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Lewy Body Dementia

What It's Like To Love Somebody With Lewy Body Dementia

The Huffington Post | Anna Almendrala | Posted 11.17.2015 | Healthy Living

Pat Snyder tried 12 doctors over seven years before she found one who could properly treat her husband, John. John Snyder began experiencing lapses i...

Robin Williams' Widow On His Death: 'I Completely Forgave Him'

The Huffington Post | Carly Ledbetter | Posted 11.05.2015 | Entertainment

Susan Schneider, Robin Williams' widow, recently sat down with People to talk about her late husband's battle with Lewy body dementia and his August 2...

Robin Williams and Mama Jean: The 'Stars' of Lewy Body Dementia

Jamie Brickhouse | Posted 11.04.2015 | Healthy Living
Jamie Brickhouse

We can all do our part by spreading the word about our own stars who are suffering or have died from LBD. The more stories we hear, the more LBD will have beat the challenge of awareness, so it can move on to the momentous challenges of treatment and cure.

Robin Williams' Widow Implicates Underlying Brain Disease In His Death

The Huffington Post | Anna Almendrala | Posted 11.03.2015 | Healthy Living

Robin Williams' widow said that an autopsy of the actor indicated that he took his own life in 2014 not because of depression, but because of a progr...

5 Compassion Practices for Dementia Caregivers

Marguerite Manteau-Rao | Posted 09.30.2015 | Healthy Living
Marguerite Manteau-Rao

There is no substitute for actual experiencing, or as close to it as we can get. Only then can we feel from the heart, the extent of what our loved one may be going through. This is much more powerful than just reading about it. With its built-in readiness, caring from the heart is a lot lighter on us and more likely to sustain us in the long run.

Mother's Day Tribute: Feeling Mama Jean's Love Long After She's Gone

Jamie Brickhouse | Posted 05.07.2015 | Gay Voices
Jamie Brickhouse

I always dreamed that when I finally gave birth and held my first baby, the moment would be divinely special. I'm not a new mother, nor even a father, but a first-time author who delivered a book.

The Conversation Nobody Wants To Have -- But Should

Lisa K. Friedman | Posted 06.08.2015 | Fifty
Lisa K. Friedman

It's been over a year since my father's death. In that time, I've struggled to remember him as a well person. He was healthy for my first 45 years of life and yet, hard as I try, I cannot reimagine him as whole. So dramatic was the scenery of his decline, it infected the memories that were amassed underneath.

From Robin Williams to My Father, Understanding Lewy Body Dementia

Kuntal Joisher | Posted 02.16.2015 | Impact
Kuntal Joisher

However, LBD is not a rare disease. The second most common form of dementia, it affects an estimated 1.4 million individuals and their families in the United States, and millions more across the world.

The Little-Known Aging Illness That Needs More Awareness

Candy Schulman | Posted 08.19.2014 | Fifty
Candy Schulman

When the legendary radio personality Casey Kasem died, his obituary said he'd suffered from Lewy Body disease. 'Lewy-what?' most people wondered. But I knew first-hand, watching my mother decline from this little-known, but most common, type of progressive dementia after Alzheimer's.

Casey Kasem and Mama Jean: The Faces of Lewy Body Dementia

Jamie Brickhouse | Posted 07.19.2014 | Gay Voices
Jamie Brickhouse

Almost everybody has heard of Alzheimer's, but few are aware of LBD, an equally devastating dementia that is progressive and fatal. Perhaps Kasem's diagnosis may finally bring LBD the attention it deserves.

I'm Climbing Everest for a Cause

Kuntal Joisher | Posted 06.18.2014 | Impact
Kuntal Joisher

Yes, I know hundreds of people attempt to summit the highest point in the world every year, but I'd like to think my journey is special. I'm climbing in honor of my father for over a decade.

I Used to Be Married

Pamme Boutselis | Posted 06.02.2014 | Healthy Living
Pamme Boutselis

My husband was diagnosed with Parkinson's disease just after he turned 40. A talented long-distance runner and veteran of many first-place race finishes and successful marathons, he was an extremely athletic and healthy man. When his foot started to drag and a tremor found its way into his left arm and hand, I somehow knew he had this disease but had no idea just what the implications might be.

How to Keep Humor in the Picture When Dealing With Dementia

Carol W. Berman, M.D. | Posted 08.25.2013 | Healthy Living
Carol W. Berman, M.D.

You might think there is nothing humorous about caring for a loved one with dementia. In order to maintain my sanity, I found humor in everyday events. With humor we can focus on what is too terrible to be borne. And when we are laughing we are not in fear.

When Dealing With a Very Sick Spouse, Bravery Is Essential

Judy Towne Jennings | Posted 05.29.2013 | Healthy Living
Judy Towne Jennings

I encourage all spouses to seek answers. When we know what we are dealing with, we have the opportunity to create an adventure, rather than succumb to a disaster. Be brave. The life of your loved one depends on it.

8 Ways to Spot Your Denial About Dementia

Carol W. Berman, M.D. | Posted 04.03.2013 | Healthy Living
Carol W. Berman, M.D.

At first, denial can be a healthy defense against admitting that your loved one has dementia. Denial helps you block the more painful aspects of reality. However, if denial continues too long, then it can be life-threatening to you and your loved one.

Will New DSM-5 Diagnosis End 'Dementia' Stigma?

Marguerite Manteau-Rao | Posted 06.05.2012 | Healthy Living
Marguerite Manteau-Rao

"Dementia" is a loaded word, one that carries with it the baggage of hundreds of years of gross associations and misunderstanding of the reality of the person living with the illness.