The daily life of ALS is constantly filled with challenges for everyone involved. It is not just me, the patient (I hate that word), but for everyone around me. This is never more true than when travel, especially air travel, is on the horizon.
The film Still Alice starting Julianne Moore which deals with early onset Alzheimer's, has a back story in which one of the two directors was diagnosed with ALS, something poignant in and of itself, and something which had an impact on the film's direction as well.
The Theory of Everything in the end is about everything. About the cosmos. About the existence of God. What can be scientifically proven and what can not. Disabilities, which we all have in a myriad of different ways, and what we do with them. It's a love story.
While it may seem as if "everyone" has already done the ALS Ice Bucket Challenge (or has been challenge to do it, and declined to join the fun), the viral sensation is still charging full-steam ahead, and may even be just getting started.
In our church life, there are times when water is poured on our heads or our whole bodies are immersed in pools of water. Through this sacrament we experience that same type of connection to others in our faith. That is baptism.
How much closer would we be to a cure today if instead of wasting millions of dollars on failed animal experiments, the money had been used to create more effective human-based testing methods that accurately recreated the disease?
The reality is that many who have completed the challenge have also donated to the cause. Those who have completed the task without donating have, through their online videos, raised awareness and encouraged others to donate.
Some people say it is a waste of water, while others say it's a publicity stunt. Some people have criticized the campaign by associating it with "slacktivism." Why throw a bucket of ice water over your head when you can simply donate the money straight to the organization?
ALS is a very worthy cause, but there are many worthy causes that don't see this type of engagement and support. The challenge is the restoration of faith in humanity that the media wants to promote and the public wants to absorb.