iOS app Android app

Huntingtons Disease

WONDER WOMEN AT WORK: the California Stem Cell Agency vs. Huntington's Disease

Don C. Reed | Posted 08.26.2016 | Science
Don C. Reed

In the fields of medical research and patient advocacy, modern-day "wonder women" are not hard to find. But the evils they face are not comic at all.

People at Center of Clinical Research -- An Approach to Finding a Treatment for Huntington's Disease

Lisa M. Stanek | Posted 08.12.2016 | Healthy Living
Lisa M. Stanek

Imagine you are 18 years old and you've just learned the results of a genetic test indicating you have a mutation in the gene that is associated with ...

Genetic Counseling: Making Genetics Real

Michelle Fox, MS, LCGC | Posted 07.07.2016 | Healthy Living
Michelle Fox, MS, LCGC

Genetic counseling can be the answer. Individuals who seek genetic counseling learn about genetic testing options. They have no obligation to take the test when they have genetic counseling. These individuals are seeking information and enabling themselves to make educated decisions. This is the essence of genetic counseling.

Will Inside the O'Briens Do for Huntington's Disease What Still Alice Did for Alzheimer's?

Carolyn Bass | Posted 06.26.2016 | Books
Carolyn Bass

Inside the O'Briens, the new novel by Still Alice author Lisa Genova, promises to do for Huntington's disease, what Still Alice did for Alzheimer's.

Huntington's Disease Awareness: Spreading It, Maximizing It and Measuring Success With a Hot Dish

Sean Thompson | Posted 06.22.2016 | Healthy Living
Sean Thompson

Feeling supported and understood by friends and the general public, and not feeling utterly alone anymore. This is how so many in the Huntington's dis...

Predictive Genetic Testing for Huntington's Disease: A Journey With a Genetic Counselor as Your Guide

Alicia Semaka | Posted 06.18.2016 | Healthy Living
Alicia Semaka

In 1993, a remarkable scientific discovery was made -- the genetic mutation that causes Huntington's disease (HD) was identified. This breakthrough al...

Closing the Lion's Mouth: Knowledge and Huntington's Disease

Sandra Kostyk | Posted 06.03.2016 | Healthy Living
Sandra Kostyk

They say knowledge is power. Take for example genetic testing for BRCA gene mutations known to increase risk of breast cancer. If you have a famil...

Happy Graduation -- Do You Want to Know Your Genetic Future?

Louise Vetter | Posted 06.02.2016 | Healthy Living
Louise Vetter

At age 18, if one of your parents has HD, you are eligible to be genetically-tested for the mutant gene that causes Huntington's disease. Your chance of having the gene is the equivalent of the flip of a coin, and if you have the gene, you will develop HD. It's not an "if," it's a "when."

What It's Like To Face The Threat Of Huntington's Disease

The Huffington Post | Alena Hall | Posted 06.01.2015 | Healthy Living

It's one of the rare but fatal diseases that relies solely on one's genetic makeup, leading to one of the scariest questions 200,000 Americans today m...

Early-Stage Brain Research Key to Unlocking Huntington's Disease

Terre A. Constantine, Ph.D. | Posted 05.29.2016 | Healthy Living
Terre A. Constantine, Ph.D.

It can take decades of research into a brain disorder before the concept of a new treatment is conceived by scientists. More research funding would help hasten the pace of this discovery. Today, the largest unmet need in science is our ability to fund even more promising research.

Overcoming the Fear of the Lion: A Courageous Film About Genetic Testing and Huntington's Disease

Kenneth P. Serbin | Posted 05.29.2016 | Healthy Living
Kenneth P. Serbin

Directed by Lucy Walker, the film explores a harrowing predicament: Researchers have developed a test for HD, but have not yet found a way to halt the progression of the disease. Understandably, because knowledge of the results is irreversible, the vast majority of non-symptomatic people shy away from testing.

Inside Huntington's

Lisa Genova | Posted 05.29.2016 | Healthy Living
Lisa Genova

The discovery of the genetic mutation for HD in 1993 made genetic screening possible, and so every generation within an HD family "at risk" is burdened with an incredibly complex question: Do you want to know if you will get HD?

