I'm not Wonder Woman, far from it. Narcolepsy challenges me daily. I take medication twice a day and twice a night, both of which cause unpleasant side-effects. And I still have sleep attacks and cataplexy every day.
Imagine a world in which it's extremely hard to find doctors who take seriously that your discomfort is really physiological, a world in which the right treatment for you is elusive. That's the world of autonomic disorders.
Increased volunteer participation in trials offers patients access to cutting-edge treatments and contributes to the development of better treatments to prolong life and eventually drive those cancers into remission.
You don't need to be an M.D. to take charge of your own diagnosis in this way, but you do need to be patient, persistent, and knowledgeable enough to share the right information and ask the right questions of the right medical partners.