iOS app Android app

Fshd

My Personal Introspection into FSHD Muscular Dystrophy

Trisha Lynn Sprayberry | Posted 10.04.2014 | Impact
Trisha Lynn Sprayberry

Our bodies are our vessels that contain our energy, our souls. Vessels we are in charge of filling with beautiful moments, positive experiences and personal enlightenment's towards finding oneself.

This Is FSHD

Max Adler | Posted 09.15.2014 | Impact
Max Adler

Growing up, I watched my mother and grandmother battle FSH muscular dystrophy. Not many people know about FSHD, but it affects more than 500,000 people around the world, and there is currently no treatment or cure.

The Power of a Selfie

Kristin Duquette | Posted 09.08.2014 | Impact
Kristin Duquette

I've always been a bit self-conscious about people taking my picture; especially when the photographer asks me to smile more; unbeknownst that I have a condition which weakens my facial muscles.

Unnecessarily Dependent: Consequences of Denying the Mobility Challenged

Trisha Lynn Sprayberry | Posted 05.17.2014 | Impact
Trisha Lynn Sprayberry

Why are we intentionally making things so much harder for those who already have more to deal with because of their disabilities, injuries, and/or limitations? It's just like kicking someone when they are already down!

Accommodating People With Disabilities

Trisha Lynn Sprayberry | Posted 05.10.2014 | Impact
Trisha Lynn Sprayberry

After two years of deploying every considered option, I was on a road to nowhere, all because I needed to find a way to acquire a wheelchair accessible vehicle now that I am permanently wheelchair bound.

The Gift My Disability Gave Me

Trisha Lynn Sprayberry | Posted 05.06.2014 | Impact
Trisha Lynn Sprayberry

Sometimes the only way we are able to change our perspective is because our perspective is changed for us.

My Daughter Who Almost Wasn't

Trisha Lynn Sprayberry | Posted 04.15.2014 | Impact
Trisha Lynn Sprayberry

I however share a more intrinsic view. My child, even unborn, is a person of their own. Because her life itself is life, growing and developing, albeit within my body, but still her very own.