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Lou Gehrigs Disease

Review: Blogging Death, and Searching for Meaning in a Painful Decline

The National Book Review | Posted 11.28.2015 | Books
The National Book Review

When Bruce Kramer, a Minnesota professor of education, was diagnosed with Amyotrophic Lateral Sclerosis (ALS) - or Lou Gehrig's disease - in 2010, his world exploded. Kramer began writing a blog to capture the agony of his physical deterioration and his struggle to hold onto the splintered pieces of his life

The Cost of ALS Is Killing Us, and Our Vets

Jay Smith | Posted 11.19.2015 | Politics
Jay Smith

ALS is a very expensive disease, costing patients an estimated $300,000 a year. The average life expectancy for someone with ALS is 18 months. We wouldn't leave a soldier with a battle wound sitting around waiting to see a doctor for 16 months. So why are we now?

Mom With ALS Shares Incredible Breastfeeding Story In Viral Post

The Huffington Post | Caroline Bologna | Posted 09.11.2015 | Parents

Just two weeks after learning she was pregnant, Amanda Bernier received a heartbreaking diagnosis: amyotrophic lateral sclerosis, or ALS.  After ...

How Jerry Lewis Seduced Me

Petra Perkins | Posted 08.26.2015 | Entertainment
Petra Perkins

In the tradition of Same Time, Next Year where Alan Alda and Ellen Burstyn trysted annually for a quarter century, I was intimate with Jerry Lewis, every September. I'd meet him on Labor Day and we'd spend the entire night together. Drinks, dinner.

How The Ice Bucket Challenge Has Changed ALS Research

The Huffington Post | Leigh Weingus | Posted 08.13.2015 | Healthy Living

Last summer was full of people dumping buckets of ice on their heads in the name of funding ALS research. A year later, it looks like it was totally ...

Efforts Initiated to Conduct First FDA Phase I Trial for ALS

April Rudin | Posted 07.30.2015 | Impact
April Rudin

Although designated an "orphan disease" because it affects less than 200,000 Americans, Amyotrophic Lateral Sclerosis (ALS) saw millions of benefactors stand tall last year to douse themselves with ice water in support of a cure. The numbers were staggering.

Augie's Quest for a Cure

Mike Alpert | Posted 07.14.2015 | Impact
Mike Alpert

I have known Augie Nieto for over 25 years as the founder and owner of Life Fitness, one of the world's largest manufacturer's of Cardio & Strength equipment. When I first met Augie he was driving around in a Slugo Motor Home trying to sell his LifeCycles to Nautilus clubs.

ALS Stole My Body But Saved My Soul

Dr. Misee Harris | Posted 07.13.2015 | Impact
Dr. Misee Harris

The disease is strong, and without access to the means of someone like Stephen Hawking, Jason is in bad need of better care and living conditions in order to continue with his important mission. That is why his family and friends, have set up a GoFundMe campaign for Jason Pillow.

ALS Awareness Month -- Beyond the Ice Bucket Challenge

Stephen Finger | Posted 06.01.2015 | Impact
Stephen Finger

May was the first ALS Awareness Month since the Ice Bucket Challenge. That silly, organic, viral campaign did more for ALS awareness than years of marketing by any organization could have ever done. Millions of people created videos last summer. 

Disease-a-Week Challenge #1: How the California Stem Cell Program is Battling Lou Gehrig's Disease

Don C. Reed | Posted 05.28.2015 | Politics
Don C. Reed

Last year, chronic disease cost America as much as all federal income tax and the national debt combined. Let me prove that.

'Still Alice' Writer-Director Dies

AP | LINDSEY BAHR | Posted 03.11.2015 | Entertainment

LOS ANGELES (AP) — Richard Glatzer, who co-wrote and directed the Alzheimer's drama "Still Alice" alongside his husband, Wash Westmoreland, while ba...

Help Her Live Better Days: An ALS Documentary

Jennifer Wolfe | Posted 05.09.2015 | Impact
Jennifer Wolfe

You may not know anyone with ALS. You may not want to know about this disease, or how devastating it is. You may not want to think about things that are so frightening or painful or things that could actually happen to you.

