My parents face tough choices every day. They have endured my love for travel knowing that when I travel sometimes I will be out of their protection. But they are equally determined to celebrate these joys with me. They love and support that I work at overcoming the limitations epilepsy tries to impose.
After a terrifying start to her life with catastrophic childhood epilepsy, Addie has clawed her way to a sense of confidence, grit and burgeoning independence. But there's little time to celebrate her achievement of things that once seemed impossible. We feel compelled to take away some of her rights.
So here I am, 26 and paying out-of-pocket nearly more than I make in a week because a leading insurance provider, on an expensive Gold-Level plan, cannot give me the medication I need. In a country priding itself on innovation, we're doing a hell of a job making sure our young adults can take the risks necessary to push our country forward.