ALS is a very expensive disease, costing patients an estimated $300,000 a year. The average life expectancy for someone with ALS is 18 months. We wouldn't leave a soldier with a battle wound sitting around waiting to see a doctor for 16 months. So why are we now?
As this tenacious disease continues to attack my body, I am forced to rely on others for so much of my day-to-day life. Accepting this was extremely difficult in the beginning but I have learned to not only accept it, but embrace it.
When you're on the side of a mountain in the middle of a range chock full of them, dusk turns to darkness in an instant. We were on hour six of our four hour hike, our large group of 25 people, all walking the same treacherous trail.
Every day is a challenge, even in a battle between my body and me. Don't get me wrong, I do have a choice in what I put in my body, but how my body functions or even appears is outside of my control because of ALS.