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Locked in Syndrome

Rain, on a Summer Day

Yara Zgheib | Posted 06.08.2016 | Impact
Yara Zgheib

"When at home alone I sit And am very tired of it, I have just to shut my eyes To go sailing through the skies"-- It is raining in June. That is no...

My Love/Hate Relationship With My Stroke

Harshada Rajani | Posted 01.29.2016 | Good News
Harshada Rajani

My stroke robbed me of my arms, my legs and my voice. It stole from me my pride, my dignity, and that one ever evasive thing I once had loads of -- my happiness. But it left me my brain, my mind, my heart, my soul, whatever you want to call it, all in one piece.

What It's Like to Lose Your Ability to Speak

Amanda Gutterman | Posted 12.16.2015 | Impact
Amanda Gutterman

For me and my mother, watching fall slip quietly once again into winter, we're both reminded that something is missing. That something is my dad, who died around the holidays in 2007 after a long fight with ALS.

You Can Be Completely Mentally Alert While In A Coma

The Huffington Post | Anna Almendrala | Posted 01.15.2015 | Healthy Living

When Martin Pistorius was 12, he was felled by a mysterious illness that slowly stripped him of his ability to move and speak. Doctors told his parent...

Lifting the Veil of the Ice Bucket Challenge

Harshada Rajani | Posted 10.27.2014 | Healthy Living
Harshada Rajani

I don't mean to be a buzzkill, but I want everyone to remember that there is a terrifying, heartbreaking illness behind this passing, seemingly frivolous fad. I want people to know that learning about this scary disease is arguably as important as donating.

Man With Locked-In Syndrome Learns To Talk Again By Copying Baby Daughter

Posted 07.18.2012 | Healthy Living

Mark Ellis, a 24-year-old father from the U.K. with locked-in syndrome, has re-learned how to walk and talk, in part by copying his baby daughter. The...