Life With HD and a Dog Named Flo

RB Hackenberg | Posted 05.29.2016 | Healthy Living
RB Hackenberg

As it turned out the most significant meeting was with the physical therapist, who, after a brief interview, showed us strength and balance exercises, and how to get up after a fall. But, her most important recommendation was: "Get a dog!"

The Note of Hope: Woody Guthrie Center Partners for Huntington's Awareness

Deana McCloud | Posted 05.29.2016 | Healthy Living
Deana McCloud

Guests who tour the Center often ask for more information about Huntington's Disease. Many struggle to find a comparable degenerative disorder to associate with Huntington's, but we encourage them to think of each disease as its own dreadful condition.

Maureen Ryan

Please Stand By; Back After The Break | Maureen Ryan | Posted 05.22.2015 | Entertainment

I can almost pinpoint the moment I decided to take a leave of absence from my job. The date isn’t stuck in my mind, but the feeling I had in that mo...

The Cold Reality That's Set In After Last Year's Ice Bucket Challenge

Dawn Q Landau | Posted 06.13.2015 | Fifty
Dawn Q Landau

While ALS has certainly gotten so much more focus than it would have otherwise, now that all the ice buckets from all the ice-bucket challenges have been emptied, those on the front line are still suffering, with too little funding and often with little company.

Why 'Black Box' Is My New Favorite Show

Morgan Levy | Posted 01.08.2015 | Teen
Morgan Levy

The brain fascinates me, and my perfect career is to explore the mysteries of the brain while curing patients. Dr. Catherine Black, on Black Box, is exactly the type of neurologist I aspire to be.

The Doctor and the Patient

Greg O'Brien | Posted 02.02.2015 | Healthy Living
Greg O'Brien

Barry says you can fish on the flats for two hours -- an hour before and after low tide -- without having to worry. The tide, as it is with aging, creeps in deceptively.

On the Perils of Genetic Testing

Mona Gable | Posted 08.21.2014 | Books
Mona Gable

In the fall of 2010, as my brother was dying of colon cancer, I learned a terrifying secret. He also had Huntington's disease, a horrific brain disorder that is passed down in families. Suddenly, even as I was losing my cherished sibling, my childhood soulmate, I was also grappling with my own possible death.

WATCH: Space Crystals May Help Crack Deadly Disorder | Megan Gannon | Posted 05.05.2014 | Science

Scientists hope space-grown crystals of the protein behind Huntington's disease could help them better understand the deadly neurodegenerative disorde...

Chats With Jimmy Webb, Nora Guthrie and Little River Band's Wayne Nelson, Plus Tracy Newman and The Slants Exclusives, and Colin Gilmore's Best

Mike Ragogna | Posted 11.06.2013 | Entertainment
Mike Ragogna

Let's talk about Jimmy Webb's new album, Still Within The Sound Of My Voice.

Dementia and Wandering: A View From Search and Rescue

Dave Baldridge | Posted 09.11.2013 | Healthy Living
Dave Baldridge

We'll see more senior citizen wanderers in cities, parks, suburbs, and wilderness. Search and rescue teams do their best to mitigate the often-devastating effects of wandering, but they can't prevent the incidents.

Me and Newtown

May Benatar, Ph.D., L.C.S.W. | Posted 04.08.2013 | Healthy Living
May Benatar, Ph.D., L.C.S.W.

There was basically no town in Newtown, as I remember it. We had to catch a ride into New York City if we expected much fun.

To Know or Not to Know?

Nathan Risinger | Posted 04.08.2013 | Healthy Living
Nathan Risinger

We often equate knowledge with power: The more we know, the better we are able to make decisions. Unfortunately, there are cases where ignorance really may be bliss, and Alzheimer's isn't the only one.

Huntington's Disease and the Inspiration Behind The Shortest Way Home

Juliette Fay | Posted 01.13.2013 | Healthy Living
Juliette Fay

At the time that Sue and I lived together in our 20s, there was no test for the disease, as there is now. She had no way of knowing if she would begin to lose her physical and mental capacities in 10 years -- or never.