Terminally Ill Woman's Dying Wish To See Rembrandt Exhibit For Last Time Is Fulfilled

The Associated Press | Posted 03.06.2015 | Good News

AMSTERDAM (AP) -- A Dutch charity has granted a terminally ill woman's dying wish, wheeling her into Amsterdam's Rijksmuseum on a special bed for a pr...

I Am Not Free to Move About the Cabin

Kevin Swan | Posted 04.25.2015 | Impact
Kevin Swan

The daily life of ALS is constantly filled with challenges for everyone involved. It is not just me, the patient (I hate that word), but for everyone around me. This is never more true than when travel, especially air travel, is on the horizon.

There's No Place Like Home: Caring for Our Ill, Disabled and Dying Loved Ones

BJ Gallagher | Posted 04.15.2015 | Healthy Living
BJ Gallagher

I often wonder about the millions of people who don't have any money -- those who don't have decades of savings to draw on for end-of-life care. What happens to them?

News Anchor Announces He Has ALS In Heart-Wrenching Video

The Huffington Post | Leigh Weingus | Posted 01.26.2015 | Media

In an emotional message, longtime Raleigh, North Carolina news anchor Larry Stogner announced Friday he has been diagnosed with ALS and will be steppi...

Dying of ALS or Not

Carol Smaldino | Posted 03.23.2015 | Impact
Carol Smaldino

The film Still Alice starting Julianne Moore which deals with early onset Alzheimer's, has a back story in which one of the two directors was diagnosed with ALS, something poignant in and of itself, and something which had an impact on the film's direction as well.

The Theory of Everything Should Win Everything

Lonna Saunders | Posted 02.17.2015 | Chicago
Lonna Saunders

The Theory of Everything in the end is about everything. About the cosmos. About the existence of God. What can be scientifically proven and what can not. Disabilities, which we all have in a myriad of different ways, and what we do with them. It's a love story.

Genes May Play A Larger Role In Lou Gehrig's Disease Than Previously Thought

Posted 12.08.2014 | Healthy Living

By: Rachael Rettner Published: 12/07/2014 10:00 AM EST on LiveScience In most cases of Lou Gehrig's disease, or amyotrophic lateral sclerosis (AL...

ALS Patient's Ice Bucket Challenge Was A Tearjerker, And So Is His Wedding Video

The Huffington Post | Ashley Reich | Posted 11.26.2014 | Weddings

Anthony Carbajal won the hearts of millions -- 16,276,733, to be exact -- with his touching ALS ice bucket challenge video, in which the 26-year-old r...

Viral Fun Is The New Philanthropy 2.0

Forbes | Ryan Scott | Posted 10.15.2014 | Impact

More than $100 million. That’s how much the ice bucket challenge has raised for ALS, courtesy of three million plus people. According to the ALS...

Here's Yet Another Reason To Love Leonardo DiCaprio

The Huffington Post | Robbie Couch | Posted 09.04.2014 | Impact

Celebrity ice bucket challenge videos have filled news feeds across America for weeks. Fortunately, at least a few of those willing public figures are...

Man Who Made ALS Ice Bucket Challenge Go Viral Welcomes Newborn Baby

The Huffington Post | Kimberly Yam | Posted 09.02.2014 | Good News

Pete Frates -- a former college athlete with ALS -- is the man credited with making the ice bucket challenge go viral. Now, Frates has something else ...

ALS Association Withdraws Ice Bucket Challenge Trademark Applications Amid Backlash

The Huffington Post | Robbie Couch | Posted 09.02.2014 | Impact

The ALS Association has withdrawn applications to trademark the terms "ice bucket challenge" and "ALS ice bucket challenge," after steps taken to clai...

ALS: From the #IceBucketChallenge to Cures?

Robert N. Klein | Posted 11.02.2014 | Healthy Living
Robert N. Klein

The latest research using stem cell therapy has emerged as one potential new treatment to help patients regain muscle movements and slow the progression of the disease.