The Globe's editorial board implies without exception that the CDC is the absolute authority on appropriate and correct treatment for Lyme disease, yet Lyme doctors and patients alike have continually challenged the CDC's stance on Lyme treatment.
Dr. Neil Spector is a leader in applying translational research to the clinical development of molecularly targeted personalized cancer therapies. Here, he shares his story, explains what Lyme and cancer have in common, and encourages us with his vision for the future.
As evidenced by the recent Virginia legislation and the removal of IDSA Lyme guidelines from the federal database used by physicians, patients often have to be their own best health advocates, but they can only do so when they have information. We need to do better.
He talked over me, had no interest in learning, and ultimately muttered that although he is sticking to his guns about not agreeing with my diagnosis (but having no other explanation for my ongoing symptoms and subsequent resolution of them), he "can't argue" with my progress.
To be honest, I never felt like it was brave thing to do -- share my life story about physical and mental illness; it just felt right. My only outlet was theater, and it felt like the only way I could express the angst, anger and sadness I had been feeling about my life.
He listened for 10 minutes and calmly said, "You have Lyme. Lyme does all kinds of weird things, but you'll get better. Amazing that I am only the 12th doctor you've been to. Most find me somewhere between 20 and 100."
Strict adherence to prescribed regulations that don't take into consideration variable and nuanced real-world factors that don't always fit neatly into diagnostic criteria? Or is there something about Lyme disease specifically, as Tara Geraghty said, that no one wants to talk about?
Emails and tweets bearing this request have gone unanswered, and so I must resort to an open letter: Please, I urge you, Bravo, and the NBC family of networks to acknowledge the severity of Lyme disease and use your influence for good.