May was the first ALS Awareness Month since the Ice Bucket Challenge. That silly, organic, viral campaign did more for ALS awareness than years of marketing by any organization could have ever done. Millions of people created videos last summer.
You may not know anyone with ALS. You may not want to know about this disease, or how devastating it is. You may not want to think about things that are so frightening or painful or things that could actually happen to you.
The daily life of ALS is constantly filled with challenges for everyone involved. It is not just me, the patient (I hate that word), but for everyone around me. This is never more true than when travel, especially air travel, is on the horizon.
The film Still Alice starting Julianne Moore which deals with early onset Alzheimer's, has a back story in which one of the two directors was diagnosed with ALS, something poignant in and of itself, and something which had an impact on the film's direction as well.
The Theory of Everything in the end is about everything. About the cosmos. About the existence of God. What can be scientifically proven and what can not. Disabilities, which we all have in a myriad of different ways, and what we do with them. It's a love story.
While it may seem as if "everyone" has already done the ALS Ice Bucket Challenge (or has been challenge to do it, and declined to join the fun), the viral sensation is still charging full-steam ahead, and may even be just getting started.
In our church life, there are times when water is poured on our heads or our whole bodies are immersed in pools of water. Through this sacrament we experience that same type of connection to others in our faith. That is baptism.
How much closer would we be to a cure today if instead of wasting millions of dollars on failed animal experiments, the money had been used to create more effective human-based testing methods that accurately recreated the disease?