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Invisible Disease

'I'm Not Looking To Be Saved From Narcolepsy'

Julie Flygare | Posted 10.10.2014 | Healthy Living
Julie Flygare

I'm not Wonder Woman, far from it. Narcolepsy challenges me daily. I take medication twice a day and twice a night, both of which cause unpleasant side-effects. And I still have sleep attacks and cataplexy every day.

Making Hope When the Medical System Can't

Deborah J. Cornwall | Posted 09.10.2014 | Healthy Living
Deborah J. Cornwall

Autonomic disorders, like POTS (Postural Orthostatic Tachycardia Syndrome, sometimes called simply Postural Tachycardia Syndrome) and Neurocardiogenic...

Invisible Illness: How to Sustain Hope?

Deborah J. Cornwall | Posted 09.10.2014 | Healthy Living
Deborah J. Cornwall

Imagine a world in which it's extremely hard to find doctors who take seriously that your discomfort is really physiological, a world in which the right treatment for you is elusive. That's the world of autonomic disorders.

Got Advanced Cancer? Consider Clinical Trials

Deborah J. Cornwall | Posted 07.07.2014 | Healthy Living
Deborah J. Cornwall

Increased volunteer participation in trials offers patients access to cutting-edge treatments and contributes to the development of better treatments to prolong life and eventually drive those cancers into remission.

5 Things to Do When Symptoms Are Not 'All in Your Head'

Deborah J. Cornwall | Posted 06.11.2014 | Health and Fitness
Deborah J. Cornwall

You don't need to be an M.D. to take charge of your own diagnosis in this way, but you do need to be patient, persistent, and knowledgeable enough to share the right information and ask the right questions of the right medical partners.