite her epilepsy, my wife is still a strong, wonderful person, and the woman of my dreams. And as long as she has epilepsy I will have secondary epilepsy. I choose to love her and walk with her every step of the way through this journey, and always will.

A Brilliant Use For Smartwatches That Could Save Lives

The Huffington Post | Damon Beres | Posted 01.07.2016 | Technology

Forget the Apple Watch -- that's what the man behind a potentially lifesaving app for people with epilepsy did. Ryan Clark, a video game developer, ha...

Is Epilepsy a Bully? 5 Things You Can Do to Help

Tiffany Kairos | Posted 12.23.2015 | Healthy Living
Tiffany Kairos

What can you do as someone living with epilepsy to help? Here are five things you can do to help:

The Sweet Thing This Mall Santa Did For A Toddler With Epilepsy

The Huffington Post | Caroline Bologna | Posted 12.10.2015 | Parents

When 2-year-old Ryland Wade met Santa Claus at the mall for the first time, he was fast asleep as a result of an epileptic seizure that left him tired...

5 Reasons I Love My Life Even More Because of My Epilepsy

Tiffany Kairos | Posted 11.05.2015 | Healthy Living
Tiffany Kairos

I can most certainly tell that since my epilepsy diagnosis, my heart has swollen with compassion, with love, with understanding and sympathy because I know what it is to face pain, heartache, loss and many other feelings.

The Mozart Effect and Epilepsy

Tiffany Kairos | Posted 10.06.2015 | Healthy Living
Tiffany Kairos

One researched remedy that I recently took notice of in my journey, entitled "The Mozart Effect," captured my interest and as someone who has a love for music, I decided that I would dig deeper into this Mozart Effect to grasp a better understanding in my pursuit for a cure.

How To Prepare For Your Child's Brain Surgery

Heather Lens | Posted 10.02.2015 | Parents
Heather Lens

Over the past 2 years our family has fumbled our way through tuberous sclerosis complex and all the crazy curve balls it can throw. From seizures and hospital stays, to therapies and now brain surgery. I'll be honest though...I never expected to have to prepare for brain surgery.