Genetic counseling can be the answer. Individuals who seek genetic counseling learn about genetic testing options. They have no obligation to take the test when they have genetic counseling. These individuals are seeking information and enabling themselves to make educated decisions. This is the essence of genetic counseling.
Directed by Lucy Walker, the film explores a harrowing predicament: Researchers have developed a test for HD, but have not yet found a way to halt the progression of the disease. Understandably, because knowledge of the results is irreversible, the vast majority of non-symptomatic people shy away from testing.
In the fall of 2010, as my brother was dying of colon cancer, I learned a terrifying secret. He also had Huntington's disease, a horrific brain disorder that is passed down in families. Suddenly, even as I was losing my cherished sibling, my childhood soulmate, I was also grappling with my own possible death.